Pediatric myalgic encephalomyelitis and chronic fatigue syndrome

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Pediatric ME/CFS has been defined by the Centers for Disease Control (CDC) and the Institute of Medicine (IOM) although it is usually diagnosed in adults. "Children below the age of 8 or 9 do not have the symptom pattern of adolescents past puberty. If the onset of the disease occurs during adolescence, the most common time of onset, the pattern is similar to that of adults."[1] Children can be diagnosed at 3 months while adults are diagnosed at six months.[2][3]

In 2012, the (CDC) estimated less than 20% of (adult) Americans that have CFS were diagnosed.[4] A 2008 ProHealth survey of 1,210 (adult) ME/CFS patients showed "29% had been ill from 6 to 20-plus years before being diagnosed."[5]

In 2006, a study in Chicago, Illinois by Jordan, et al, concluded that the overall prevalence rate for a community-based sample of adolescents (aged 13 to 17) was 181 per 100,000 or .181%.[6]

Pediatric Primer[edit | edit source]

Recognized as a Pediatric disease[edit | edit source]

Pediatric ME/CFS is outlined in the 2015 Institute of Medicine report*.

The Massachusetts CFIDS/ME & FM Association has produced 6 pages of easy to step through information based on the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/MD) case definition: ME/CFS A Primer for Clinical Practitioners*.

Page titles
  1. Pediatric case definition/diagnostic criteria for ME/CFS
  2. Exclusionary conditions
  3. Differential diagnosis
  4. Finding a doctor
  5. More Resources
  6. References


A Pediatric Case Definition for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome* was developed in 2006 by Leonard Jason, et al.[8]

*These definitions/criteria have NOT been officially accepted into clinical care settings. However, they may be helpful in speaking to your doctor about symptoms and tests.

The CDC provides Factsheets for Healthcare Professionals, Parents/Guardians, and Education Professionals. (2014)

Webinar[edit | edit source]

Charities[edit | edit source]

Tymes Trust is a UK charity dedicated to helping parents and guardians understand Pediatric ME/CFS and navigate social services, healthcare, and the school system.

Notable studies[edit | edit source]

See also[edit | edit source]


References[edit | edit source]

  1. ME/CFS in Children - by David S. Bell, MD - Open Medicine Foundation
  2. Pediatric ME/CFS - Massachusetts CFIDS/ME FM Association
  3. Canadian Case Definition: DIAGNOSTIC PROTOCOL #7 (Pg. 6), Features of ME/CFS in Children (Pg. 15)
  4. Chronic Fatigue Syndrome - Diagnostic Challenges - CDC - 2012
  5. A Profile of ME/CFS Patients - How Many Years and How Many Doctors? - ProHealth
  6. Karen M. Jordan, Cheng-Fang Huang, Leonard A. Jason, Judith Richman, Cynthia J. Mears, William McCready, Ben Z. Katz, Penny M. Ayers, Alfred Rademaker & Kari K. Taylor. (2006). Prevalence of Pediatric Chronic Fatigue Syndrome in a Community-Based Sample. Journal of Chronic Fatigue Syndrome, Vol. 13, Iss. 2-3, pp. 75-78. http://dx.doi.org/10.1300/J092v13n02_04
  7. Rowe, Peter C.; Underhill, Rosemary A.; Friedman, Kenneth J.; Gurwitt, Alan; Medow, Marvin S.; Schwartz, Malcolm S.; Speight, Nigel; Stewart, Julian M.; Vallings, Rosamund; Rowe, Katherine S. (2017), "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer", Frontiers in Pediatrics, 5 (121), doi:10.3389/fped.2017.00121 
  8. 8.0 8.1 Jason, Leonard A; Jordan, Karen; Miike, Teruhisa; Bell, David S; Lapp, Charles; Torres-Harding, Susan; Rowe, Kathy; Gurwitt, Alan; De Meirleir, Kenny; Van Hoof, Elke LS (2006), "A Pediatric Case Definition for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome", Journal of Chronic Fatigue Syndrome, 13 (2-3): 1-44, doi:10.1300/J092v13n02_01 
  9. Shi, J.; Shen, J.; Xie, J.; Zhi, J.; Xu, Y. (2018), "Chronic fatigue syndrome in Chinese middle-school students", Medicine, 97 (4): e9716, doi:10.1097/MD.0000000000009716 
  10. Bakken, IJ; Tveito, K; Aaberg, KM; Ghaderi, S; Gunnes, N; Trogstad, L; Magnus, P; Stoltenberg, C; Haberg, SE (2016), "Comorbidities treated in primary care in children with chronic fatigue syndrome/myalgic encephalomyelitis: A nationwide registry linkage study from Norway", BMC Family Practice, 17 (1): 128, doi:10.1186/s12875-016-0527-7, PMID 27590471 
  11. https://www.nap.edu/read/19012/chapter/8#201 Pediatric ME/CFS - Institute of Medicine Report - The National Academies Press Chapter 8, Pg. 201
  12. Mizuno, K.; Tanaka, M.; Tanabe, H.C.; Joudoi, T.; Kawatani, J.; Shigihara, Y.; Tomoda, A.; Miike, T.; Imai-Matsumura, K.; Sadato, N.; Watanabe, Y. (2015), "Less efficient and costly processes of frontal cortex in childhood chronic fatigue syndrome", NeuroImage : Clinical, 2015 (9): 355–368, doi:10.1016/j.nicl.2015.09.001, PMID 26594619 
  13. Karen M. Jordan, Amy M. Kolak & [[Leonard Jason|Leonard A. Jason. (1997). Research with Children and Adolescents with Chronic Fatigue Syndrome: Methodologies, Designs, and Special Considerations. Journal of Chronic Fatigue Syndrome, Vol. 3, Iss. 2, pp 3-13. DOI:10.1300/J092v03n02_02


The information provided at this site is not intended to diagnose or treat any illness.

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history