Ronald Davis

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Ronald Wayne Davis, PhD., is a Professor of Biochemistry & Genetics and the Director of the Stanford Genome Technology Center at Stanford University. In 1983, he was bestowed the honor of being elected a member of the National Academy of Sciences.[1]

His son, Whitney Dafoe, is severely ill with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Professor Davis leads the End ME/CFS Project with the Open Medicine Foundation whose first project was the ME/CFS Severely Ill, Big Data Study.[2]

Committees and boards[edit | edit source]

Open Medicine Foundation[edit | edit source]

Director of the Scientific Advisory Board at Open Medicine Foundation, which is committed to research for ME/CFS and related chronic complex diseases.[3]

Institute of Medicine report[edit | edit source]

Dr. Davis was one of the experts on the "Committee on the Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome" that was convened as per US government request for the 2015 Institute of Medicine.[4] The Institute of Medicine has since changed its name to the National Academy of Medicine.[5]

ME/CFS Common Data Element (CDE) Project[edit | edit source]

Member of the Biomarkers Working Group of the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Common Data Element (CDE) Project sponsored by the National Institute of Neurological Disorders and Stroke and the Centers for Disease Control and Prevention.[6]

Advocacy[edit | edit source]

Open Letters[edit | edit source]

Millions Missing protest[edit | edit source]

Dr. Ron Davis and his wife, Dr. Janet Dafoe, protested with #MillionsMissing at the San Francisco satellite protest on May 25, 2016.[11] Dr. Davis gave a speech about the challenges ME patients face, and his hopes for the future of ME research.[12]

ME/CFS research[edit | edit source]

  • June 2018, Dr. Davis and the Stanford Genome Center received a grant award for the research study 'Molecular and Single-cell Immunology of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome' "to investigate the immunological basis of ME/CFS using cutting-edge technologies to understand the role of infection and autoimmunity in the behavior of single immune cells from patients – offering precise insights into how this complex illness originates and persists that may lead to new strategies for treatment."[15] This is a five-year study that will receive $745,000 a year.[16]
  • Nov 2018, Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome[17]
  • Feb 2019, Red blood cell deformability is diminished in patients with Chronic Fatigue Syndrome[18] - (Full text)
  • Apr 2019,  A nanoelectronics-blood-based diagnostic biomarker for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)[19] - (Full text)

Talks and interviews[edit | edit source]

2016

2017

YouTube video
Transcript
Mendelspod podcast
Transcript

2018

2019

Book[edit | edit source]

Online presence[edit | edit source]

See also[edit | edit source]

Learn more[edit | edit source]

References[edit | edit source]

