Open Medicine Foundation

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The Open Medicine Foundation (OMF) is an American non-profit 501(c)(3) organization established in 2012 for the purpose of funding and initiating groundbreaking research into complex chronic diseases. It supports chronic complex disease research with a focus on chronic fatigue syndrome (CFS), myalgic encephalomyelitis (ME), fibromyalgia (FMS), and Chronic Lyme Disease.

The OMF's current project is the End ME/CFS Project.

Many of those involved in OMF, including Founder/CEO/President Linda Tannenbaum, either have a neuro-immune disease or have a family member who has a neuro-immune disease.

OMF's strategy is to include highly recognized and accomplished scientists with expertise in body systems linked to chronic complex diseases. The organization also has an extensive patient network as developed through email newsletter subscriptions.

Stuart Murdoch is Ambassador promoting the OMF's work "through videos and messaging on their social media and websites, personal appearances, and face-to-face interactions with their communities and fans."[1]Amy Carlson is an OMF Ambassador also raising awareness and fundraising. As is celebrated international author Karin Alvtegen and opera star Jacqueline Ko.

ME/CFS Scientific Advisory Board[edit | edit source]

The advisory board is made up of world-renowned researchers:[2]

Board[edit | edit source]

The OMF board comprises:[3]

Research Projects[edit | edit source]

The ME/CFS Severely Ill, Big Data Study was announced in May, 2015. The most severely ill ME/CFS patients are being studied to find a diagnostic bio-marker.

In 2016, "Mitochondria Man Gets Money UK Goes Mega Chronic Fatigue Syndrome Research Moves Forward"

Notable research[edit | edit source]

Funding[edit | edit source]

OMF have fund-raised primarily from ME sufferers and community for the research. The National Institutes of Health have not provided funding.

In January 2018 Pineapple fund, a philanthropic project by an early bitcoin investor[4], donated $1 million to OMF.[5] The anonymous donor was so touched by the outpouring of appreciation from the worldwide ME community that they increased the donation to $5 million.[5]

In May 2018, OMF received a new $1 million anonymous pledge to escalate Dr. Ronald Davis’s systems biology approach with Robert Phair.[6]

Advocacy[edit | edit source]

The OMF and the Davis-Dafoe Family held two screenings of Forgotten Plague. Dr. Davis spoke about ME/CFS and research after the screening.[7][8]

Dr. Davis, along with colleagues, have written and signed open letters in reference to research funds and the PACE trial.

Talks and interviews[edit | edit source]

Community Symposium

Ronald Davis

2019

2018

2017

2016

Ronald Tompkins

2019

Linda Tannenbaum

2019

2018

2017

2016

Christopher Armstrong

2019

Online presence[edit | edit source]

Learn more[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

  1. "OMF Ambassador - Stuart Murdoch | Open Medicine Foundation". Open Medicine Foundation. Retrieved Oct 9, 2018. 
  2. "Scientific Advisory Board | Open Medicine Foundation". Open Medicine Foundation. Retrieved Oct 9, 2018. 
  3. "Foundation Board | Open Medicine Foundation". Open Medicine Foundation. Retrieved Oct 9, 2018. 
  4. "Pineapple Fund". Retrieved Jun 23, 2019. 
  5. 5.05.1 "Pineapple Fund increases donation to $5 million | Open Medicine Foundation". Open Medicine Foundation. Feb 2, 2018. Retrieved Oct 9, 2018. 
  6. "New $1 million donation for ME/CFS research! | Open Medicine Foundation". Open Medicine Foundation. May 24, 2018. Retrieved Oct 9, 2018. 
  7. Ryan Prior (Director); Nicole Castillo (Director); Anthony Komaroff; Hillary Johnson; Ron Davis (2015), Forgotten Plague (documentary film) 
  8. #ME Action (Dec 2015), Forgotten Plague Screening Announcement, Palo Alto, CA, US 

chronic disease - a disease or condition that usually lasts for 3 months or longer and may get worse over time

ME/CFS - An acronym that combines myalgic encephalomyelitis with chronic fatigue syndrome. Sometimes they are combined because people have trouble distinguishing one from the other. Sometimes they are combined because people see them as synonyms of each other.

mitochondria - Important parts of the biological cell, with each mitochondrion encased within a mitochondrial membrane. Mitochondria are best known for their role in energy production, earning them the nickname "the powerhouse of the cell". Mitochondria also participate in the detection of threats and the response to these threats. One of the responses to threats orchestrated by mitochondria is apoptosis, a cell suicide program used by cells when the threat can not be eliminated.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.