Science for ME
Science for ME (S4ME) is a British website which states that it is "an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us."
S4ME reported that its forum had reached 500 members on December 17th 2017, and 2,646 members as at August 4th 2021.
Notable Forum Members[edit | edit source]
Researcher Interaction[edit | edit source]
- Video Q&A with Dr Sadie Whittaker from Solve ME/CFS Initiative, May 2019.
- Written Q&A with Professor Chris Ponting, June 2018.
- Science for ME video Q&A with Dr Jose Montoya, January 2018 
- Q&A with team members of the UK ME/CFS biobank, December 14th 2017.
Forum Member Advocacy Projects[edit | edit source]
- Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire 
- Open letter to NICE concerning the Guideline Committee for ME/CFS 
- Briefing document - The PACE Trial Controversy: A Summary 
Publicly Visible Forums[edit | edit source]
- ME/CFS News and Research
- Other News and Research
- Doctors and Diagnostics
- Missed, Alternative or Co-existing Diagnoses
- Living with ME/CFS
Online presence[edit | edit source]
References[edit | edit source]
- ↑ https://www.facebook.com/pg/sci4me/about/
- ↑ https://www.s4me.info/index.php?threads/science-for-me-gains-its-500th-member.1557/#post-26245
- ↑ "Science for ME page on MEpedia". Science for ME. Retrieved August 4, 2021.
- ↑ https://youtu.be/eIMDoRvE2yA
- ↑ https://www.s4me.info/threads/science-for-me-written-q-a-with-prof-chris-ponting.4743/
- ↑ https://youtu.be/FarVtTHmKLc
- ↑ https://www.s4me.info/index.php?threads/uk-me-cfs-biobank-ask-me-anything-thread-thursday-14th-december-2017-2-30-to-3-30pm-gmt-utc.1458/
- ↑ https://www.s4me.info/threads/s4me-submission-to-the-public-review-on-common-data-elements-for-me-cfs-problems-with-the-chalder-fatigue-questionnaire.2065/
- ↑ https://www.s4me.info/threads/grahams-finalised-letter-to-nice-january-2018.1885/
- ↑ https://www.s4me.info/threads/science-for-me-pace-briefing-document.3140/
PACE trial A controversial study which claimed that CBT and GET were effective in treating "CFS/ME", despite the fact that its own data did not support this conclusion. Its results and methodology were widely disputed by patients, scientists, and the peer-reviewed scientific literature.
The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.