Open Medicine Foundation

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The Open Medicine Foundation (OMF) is an American non-profit 501(c)(3) organization established in 2012 for the purpose of funding and initiating groundbreaking research into complex chronic illnesses. It supports neuro-immune disease research with a focus on chronic fatigue syndrome (CFS), myalgic encephalomyelitis (ME), fibromyalgia (FMS), and Chronic Lyme Disease.

The OMF's current project is the End ME/CFS Project.

Many of those involved in OMF, including Executive Director Linda Tannenbaum, either have a neuro-immune disease or have a family member who has a neuro-immune disease.

OMF's strategy is to include highly recognized and accomplished scientists with expertise in body systems linked to neuro-immune diseases. The organization also has an extensive patient network as developed through email newsletter subscriptions.

Stuart Murdoch is Ambassador promoting the OMF's work "through videos and messaging on their social media and websites, personal appearances, and face-to-face interactions with their communities and fans."[1]

ME/CFS Scientific Advisory Board[edit | edit source]

The advisory board is made up of world-renowned researchers:[2]

Board[edit | edit source]

The OMF board comprises:[3]

Research Projects[edit | edit source]

The ME/CFS Severely Ill, Big Data Study was announced in May, 2015. The most severely ill ME/CFS patients are being studied to find a diagnostic bio-marker.

In 2016, "Mitochondria Man Gets Money UK Goes Mega Chronic Fatigue Syndrome Research Moves Forward"

Notable research[edit | edit source]

Funding[edit | edit source]

OMF have fund-raised primarily from ME sufferers and community for the research. The National Institutes of Health have not provided funding.

In January 2018 Pineapple fund, a philanthropic project by an early bitcoin investor[4], donated $1 million to OMF.[5] The anonymous donor was so touched by the outpouring of appreciation from the worldwide ME community that they increased the donation to $5 million.[5]

In May 2018, OMF received a new $1 million anonymous pledge to escalate Dr. Ronald Davis’s systems biology approach with Robert Phair.[6]

Advocacy[edit | edit source]

The OMF and the Davis-Dafoe Family held two screenings of Forgotten Plague. Dr. Davis spoke about ME/CFS and research after the screening.[7][8]

Dr. Davis, along with colleagues, have written and signed open letters in reference to research funds and the PACE trial.

Talks and interviews[edit | edit source]

Ronald Davis

2017

2016

Linda Tannenbaum

2016

Online presence[edit | edit source]

Learn more[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

  1. "OMF Ambassador - Stuart Murdoch | Open Medicine Foundation". Open Medicine Foundation. Retrieved Oct 9, 2018. 
  2. "Scientific Advisory Board | Open Medicine Foundation". Open Medicine Foundation. Retrieved Oct 9, 2018. 
  3. "Foundation Board | Open Medicine Foundation". Open Medicine Foundation. Retrieved Oct 9, 2018. 
  4. "Pineapple Fund". Retrieved Jun 23, 2019. 
  5. 5.05.1 "Pineapple Fund increases donation to $5 million | Open Medicine Foundation". Open Medicine Foundation. Feb 2, 2018. Retrieved Oct 9, 2018. 
  6. "New $1 million donation for ME/CFS research! | Open Medicine Foundation". Open Medicine Foundation. May 24, 2018. Retrieved Oct 9, 2018. 
  7. Ryan Prior (Director); Nicole Castillo (Director); Anthony Komaroff; Hillary Johnson; Ron Davis (2015), Forgotten Plague (documentary film) 
  8. #ME Action (Dec 2015), Forgotten Plague Screening Announcement, Palo Alto, CA, US 

ME/CFS - An acronym that combines myalgic encephalomyelitis with chronic fatigue syndrome. Sometimes they are combined because people have trouble distinguishing one from the other. Sometimes they are combined because people see them as synonyms of each other.

Myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.