CFS Patient Advocate
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
CFS Patient Advocate is a blog by Christopher Cairns, about being a patient advocate for his adult daughter who is housebound in St. Paul, Minnesota with ME/CFS. In his own words:
"This blog presents reports from several lectures or conferences. It also attempts to define, in my own way, the role of a Patient Advocate. The premise is simple. I make my observations in hopes that they might be beneficial to others, in the same spirit of generosity that so many others' comments have been useful to me. These entries are presented for information only purposes. In no way should they be taken as medical advice. I am not a doctor and I do not want to be one."