Ellen Goudsmit

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Source: ellengoudsmit.wordpress.com

Dr Ellen Marianne Goudsmit is a retired health psychologist. Despite being disabled since childhood and at times, housebound, she has worked to create greater awareness of conditions such as postnatal depression, premenstrual syndrome, myalgic encephalomyelitis (ME), and chronic fatigue syndrome (CFS).[1] She has been an advisor to the charity now known as Action for ME and the ME Association.[2]

Dr Goudsmit has written papers detailing her accusation that the British Medical Journal[3] and The Lancet journal[4] had displayed bias towards the psychological model of ME and CFS.

Her published several papers on ME and CFS[5] include the first description of progressive ME, "Progressive Myalgic Encephalomyelitis (ME) or a New Disease? A Case Report."[6]

London criteria[edit | edit source]

Dr. Goudsmit was one of the co-authors of the London criteria for ME, along with Dr. Elizabeth Dowsett, Dr. Anne Macintyre, and Dr. Charles Shepherd.[7]. These were published by Action for ME (then ME Action) for use by researchers funded by the charity. An incomplete, edited copy by an unknown person was later published in the 1994 Westcare report and has frequently been assumed to be the original, for example, in articles on the PACE trial. To avoid confusion, these are now referred to as the 'Westcare criteria'. The first version of the revised London criteria was published in Health Psychology Update, 2009. The text (with additional references) is available on the ME Association website. "A copy of the ‘London Criteria for M.E.’ as revised in 2014 archived here for reference purposes. 15 October 2016"[8]

Letters[edit | edit source]

Doctorate thesis[edit | edit source]

Notable publications[edit | edit source]

Learn more[edit | edit source]

Online presence[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

  1. http://www.axfordsabode.org.uk/me/ellen-cv.htm
  2. Dr Ellen Goudsmit joins ME association panel of advisors
  3. 3.0 3.1 Goudsmit, Ellen; Stouten, Bart (2004), "Chronic Fatigue Syndrome: Editorial Bias in the British Medical Journal", Journal of Chronic Fatigue Syndrome, 12 (4): 47-59, doi:10.1300/J092v12n04_05 
  4. http://www.axfordsabode.org.uk/me/lanbias1.htm
  5. http://www.ncbi.nlm.nih.gov/pubmed/?term=goudsmit+e Pubmed Ellen Goudsmit
  6. 6.0 6.1 Howes, Sandra; Goudsmit, Ellen M (2015), "Progressive Myalgic Encephalomyelitis (ME) or A New Disease? A Case Report" (PDF), Phys Med Rehabil Int, 2 (6): 1052 
  7. EG Dowsett, E Goudsmit, A Macintyre, C Shepherd, et al. The 'London' criteria. Diagnostic criteria for the selection of subjects for research into ME/PVFS
  8. http://www.meassociation.org.uk/2016/10/a-copy-of-the-london-criteria-as-revised-in-2014-archived-here-for-reference-purposes-15-october-2016.
  9. Sunnquist, Madison; Jason, Leonard; Nehrke, Pamela; Goudsmit, Ellen (2017), "A Comparison of Case Definitions for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome", Journal of Chronic Diseases and Management, 2 (2): 1013, PMID 29104961 
  10. Goudsmit, Ellen M; Howes, Sandra (2017), "Bias, misleading information and lack of respect for alternative views have distorted perceptions of myalgic encephalomyelitis/chronic fatigue syndrome and its treatment", J Health Psychol, 22 (9): 1159-1167, doi:10.1177/1359105317707216 
  11. http://www.meassociation.org.uk/2016/10/a-copy-of-the-london-criteria-as-revised-in-2014-archived-here-for-reference-purposes-15-october-2016/
  12. Goudsmit, Ellen M; Nijs, Jo; Jason, Leonard A; Wallman, Karen E (2012), "Pacing as a strategy to improve energy management in myalgic encephalomyelitis/chronic fatigue syndrome: a consensus document", Disability and Rehabilitation, 34 (13): 1140-7, doi:10.3109/09638288.2011.635746 
  13. Goudsmit, Ellen M; Ho-Yen, Darrel O.; Dancey, Christine P. (2009), "Learning to cope with chronic illness. Efficacy of a multi-component treatment for people with chronic fatigue syndrome.", Patient Education & Counseling, 77 (2): 231-6, doi:10.1016/j.pec.2009.05.015 
  14. Goudsmit, Ellen M; Stouten, Bart; Dancey, Christine P. (2009), "Illness intrusiveness in myalgic encephalomyelitis: an exploratory study.", J Health Psychol, 14 (2): 215-21, doi:10.1177/1359105308100205 

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From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history