Janelle Wiley

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Janelle Wiley is an American patient advocate for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). She has been involved in "citizen-science" analysis of the PACE trial alongside Graham McPhee and others. She has also testified at several Chronic Fatigue Syndrome Advisory Committee (CFSAC) meetings.[1] She became ill with ME at the age of 19 while she was studying biology at university.[2]

Janelle Wiley was one of the contributors to the ME Analysis: Evaluating PACE project at Phoenix Rising.

Online presence[edit | edit source]

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  1. ↑ http://www.hhs.gov/advcomcfs/meetings/presentations/wiley_janelle_100412.pdf
  2. ↑ http://www.hhs.gov/advcomcfs/meetings/presentations/publictestimony_201105_wiley.pdf

Chronic Fatigue Syndrome Advisory Committee (CFSAC) - (sometimes pronounced SIF-SACK) A US government advisory council that met twice per year, covering current topics related to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Meetings usually lasted for two days and the results were presented to the Secretary of Health and Human Services (HHS). After 15 years, on September 5, 2018, CFSAC's charter was not renewed by the Department of HHS, effectively dissolving the committee without notice or warning.

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From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.

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