Perversely Dark (Sykt Mørkt) is a 2014 documentary by Pål Winsents in Fenomen TV Film & Scene AS. It follows two young people with severe myalgic encephalomyelitis (ME) in Norway. Perversely Dark is Winsents' second documentary on ME. The documentary took six years to make, and provides a rare glimpse for the outside world into the reality of severe ME.
The documentary follows Bjørnar and Kristine, both completely bed bound and secluded to dark rooms as severely affected ME-patients. The film reveals an incredible transformation as one of them responds to treatment.
It was launched in 2014 and was sent at the national broadcaster NRK where it is still available for streaming (in Norwegian). It was shown during the Invest in ME International ME Conference in London (2014).
Articles from Norwegian media about the documentary[edit | edit source]
I stummende mørke - Agderposten (13.05.2014)
Bjørnar ligger helt stille hver dag - Romerikets Blad (24.08.2014)
Det er som å løpe maraton hele tiden - Varden (25.08.2014)
Her ligger Bjørnar. Og her har han ligget i 8.5 år - Nordlys (18.12.2014)
References[edit | edit source]
Website Perversely Dark
New link with English subtitles for 58 minute movie: https://vimeo.com/fenomentvfilmogscene/review/96586451/90caf58405 Password is Fenomen
myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.