Charles Shepherd

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Charles Bernard Shepherd, MB, BS, is the Honorary Medical Adviser to the ME Association, a patient charity in London, United Kingdom and the co-author with Dr Abhijit Chaudhuri of ME/CFS/PVFS: An Exploration of Key Clinical Issues, a health professional's guidebook published by the ME Association. He was on the Steering Committee of the National ME Observatory, a collaborative research project in the UK.[1] His special interest in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) stems from having developed the illness after a bout of chickenpox.[2]

Dr. Shepherd is interviewed in the 2012 BBC Alba (Scotland, UK) documentary Toxic Tiredness about ME/CFS.

London criteria[edit]

Dr. Shepherd was one of the co-authors of the 1994[3] and, the updated 2014, London criteria case definition for research.[4]

Shepherd ME/CFS Disability Scale[edit]

The Shepherd ME/CFS Disability Scale, a symptom scale created by Dr. Charles Shepherd, was adapted from the Expanded Disability Status Scale (EDSS) used for patients with multiple sclerosis (MS).[5]

Books[edit]

Open Letter to The Lancet[edit]

Two open letters to the editor of The Lancet urged the editor to commission a fully independent review of the PACE trial, which the journal had published in 2011. In 2016, Dr. Shepherd, along with 41 colleagues in the ME/CFS field, signed the second letter.

Response to Institute of Medicine report[edit]

Media coverage[edit]

  • 2016, Dr. Shepherd and Patient Ginger @1:10 (BBC Radio London - Jo Good, UK, 8 Aug 2016)
  • 2015, It’s time for doctors to apologise to their ME patients
    Excerpt: " Opening the 2015 research collaborative section of neuropathology, Jose Montoya, professor of medicine at the University of Stanford, said: “I have a wish and a dream that medical and scientific societies will apologise to their ME patients." I agree – the time has come for doctors and scientists to apologise for the very neglectful way in which ME has been researched and treated over the past 60 years. Doctors need to start listening to their patients and there must now be increased investment in biomedical research to gain a better understanding of the disease process and to develop treatments that these patients desperately need." (Telegraph, UK, 7 Dec 2015)[8]

Pace trial critiques[edit]

  • 9 Apr 2017 - PACE trial claims for recovery in myalgic encephalomyelitis/chronic fatigue syndrome – true or false? It’s time for an independent review of the methodology and results (FULL TEXT)
    Abstract - The PACE trial set out to discover whether cognitive behaviour therapy and graded exercise therapy are safe and effective forms of treatment for myalgic encephalomyelitis/chronic fatigue syndrome. It concluded that these interventions could even result in recovery. However, patient evidence has repeatedly found that cognitive behaviour therapy is ineffective and graded exercise therapy can make the condition worse. The PACE trial methodology has been heavily criticised by clinicians, academics and patients. A re-analysis of the data has cast serious doubts on the recovery rates being claimed. The trust of patients has been lost. The medical profession must start listening to people with myalgic encephalomyelitis/chronic fatigue syndrome if trust is going to be restored.[9]

8 short web seminars by Science to patients / wetenschap voor patienten, english spoken, nederlands ondertiteld[edit]

Learn more[edit]

See also[edit]

References[edit]

  1. https://meagenda.wordpress.com/2008/10/29/disclosure-by-afme-of-composition-of-national-me-observatory-steering-and-management-groups/
  2. http://www.talkhealthpartnership.com/online_clinics/experts/dr_charles_shepherd.php
  3. EG Dowsett, E Goudsmit, A Macintyre, C Shepherd, et al., London criteria for M.E., Report from The National Task Force on Chronic Fatigue Syndrome (CFS), Post Viral Fatigue Syndrome (PVFS), Myalgic Encephalomyelitis (ME). Westcare, 1994, pp. 96-98.
  4. http://www.axfordsabode.org.uk/me/mecrit2014.htm
  5. Shepherd, Charles, Dr. Living with M.E.: The Chronic/post-viral Fatigue Syndrome. London: Vermilion, 1999. pp 116-117. Print.
  6. Shepherd, Charles, Dr., and Abhijit Chaudhuri, Dr. ME/CFS/PVFS: An Exploration of the Key Clinical Issues. Gawcott, Bucks: ME Association, 2016. Print.
  7. Shepherd, Charles, Dr. Living with M.E.: The Chronic/post-viral Fatigue Syndrome. London: Vermilion, 1999. Print.
  8. Shepherd, Charles, Dr. "It’s Time for Doctors to Apologise to Their ME Patients." The Telegraph. Telegraph Media Group, 07 Dec. 2015. Retrieved online on 12 Feb. 2017.
  9. Shepherd CB. (2017). PACE trial claims for recovery in myalgic encephalomyelitis/chronic fatigue syndrome – true or false? It’s time for an independent review of the methodology and results. Journal of Health Psychology. doi:10.1177/1359105317703786


The information provided at this site is not intended to diagnose or treat any illness.

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history