From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Tom Kindlon is known for his extensive analysis, publications and correspondence with ME/CFS researchers, particularly in relation to the PACE trial. He became ill with Myalgic Encephalomyelitis in February 1989, when he was just 16 years old.
Talks, Interviews, Articles
- 20 March 2017, Do graded activity therapies cause harm in chronic fatigue syndrome?
"Abstract - Reporting of harms was much better in the PACE (Pacing, graded Activity, and Cognitive behavioural therapy: a randomised Evaluation) trial than earlier chronic fatigue syndrome trials of graded exercise therapy and cognitive behavioural therapy. However, some issues remain. The trial’s poor results on objective measures of fitness suggest a lack of adherence to the activity component of these therapies. Therefore, the safety findings may not apply in other clinical contexts. Outside of clinical trials, many patients report deterioration with cognitive behavioural therapy and particularly graded exercise therapy. Also, exercise physiology studies reveal abnormalities in chronic fatigue syndrome patients’ responses to exertion. Given these considerations, one cannot conclude that these interventions are safe and risk-free."
- Jan 2017, PACE trial claims of recovery are not justified by the data: A Rejoinder to Sharpe, Chalder, Johnson, Goldsmith and White (2017) by Carolyn Wilshire, Tom Kindlon, & Simon McGrath
- Dec 2016, "Can patients with chronic fatigue syndrome really recover after graded exercise or cognitive behavioural therapy? A critical commentary and preliminary re-analysis of the PACE trial", by Carolyn Wilshire, Tom Kindlon, Alem Matthees & Simon McGrath in Fatigue: Biomedicine, Health & Behavior
- 2015, "No one chooses to have ME - everything changed when I became ill" by Tom Kindlon in Irish Independent
- 2013, Cort Johnson interviews Tom Kindlon - Phoenix Rising
- 2017, Sixth Annual Wego Health nominee for "Best in Show-Twitter" for a health activist
- 2017, Certificate of Appreciation from the Open Medicine Foundation
- 2016, Fifth Annual Wego Health finalist for "Best in Show-Twitter" for a health activist
- 2015, Fourth Annual Wego Awards - Nominated for Health Activist Hero
- 2014, Third Annual Wego Health finalist for "Best in Show-Twitter" for a health activist
Chronic Fatigue Syndrome Advisory Committee testimony
- Oct 2009, Written testimony at Oct 2009 CFSAC meeting
- May 2009, Written Testimony for May 2009 meeting
- Facebook - Tom Kindlon's ME CFS & related page
- Facebook - Tom Kindlon-pwme
- "No one chooses to have ME - everything changed when I became ill"
- "Reporting of Harms Associated with Graded Exercise Therapy and Cognitive Behavioural Therapy in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome"
- Tom Kindlon. (2017). Do graded activity therapies cause harm in chronic fatigue syndrome? Journal of Health Psychology. http://journals.sagepub.com/doi/10.1177/1359105317697323