Lydia Neilson

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Source:Unheard Voices

Lydia Neilson has been the Founder and Chief Executive Officer at the National ME/FM Action Network, Ottawa, Canada, since June 1993. She was instrumental in hosting the 10th International IACFS/ME Research and Clinical Conference held on September 22-25, 2011 in Ottawa, Ontario, Canada. She serves as the editor of Quest, the ME/FM Action Network newsletter.[1]

Ms Leilson developed ME/CFS after an Epstein-Barr virus infection in December 1985, which left her housebound for several years. As she recovered she put her limited energy into advocacy, eventually establishing the National ME/FM Action Network, an organization dedicated to the support, advocacy, education and research of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, and Fibromyalgia.

Awards[edit | edit source]

  • 2011, IACFS/ME Special Service Award - for outstanding personal effort and contribution to the CFS/ME community[2]
  • 2011, Governor General's Meritorious Service Medal, Civil Division, in recognition of her achievements that brought benefit or honour to Canada[3]

Talks & interviews[edit | edit source]

Online presence[edit | edit source]

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The information provided at this site is not intended to diagnose or treat any illness.

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history