Open Medicine Foundation

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The Open Medicine Foundation (OMF) is an American non-profit 501(c)(3) organization established in 2012. It funds and initiates groundbreaking research into complex chronic illnesses. It supports neuro-immune disease research with a focus on Chronic Fatigue Syndrome (CFS), Myalgic Encephalomyelitis (ME), Fibromyalgia (FMS), and Chronic Lyme Disease.

The OMF's current project is the End ME/CFS Project.

Many of those involved in OMF, including Executive Director Linda Tannenbaum, either have a neuro-immune disease or have a family member who has a neuro-immune disease.

OMF's strategy is to include highly recognized and accomplished scientists with expertise in body systems linked to neuro-immune diseases. The organization also has an extensive patient network as developed through email newsletter subscriptions.

ME/CFS Scientific Advisory Board[edit | edit source]

The advisory board is made up of world-renowned researchers:[1]

Board[edit | edit source]

The OMF board comprises:[2]

Research Projects[edit | edit source]

The ME/CFS Severely Ill, Big Data Study was announced in May, 2015. The most severely ill ME/CFS patients are being studied to find a diagnostic bio-marker.

In 2016, "Mitochondria Man Gets Money UK Goes Mega Chronic Fatigue Syndrome Research Moves Forward"

Notable research[edit | edit source]

2016, Metabolic features of chronic fatigue syndrome

Funding[edit | edit source]

OMF have fund-raised primarily from ME sufferers and community for the research. NIH have not stepped up to fund the research.

In January 2018 Pineapple fund, a bitcoin investor, donated $1 million to OMF. The anonymous donor was so touched by the outpouring of appreciation from the worldwide ME community that they increased the donation to $5 million.[3]

In May 2018, OMF received a new $1 million anonymous pledge to escalate Dr. Ronald Davis’s systems biology approach with Robert Phair.[4]

Advocacy[edit | edit source]

The OMF and the Davis-Dafoe Family held two screenings of Forgotten Plague. Dr. Davis spoke about ME/CFS and research after the screening.[5][6]

Dr. Davis, along with colleagues, have written Open letters in reference to research funds and the PACE trial.

Talks and interviews[edit | edit source]

Ronald Davis



Linda Tannenbaum


Online Presence[edit | edit source]

Learn more[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

  1. Open Medicine Foundation - Scientific Advisory Board
  2. OMF Board
  3. Pineapple Fund
  4. New 1 million donation for ME/CFS research
  5. Ryan Prior (Director); Nicole Castillo (Director); Anthony Komaroff; Hillary Johnson; Ron Davis (2015), Forgotten Plague (documentary film) 
  6. #ME Action (Dec 2015), Forgotten Plague Screening Announcement, Palo Alto USA 

The information provided at this site is not intended to diagnose or treat any illness.

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history