Claire Jones

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Claire Jones (born in 1985) is a Welsh harpist who held the title of Official Harpist to the Prince of Wales from 2007 to 2011. She was diagnosed with myalgic encephalomyelitis (ME) in 2013.

Illness[edit | edit source]

Claire started feeling unwell shortly after her wedding in September 2012, experiencing chronic fatigue and widespread pain and migraines. Despite this, she continued working a punishing schedule, which she blamed for her ill health, until she crashed in May 2013.[1] She was taken to the accident & emergency department by her husband where she suffered a seizure, and was diagnosed with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).[2] Her health was so poor she was bedbound for long periods of time, and had to be washed by her mother.[1]

She received treatment at the Optimum Health Clinic in London, as well as by a chiropractor in Cardiff and a specialist in natural medicine in Dorset.[1] After a gradual period of improvement, she has returned to full health. She has now returned to work and is also actively campaigning for better awareness and treatment of ME/CFS.[3][4]

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Articles and interviews[edit | edit source]

Online presence[edit | edit source]

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References[edit | edit source]

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

ME/CFS - An acronym that combines myalgic encephalomyelitis with chronic fatigue syndrome. Sometimes they are combined because people have trouble distinguishing one from the other. Sometimes they are combined because people see them as synonyms of each other.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.