Ronald Davis

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Ronald Wayne Davis, PhD., is a Professor of Biochemistry & Genetics and the Director of the Stanford Genome Technology Center at Stanford University. In 1983, he was bestowed the honor of being elected a member of the National Academy of Sciences.[1]

His son, Whitney Dafoe, is severely ill with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Professor Davis leads the End ME/CFS Project with the Open Medicine Foundation whose first project was the ME/CFS Severely Ill, Big Data Study.[2]

Committees and boards[edit | edit source]

Open Medicine Foundation[edit | edit source]

Director of the Scientific Advisory Board at Open Medicine Foundation, which is committed to research for ME/CFS and related chronic complex diseases.[3]

Institute of Medicine report[edit | edit source]

Dr. Davis was one of the experts on the "Committee on the Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome" that was convened as per US government request for the 2015 Institute of Medicine.[4] The Institute of Medicine has since changed its name to the National Academy of Medicine.[5]

ME/CFS Common Data Element (CDE) Project[edit | edit source]

Member of the Biomarkers Working Group of the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Common Data Element (CDE) Project sponsored by the National Institute of Neurological Disorders and Stroke and the Centers for Disease Control and Prevention.[6]

Advocacy[edit | edit source]

Open Letters[edit | edit source]

Millions Missing protest[edit | edit source]

Dr. Ron Davis and his wife, Dr. Janet Dafoe, protested with #MillionsMissing at the San Francisco satellite protest on May 25, 2016.[11] Dr. Davis gave a speech about the challenges ME patients face, and his hopes for the future of ME research.[12] To see video of Dr. Davis's interview at the San Francisco #MillionsMissing click HERE.

ME/CFS research[edit | edit source]

  • June 2018, Dr. Davis and the Stanford Genome Center received a grant award for the research study 'Molecular and Single-cell Immunology of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome' "to investigate the immunological basis of ME/CFS using cutting-edge technologies to understand the role of infection and autoimmunity in the behavior of single immune cells from patients – offering precise insights into how this complex illness originates and persists that may lead to new strategies for treatment."[15] This is a five-year study that will receive $745,000 a year.[16]
  • Nov 2018, Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome[17]
  • Feb 2019, Red blood cell deformability is diminished in patients with Chronic Fatigue Syndrome[18] - (Full text)
  • Apr 2019,  A nanoelectronics-blood-based diagnostic biomarker for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)[19] - (Full text)

Talks and interviews[edit | edit source]

2016

2017

YouTube video
Transcript
Mendelspod podcast
Transcript

2018

2019

Online presence[edit | edit source]

See also[edit | edit source]

Learn more[edit | edit source]

References[edit | edit source]

