Open Medicine Foundation
The Open Medicine Foundation (OMF) is an American non-profit 501(c)(3) organization established in 2012 for the purpose of funding and initiating groundbreaking research into complex chronic illnesses. It supports neuro-immune disease research with a focus on chronic fatigue syndrome (CFS), myalgic encephalomyelitis (ME), fibromyalgia (FMS), and Chronic Lyme Disease.
The OMF's current project is the End ME/CFS Project.
OMF's strategy is to include highly recognized and accomplished scientists with expertise in body systems linked to neuro-immune diseases. The organization also has an extensive patient network as developed through email newsletter subscriptions.
Stuart Murdoch is Ambassador promoting the OMF's work "through videos and messaging on their social media and websites, personal appearances, and face-to-face interactions with their communities and fans."
ME/CFS Scientific Advisory Board[edit | edit source]
The advisory board is made up of world-renowned researchers:
- Dr. Ronald Davis (Scientific Advisory Board Director, and father of Whitney Dafoe)
- Paul Berg (cellular metabolism, Nobel laureate)
- Mario Capecchi (genetics, Nobel laureate)
- Mark Davis (immunology)
- Craig Heller (exercise physiology)
- Andreas Kogelnik (OMI founder)
- Robert Naviaux (virology & cell biology, mitochondrial specialist)
- Baldomero Olivera (neurobiology & pain)
- Ronald Tompkins (trauma & metabolism)
- James Watson (genetics, Nobel laureate)
- Wenzhong Xiao (computational genomics)
- David Bell (ME/CFS clinician. See Lyndonville outbreak)
- Maureen Hanson (cell and molecular biology)
- Øystein Fluge (oncology)
- Olav Mella (oncology)
Board[edit | edit source]
The OMF board comprises:
- Linda Tannenbaum (Executive Director)
- Kimberley Hicks (Treasurer)
- Patti Linsley (Secretary)
- R.P. Channing (MD)
- Deborah Rose (MD)
- H. Kenneth Walker (MD)
Research Projects[edit | edit source]
Notable research[edit | edit source]
Funding[edit | edit source]
OMF have fund-raised primarily from ME sufferers and community for the research. The National Institutes of Health have not provided funding.
In January 2018 Pineapple fund, a philanthropic project by an early bitcoin investor, donated $1 million to OMF. The anonymous donor was so touched by the outpouring of appreciation from the worldwide ME community that they increased the donation to $5 million.
Advocacy[edit | edit source]
Talks and interviews[edit | edit source]
- Q&A on ME/CFS Research with Dr. Ron Davis (Mar 7)
- An Update on ME/CFS Research with Dr. Ronald W. Davis (Feb 21)
- Scientist Ron Davis Tells How We Are "Fast-Tracking" ME/CFS Research (Feb 3)
- Getting Answers to ME/CFS Faster through Collaboration and Openness (Dec 13)
- Short Story of a Family's Struggle with ME/CFS (May 21)
- Episode 79 - Linda Tannenbaum (May 8)
Online presence[edit | edit source]
Learn more[edit | edit source]
See also[edit | edit source]
References[edit | edit source]
- "OMF Ambassador - Stuart Murdoch | Open Medicine Foundation". Open Medicine Foundation. Retrieved Oct 9, 2018.
- "Scientific Advisory Board | Open Medicine Foundation". Open Medicine Foundation. Retrieved Oct 9, 2018.
- "Foundation Board | Open Medicine Foundation". Open Medicine Foundation. Retrieved Oct 9, 2018.
- "Pineapple Fund". Retrieved Jun 23, 2019.
- "Pineapple Fund increases donation to $5 million | Open Medicine Foundation". Open Medicine Foundation. Feb 2, 2018. Retrieved Oct 9, 2018.
- "New $1 million donation for ME/CFS research! | Open Medicine Foundation". Open Medicine Foundation. May 24, 2018. Retrieved Oct 9, 2018.
- Ryan Prior (Director); Nicole Castillo (Director); Anthony Komaroff; Hillary Johnson; Ron Davis (2015), Forgotten Plague (documentary film)
- #ME Action (Dec 2015), Forgotten Plague Screening Announcement, Palo Alto, CA, US
Myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.