Welcome to MEpedia-condensed
We are crowd-sourcing a knowledge base on the history, science and medicine of ME and CFS around the world. MEpedia is a patient community project being built by patients, founded by #MEAction. Read more about MEpedia and its principles.
- 1 Please contribute
- 2 Five minute tasks
- 3 Priority pages for expansion
- 4 A note on ME v. CFS
- 5 Primers
- 6 The Disease
- 7 Disease Names & Definitions
- 8 Potential treatments
- 9 Clinical doctors worldwide
- 10 Research
- 11 Psychological Paradigm
- 12 By country: Diagnosis, treatments, insurance, disability, etc.
- 13 History
- 14 Patient advocacy
- 15 Media
- 16 Open Letters
Anyone can create pages, write content, add links/citations, fact-check, or even just fix typos. Get involved and help the patient community identify all of the best and most important resources for our disease and its research, treatment and history. Start now, read How to contribute. Please join the MEpedia online forum, Facebook group, and follow us on Twitter.
Pages that are a Red link or with Blue link* need to be populated or further populated. (This has nothing to do with a page cleanup note.) At times there will be a Blue link but the page is not populated as a Category may create a blue link or the page could use more information especially as to how it pertains to ME/CFS. If a page is populated please make sure page is a Blue link and/or * removed.
Five minute tasks
Only have a five minute spoon to give? Here is a list of small tasks you can help us with in roughly one to ten minutes of time.
Priority pages for expansion
History and politics:
A note on ME v. CFS
We have separate pages for Myalgic Encephalomyelitis, ME/CFS and Chronic Fatigue Syndrome as well as SEID. The convention is that the terminology used in an ME-pedia article should match the terminology used in the underlying source. Where there is a tension between the term used in the source and the definition (e.g., ME defined by the Oxford criteria or CFS defined by the Canadian Consensus Criteria), it may be useful for clarity to mention the definition used.
- Primer for doctors and researchers
- Primer for family, friends and care providers
- Primer for journalists
- Primer for patients
- Primer for the public
Disease Names & Definitions
- Definitions & diagnostic criteria
- Disease Names
- Related conditions
- Category:Disease names
Category page: Potential treatments
Anti-inflammatory drugs: Sulfasalazine
Uncategorized interventions: Traditional Chinese medicine, Cold immersion, Fecal matter transplant/Faecal bacteriotherapy, Helminthic therapy, Pacing, Energy envelope, Hyperbaric oxygen, Ozone, Altitude, Exercise, Vagus nerve stimulation, Exercise based on 2-day CPET, Lipid replacement therapy
Clinical doctors worldwide
Clinical doctors worldwide are listed by country.
Studies, biobanks, registries, mailing lists
- Psychological paradigm, mind-body approaches and related interventions
- Psychological paradigm proponents
- Psychological paradigm critics
- Patient mental health
By country: Diagnosis, treatments, insurance, disability, etc.
China, India, Indonesia, Iran, Israel, Japan, Russia, Category:China, Category:India, Category:Indonesia, Category:Iran, Category:Israel, Category:Japan, Category:Philippines, Category:Russia, Category:South Korea
Austria, Belgium, Bulgaria, Czech Republic, Denmark, Finland, France, Germany, Greece, Hungary, Ireland, Italy, Netherlands, Norway, Poland, Romania, Russia, Slovakia, Slovenia, Spain, Sweden, Ukraine, United Kingdom, Category:Austria, Category:Belgium, Category:Bulgaria, Category:Croatia, Category:Czech Republic, Category:Denmark, Category:European research initiatives, Category:Finland, Category:France, Category:Germany, Category:Hungary, Category:Iceland, Category:Ireland, Category:Italy, Category:Latvia, Category:Netherlands, Category:Norway, Category:Poland, Category:Romania, Category:Russia, Category:Slovakia, Category:Slovenia, Category:Spain, Category:Sweden, Category:Ukraine, Category:United Kingdom
- North America:
- South America:
Deceased patients: Sophia Mirza, Thomas Hennessy, Jr., Vanessa Li, Lynn Gilderdale, Emily Collingridge, Chardale Dotson Irvine, Oliver Coles, Brynmor John, Victoria Elsbury-Legg, Roger Cicero, Memorial Lists