Erica Verrillo is a prolific writer and activist for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), having written two well-received books on ME/CFS, a popular blog, Onward Through the Fog, and serving as the ME/CFS editor for ProHealth. She has lived with ME/CFS since 1987. She is the founder of the American ME and CFS Society (AMMES).
Education[edit | edit source]
Ms. Verrillo attended New England Conservatory of Music and studied flute, then finished her undergraduate education at Tufts, majoring in History. She holds an MA in Linguistics from Syracuse University, and was a doctoral candidate in Speech Communication at the University of Texas at Austin.
Writing about CFS[edit | edit source]
Books[edit | edit source]
- Chronic Fatigue Syndrome: A Treatment Guide with Lauren M. Gellman, 1998.
- Chronic Fatigue Syndrome: A Treatment Guide - 2nd Edition, 2012.
Blogs[edit | edit source]
- Chronic Fatigue and Immune Dysfunction: Who Took the “ID” Out of CFIDS?, Blogcritics
- Is Chronic Fatigue Syndrome an Autoimmune Disease?, Blogcritics
- Book Review: ‘Love and Fatigue in America’ by Roger King, Blogcritics
American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society[edit | edit source]
In 2016, Verrillo founded a national non-profit, the American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society or AMMES, which aims at being completely patient-centered, providing databases for treatment, physician referrals, and support groups, as well as uniting volunteers and patients on an as-needed basis.
Talks and interviews[edit | edit source]
Online presence[edit | edit source]
Learn more[edit | edit source]
- Dec 19, 2016, Sapped of strength and stricken with pain and confusion those with chronic fatigue syndrome seek help with an elusive illness, by Lisa Spear in Daily Hampshire Gazette
References[edit | edit source]
- Blogcritics - Chronic Fatigue and Immune Dysfunction: Who Took the “ID” Out of CFIDS?
- Blogcritics - Is Chronic Fatigue Syndrome an Autoimmune Disease?
- Blogcritics - Book Review: ‘Love and Fatigue in America’ by Roger King
chronic fatigue syndrome (CFS) - A fatigue-based illness. The term CFS was invented invented by the U.S. Centers for Disease Control as an replacement for myalgic encephalomyelitis (ME). Some view CFS as a neurological disease, others use the term for any unexplained long-term fatigue. Sometimes used as a the term as a synonym of myalgic encephalomyelitis, despite the different diagnostic criteria.
Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS) - Chronic Fatigue and Immune Dysfunction Syndrome is another term for Chronic Fatigue Syndrome, but one which emphasizes the immunological aspects of the disease. Popular in the 1990's, this term has apparently fallen into disuse.
myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.