Science for ME
Science for ME (S4ME) is a British website which states that it is "an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us."[1]
S4ME reported that its forum had reached 500 members on December 17th 2017[2], and 2,646 members as at August 4th 2021.[3]
Contents
Notable Forum Members[edit | edit source]
Researcher Interaction[edit | edit source]
- Video Q&A with Dr Sadie Whittaker from Solve ME/CFS Initiative, May 2019.[4]
- Written Q&A with Professor Chris Ponting, June 2018.[5]
- Science for ME video Q&A with Dr Jose Montoya, January 2018 [6]
- Q&A with team members of the UK ME/CFS biobank, December 14th 2017.[7]
Forum Member Advocacy Projects[edit | edit source]
- Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire [8]
- Open letter to NICE concerning the Guideline Committee for ME/CFS [9]
- Briefing document - The PACE Trial Controversy: A Summary [10]
Publicly Visible Forums[edit | edit source]
- Home
- ME/CFS News and Research
- Other News and Research
- Advocacy
- Symptoms
- Treatments
- Doctors and Diagnostics
- Missed, Alternative or Co-existing Diagnoses
- Living with ME/CFS
Online presence[edit | edit source]
References[edit | edit source]
- ↑ https://www.facebook.com/pg/sci4me/about/
- ↑ https://www.s4me.info/index.php?threads/science-for-me-gains-its-500th-member.1557/#post-26245
- ↑ "Science for ME page on MEpedia". Science for ME. Retrieved August 4, 2021.
- ↑ https://youtu.be/eIMDoRvE2yA
- ↑ https://www.s4me.info/threads/science-for-me-written-q-a-with-prof-chris-ponting.4743/
- ↑ https://youtu.be/FarVtTHmKLc
- ↑ https://www.s4me.info/index.php?threads/uk-me-cfs-biobank-ask-me-anything-thread-thursday-14th-december-2017-2-30-to-3-30pm-gmt-utc.1458/
- ↑ https://www.s4me.info/threads/s4me-submission-to-the-public-review-on-common-data-elements-for-me-cfs-problems-with-the-chalder-fatigue-questionnaire.2065/
- ↑ https://www.s4me.info/threads/grahams-finalised-letter-to-nice-january-2018.1885/
- ↑ https://www.s4me.info/threads/science-for-me-pace-briefing-document.3140/
PACE trial A controversial study which claimed that CBT and GET were effective in treating "CFS/ME", despite the fact that its own data did not support this conclusion. Its results and methodology were widely disputed by patients, scientists, and the peer-reviewed scientific literature.
The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.
