Alem Matthees

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Alem Matthees lives in East Perth, Australia.

PACE Investigation[edit]

Alem Matthees was the original requester of the anonymised data of the PACE study, a controversial study which concluded with strong data that cognitive behavioral therapy (CBT) and graded exercise therapy (GET) was the preferred treatment for chronic fatigue syndrome. On 24 March 2014, he filed a UK Freedom of Information Act (FOIA) for the data, but Queen Mary University of London (QMUL), the institution that sponsored the PACE study, denied his request. On 18 June 2014, Matthees requested an internal review, but QMUL again denied his request. On 15 Dec 2014, he filed a complaint to the Information Commissioner (IC). In October 2015, the IC ruled in Matthees' favor that the researchers were required to release the anonymised data of the study. QMUL appealed but again lost their appeal in Aug 2016.[1]

Many scientists around the world supported Matthees' request, as they, too, wanted to be able to test the study's methods and statistical analysis.[2][3]

Awards[edit]

  • 2016, Finalist for Wego Health Awards for Health Activist Hero and Lifetime Achievement[4]

Appeal Paperwork[edit]

Information Commissioner's Full Response[edit]

Articles[edit]

Professional journal comments about PACE by Matthees[edit]

Learn More[edit]

See Also[edit]

References[edit]

  1. http://www.informationtribunal.gov.uk/DBFiles/Decision/i1854/Queen%20Mary%20University%20of%20London%20EA-2015-0269%20(12-8-16).PDF
  2. http://www.virology.ws/2016/02/10/open-letter-lancet-again
  3. https://jcoynester.wordpress.com/tag/alem-matthees/
  4. https://awards.wegohealth.com/nominees/12435
  5. http://annals.org/aim/article/2473521/treatment-myalgic-encephalomyelitis-chronic-fatigue-syndrome
  6. Matthees, Alem (April 2015), "Assessment of recovery status in chronic fatigue syndrome using normative data.", Quality of Life Research, 24 (4): 905-7, PMID 25304959, doi:10.1007/s11136-014-0819-0 
  7. http://retractionwatch.com/2015/12/16/plos-one-issues-editors-note-over-disputed-chronic-fatigue-research/
  8. http://www.bmj.com/content/350/bmj.h227/rr-16


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From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history