  1. http://www.nasonline.org, National Academy of Sciences -. "Ronald Davis". www.nasonline.org. Retrieved Aug 16, 2018. 
  2. "End ME/CFS Project | Open Medicine Foundation". Open Medicine Foundation. Retrieved Aug 16, 2018. 
  3. "Scientific Advisory Board | Open Medicine Foundation". Open Medicine Foundation. Retrieved Aug 16, 2018. 
  4. Syndrome, Committee on the Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue; Populations, Board on the Health of Select; Medicine, Institute of (Feb 10, 2015). Biographical Sketches of Committee Members, Consultants, and Staff. National Academies Press (US). 
  5. "Home - National Academy of Medicine". National Academy of Medicine. Retrieved Aug 16, 2018. 
  6. "Report Viewer". www.commondataelements.ninds.nih.gov. Retrieved Aug 16, 2018. 
  7. "An open letter to Dr. Richard Horton and The Lancet". www.virology.ws. Retrieved Aug 18, 2018. 
  8. "An open letter to The Lancet, again". www.virology.ws. Retrieved Aug 18, 2018. 
  9. "Trial By Error: An Open Letter to The Lancet, Two Years On". www.virology.ws. Retrieved Aug 18, 2018. 
  10. "An open letter to Psychological Medicine about "recovery" and the PACE trial". www.virology.ws. Retrieved Aug 18, 2018. 
  11. "#MillionsMissing - #MillionsMissing". millionsmissing.meaction.net. Retrieved Aug 16, 2018. 
  12. "Speeches from the Front Lines of #MillionsMissing: Ron Davis | #MEAction". www.meaction.net. Retrieved Aug 16, 2018. 
  13. http://www.cortjohnson.org/forums/threads/end-me-cfs-severe-patient-study-turns-to-the-mitochondria.3949/
  14. https://www.youtube.com/watch?v=sGBXXlQO49g
  15. Molecular and Single-cell Immunology of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - NIH RePORT Project Number 1R01AI139550-01
  16. HealthRising: Ron Davis (Finally) Gets His Big Grant! by Cort Johnson via Open Medicine Foundation
  17. Saha, Amit K; Schmidt, Brendan R; Wilhelmy, Julie; Nguyen, Vy; Do, Justin; Suja, Vineeth C; Nemat-Gorgani, Mohsen; Ramasubramanian, Anand K; Davis, Ronald W (Nov 2018). "Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome". Blood (132): 4874. doi:10.1182/blood-2018-99-117260. 
  18. Saha, Amit K.; Schmidt, Brendan R.; Wilhelmy, Julie; Nguyen, Vy; Abugherir, Abed; Do, Justin K.; Nemat-Gorgani, Mohsen; Davis, Ronald W.; Ramasubramanian, Anand K. (Feb 23, 2019). "Red blood cell deformability is diminished in patients with Chronic Fatigue Syndrome". Clinical Hemorheology and Microcirculation. 71 (1): 113–116. doi:10.3233/CH-180469. 
  19. Esfandyarpour, R.; Kashi, A.; Nemat-Gorgani, M.; Wilhelmy, J.; Davis, R. W. (May 21, 2019). "A nanoelectronics-blood-based diagnostic biomarker for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)". Proceedings of the National Academy of Sciences. 116 (21): 10250–10257. doi:10.1073/pnas.1901274116. ISSN 0027-8424. 
  20. Davis Family (May 21, 2016). "Short Story of a Family's Struggle with ME/CFS". YouTube. 
  21. Davis, Ronald; Tannenbaum, Linda (Dec 13, 2016). "Getting Answers to ME/CFS Faster through Collaboration and Openness". YouTube. Open Medicine Foundation - OMF. 
  22. Davis, Ronald (Feb 3, 2017). "Scientist Ron Davis Tells How We Are "Fast-Tracking" ME/CFS Research". YouTube. Open Medicine Foundation - OMF. 
  23. Davis, Ronald (Mar 7, 2017). "Q&A on ME/CFS Research with Dr. Ron Davis". YouTube. Open Medicine Foundation - OMF. 
  24. Davis, Ronald (Jun 20, 2017). "Ron Davis is optimistic at the 2017 Invest in ME Research Conference". YouTube. Open Medicine Foundation - OMF. 
  25. http://www.investinme.eu/iimec12.shtml
  26. Davis, Ronald (Sep 28, 2017). "Ronald Davis, PhD, Speaking on ME/CFS Research Approach". YouTube. Open Medicine Foundation - OMF. 
  27. "ME/CFS Canadian Collaborative Team Conference program" (PDF). Retrieved Mar 6, 2019. 
  28. Davis, Ronald (Sep 17, 2018). "Dr. Ron Davis Presents ME/CFS Research at the 2018 IIMEC Conference". YouTube. Open Medicine Foundation - OMF. 
  29. Davis, Ronald (Jul 12, 2016). "Happy 75th Birthday to Scientist Ronald W. Davis, PhD". YouTube. Open Medicine Foundation - OMF. 
  30. Gu, Katie (Jan 4, 2016). "Tackling Chronic Fatigue Syndrome". The Stanford Daily. Retrieved Sep 17, 2018. 
  31. White, Tracie. "The puzzle solver". Stanford Medicine. Retrieved Sep 17, 2018. 

Myalgic encephalomyelitis or chronic fatigue syndrome

Myalgic encephalomyelitis or M.E. has different diagnostic criteria to chronic fatigue syndrome; neurological symptoms are required but fatigue is an optional symptom.<ref name="ICP2011primer">{{Citation


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From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history