From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
- This 20 min. podcast reviews the PACE trial's outcome switching, Freedom of Information Act (FOIA) denial and money trail, and conflict of interest (COI) problems based on articles by Julie Rehmeyer in SLATE and David Tuller in Virology blog.
Interview with Julie Rehmeyer
- "In her new book, "Through the Shadowlands," science journalist Julie Rehmeyer chronicles her odyssey through a mysterious illness. After encountering debilitating fatigue, Rehmeyer got no answers from medical doctors other than a diagnosis of CFS--Chronic Fatigue Syndrome. Even the slightest exertion prompted severe exacerbations. After one particularly incapacitating bout, she undertook an extreme measure--a desert retreat to Death Valley. There she discovered that one component of her illness was mold sensitivity. Rehmeyer describes how volatile gasses emitted by molds can cripple the nervous systems of susceptible individuals. She emphasizes that there's no "one-size-fits-all" solution to CFS; different patients respond to different measures like diet, supplements, hormonal support, or immunomodulators. Rehmeyer has become a vocal advocate for CFS research, and briefs us on the latest advances. She also offers a critique of a much-maligned study--PACE--which concludes that CFS patients just need exercise and cognitive behavioral therapy to recover."
- "Dr. Hoffman continues his conversation with science journalist Julie Rehmeyer, author of "Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand", who chronicles her odyssey through a mysterious illness".
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