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There are an estimated 92,000 to 598,000 people in Australia with chronic fatigue syndrome, ME or CFS/ME or ME/CFS (based on prevalence ranges of 0.4-2.4%,[1] depending on which definition of the condition is used).

In Australia, most doctors use the name Chronic Fatigue Syndrome for diagnosis.

Australian patients use the terms Chronic Fatigue Syndrome, ME/CFS, CFS/ME, Myalgic Encephalomyelitis or immune dysfunction illness.

Medical guidelines[edit | edit source]

There are no current national clinical guidelines on the NHMRC website.

The 2002 Australian guidelines are used by National Health and Medical Research Council (NHRMC) fellowship recipient Prof Andrew Lloyd, who sits on the review committees for NHMRC grant applications.[2]

Emerge Australia is in the process of recommending new clinical guidelines to replace the outdated Australian guidelines.[3]

Some patients are lobbying for the International Consensus Criteria to be adopted. Some suggested letter templates have been offered for use here and here.

Patient groups[edit | edit source]

The International Consensus Primer is listed by all organisations, except Western Australia's ME/CFS/Lyme Association, which lists the Canadian Consensus Criteria.

One of the NSW websites lists the International Consensus Primer, IACFS/ME Clinical, the 2006 Paediatric Criteria[4], and the South Australian ME/CFS Guidelines[5] but is not clear on which one it endorses.

Some state organisations, NCNED and some patients are lobbying[6] for the 2002 RACP Australian guidelines[7] to be replaced with the International Consensus Criteria.

Australian medical associations[edit | edit source]

National health department[edit | edit source]

National Health and Medical Research Council[edit | edit source]

The NHMRC funds health and medical research, and develops health advice & guidelines. It is part of the Australian Department of Health.

State and territory health departments[edit | edit source]

Health insurance[edit | edit source]

Government health insurance[edit | edit source]

The Australian government subsidises most medical appointments, some hospital services, and some medications.

Private health insurance[edit | edit source]

Social security and disability benefits[edit | edit source]

Access to care[edit | edit source]

((How many hospitals & doctors, which diagnose and treat ME (estimate):)) ((Rehabilitation offers for ME sufferers: ))

Patient groups[edit | edit source]

There is no national ME or CFS organisation in Australia, however there are patient organisations in each state and territory.

Research[edit | edit source]

Notable studies[edit | edit source]

Research results[edit | edit source]

Research funding[edit | edit source]

Research groups[edit | edit source]

Researchers[edit | edit source]

Clinicians[edit | edit source]

Notable patients[edit | edit source]

Learn more[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

  1. Carruthers, B M; van de Sande, M I; De Meirleir, Kenny L; Klimas, Nancy G; Broderick, G; Mitchell, T; Staines, Donald; Powles, A C P; Speight, Nigel; Vallings, Rosamund; Bateman, Lucinda; Baumgarten-Austrheim, B; Bell, David S; Carlo-Stella, N; Chia, John; Darragh, A; Jo, D; Lewis, Donald P; Light, Alan R; Marshall-Gradisnik, Sonya; Mena, I; Mikovits, J A; Miwa, K; Murovska, M; Pall, M L; Stevens, Staci R (22 August 2011), "Myalgic encephalomyelitis: International Consensus Criteria", Journal of Internal Medicine, 270 (4): 327–338, doi:10.1111/j.1365-2796.2011.02428.x, PMID 21777306 
  2. 2.0 2.1 #MEAction; Nimmo, Sasha (20 Jan 2016), "Australian Health Dept Answers Questions on ME", #MEAction 
  3. reference needed
  4. Jason, Leonard A; Jordan, Karen; Miike, Teruhisa; Bell, David S; Lapp, Charles; Torres-Harding, Susan; Rowe, Kathy; Gurwitt, Alan; De Meirleir, Kenny; Van Hoof, Elke LS (2006), "A Pediatric Case Definition for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome", Journal of Chronic Fatigue Syndrome, 13 (2-3): 1-44, doi:10.1300/J092v13n02_01 
  5. South Australian Department of Human Services; University of Adelaide; ME/CFS Society of South Australia (2004), ME/CFS Guidelines: Management Guidelines for General Practitioners (PDF), ISBN 0 7308 9334 0 
  6. #MEAction; Nimmo, Sasha (14 Mar 2016), "Australians: Ask the Medical Research Council to Fund Studies", #MEAction 
  7. 7.0 7.1 Victoria Toulkidis; et al. (2002), "Supplement: Chronic fatigue syndrome", Med J Aust 2002, 176 (9): 17-55 
  8. Royal Australasian College of General Practitioners (RACGP) (Mar 2015), Graded exercise therapy: chronic fatigue syndrome 
  9. "articles about Chronic Fatigue Syndrome", Australian Family Physician 
  10. Megan Arroll, Bruce Arroll (Apr 2013), "Chronic fatigue syndrome: A patient centred approach to management", Australian Family Practitioner 
  11. Australian Medical Association (3 May 2004), Chronic fatigue sufferers beat blues with exercise 
  12. #MEAction; Nimmo, Sasha (3 Mar 2016), "Australian Breakthrough on Diagnostic Blood Test", #MEAction 
  13. #MEAction; Nimmo, Sasha (19 Aug 2015), "Australian Research into ME/CFS in Adolescents", #MEAction 
  14. #MEAction; Nimmo, Sasha (12 Feb 2016), "Australian Health Dept Pins its Hopes on NIH Research", #MEAction 
  15. #MEAction; Nimmo, Sasha (16 Nov 2015), "Australian Senator Questions Government on Lack of Action on ME", #MEAction 
  16. Alison Hunter Memorial Foundation (website) 

The information provided at this site is not intended to diagnose or treat any illness.

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history