Maryann Spurgin, Ph.D., is the founder of the ME Society of America (now archived). She lives in Shreveport, Louisiana, US and has lived with myalgic encephalomyelitis (ME) since 1982. She taught philosophy until she became too ill. She now works as a writer on the science and politics of myalgic encephalomyelitis (ME).
Blogs and articles[edit | edit source]
- 1996, Review of Hillary Johnson's Osler's Web in The Nation
- 1997, Physician-assisted suicide would reinforce a power structure that denies patient rights: Letter to the editor to the New York Review of Books in response to Ronald Dworkin
- 1997, New Age "Science" or Pseudoscience: A Review of Mark Demitrack's and Susan Abbey's Chronic Fatigue Syndrome: An Integrative Approach to Evaluation and Treatment
- 2002, Maryann Spurgin Reviews I Remember Me
- 2003, Maryann Spurgin, Ph.D., Reviews the 2003 ME/CFS Clinical Case Definition
- 2013, IOM Statement from Dr. Maryann Spurgin, on YouTube
- 2014, IOM Statement from Dr. Maryann Spurgin, Myalgic Encephalomyelitis Society of America
- 2016, Circulatory Impairment in Myalgic Encephalomyelitis: A Preliminary Thesis
- 2016, A Cardiac Marker for Disability in Myalgic Encephalomyelitis: A talk by Paul Cheney, writeup by Carol Sieverling(2004), edited by Maryann Spurgin(2016).
- 2016, Maryann's 1997 take down of the psychogenic hypothesis in a review of a book by Mark Demitrack: ME Advocacy
- 2016, Ray Colliton, friend to ME community, passes on for the Shoutout About ME blog
- 2017, What is Myalgic Encephalomyelitis: A Brief Historical Introduction
- 2018, Trial By Error: Open Letter to the Lancet (Cosignatory)
Online presence[edit | edit source]
See also[edit | edit source]
References[edit | edit source]
myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.