  1. http://www.nasonline.org, National Academy of Sciences -. "Ronald Davis". www.nasonline.org. Retrieved August 16, 2018.
  2. "End ME/CFS Project | Open Medicine Foundation". Open Medicine Foundation. Retrieved August 16, 2018.
  3. "Scientific Advisory Board | Open Medicine Foundation". Open Medicine Foundation. Retrieved August 16, 2018.
  4. Syndrome, Committee on the Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue; Populations, Board on the Health of Select; Medicine, Institute of (February 10, 2015). Biographical Sketches of Committee Members, Consultants, and Staff. National Academies Press (US).
  5. "Home - National Academy of Medicine". National Academy of Medicine. Retrieved August 16, 2018.
  6. "Complete Myalgic Encephalomyelitis/Chronic Fatigue Syndrome CDE Roster". NIH. Retrieved October 11, 2019.
  7. "An open letter to Dr. Richard Horton and The Lancet". Virology blog. Retrieved August 18, 2018.
  8. "An open letter to The Lancet, again". Virology blog. Retrieved August 18, 2018.
  9. "Trial By Error: An Open Letter to The Lancet, Two Years On". Virology blog. Retrieved August 18, 2018.
  10. "An open letter to Psychological Medicine about "recovery" and the PACE trial". Virology blog. Retrieved August 18, 2018.
  11. "#MillionsMissing - #MillionsMissing". millionsmissing.meaction.net. Retrieved August 16, 2018.
  12. "Speeches from the Front Lines of #MillionsMissing: Ron Davis | #MEAction". MEAction. Retrieved August 16, 2018.
  13. "End ME/CFS Severe Patient Study Turns to the Mitochondria". Health Rising's Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Forums. Retrieved September 12, 2019.
  14. An Update on ME/CFS Research with Dr. Ronald W. Davis, retrieved September 12, 2019
  15. Molecular and Single-cell Immunology of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - NIH RePORT Project Number 1R01AI139550-01
  16. HealthRising: Ron Davis (Finally) Gets His Big Grant! by Cort Johnson via Open Medicine Foundation
  17. Saha, Amit K; Schmidt, Brendan R; Wilhelmy, Julie; Nguyen, Vy; Do, Justin; Suja, Vineeth C; Nemat-Gorgani, Mohsen; Ramasubramanian, Anand K; Davis, Ronald W (November 2018). "Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome". Blood (132): 4874. doi:10.1182/blood-2018-99-117260.
  18. Saha, Amit K.; Schmidt, Brendan R.; Wilhelmy, Julie; Nguyen, Vy; Abugherir, Abed; Do, Justin K.; Nemat-Gorgani, Mohsen; Davis, Ronald W.; Ramasubramanian, Anand K. (February 23, 2019). "Red blood cell deformability is diminished in patients with Chronic Fatigue Syndrome". Clinical Hemorheology and Microcirculation. 71 (1): 113–116. doi:10.3233/CH-180469.
  19. Esfandyarpour, R.; Kashi, A.; Nemat-Gorgani, M.; Wilhelmy, J.; Davis, R. W. (May 21, 2019). "A nanoelectronics-blood-based diagnostic biomarker for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)". Proceedings of the National Academy of Sciences. 116 (21): 10250–10257. doi:10.1073/pnas.1901274116. ISSN 0027-8424.
  20. Davis Family (May 21, 2016). "Short Story of a Family's Struggle with ME/CFS". YouTube.
  21. Davis, Ronald; Tannenbaum, Linda (December 13, 2016). "Getting Answers to ME/CFS Faster through Collaboration and Openness". YouTube. Open Medicine Foundation - OMF.
  22. Davis, Ronald (February 3, 2017). "Scientist Ron Davis Tells How We Are "Fast-Tracking" ME/CFS Research". YouTube. Open Medicine Foundation - OMF.
  23. Davis, Ronald (March 7, 2017). "Q&A on ME/CFS Research with Dr. Ron Davis". YouTube. Open Medicine Foundation - OMF.
  24. Davis, Ronald (June 20, 2017). "Ron Davis is optimistic at the 2017 Invest in ME Research Conference". YouTube. Open Medicine Foundation - OMF.
  25. "Invest in ME Research - International ME Conferences and Colloquiums Home Page". investinme.org. Retrieved September 12, 2019.
  26. Davis, Ronald (September 28, 2017). "Ronald Davis, PhD, Speaking on ME/CFS Research Approach". YouTube. Open Medicine Foundation - OMF.
  27. "ME/CFS Canadian Collaborative Team Conference program" (PDF). Retrieved March 6, 2019.
  28. "Invest in ME Research - IIMEC13 International ME Conference 2018". Invest in ME Research. Retrieved February 26, 2020.
  29. Davis, Ronald (September 17, 2018). "Dr. Ron Davis Presents ME/CFS Research at the 2018 IIMEC Conference". YouTube. Open Medicine Foundation - OMF.
  30. White, Tracie; Davis, Ronald W. (January 5, 2021). The Puzzle Solver: A Scientist's Desperate Quest to Cure the Illness that Stole His Son (1st ed.). New York: Hachette Books. ISBN 9781549177545.
  31. Davis, Ronald (July 12, 2016). "Happy 75th Birthday to Scientist Ronald W. Davis, PhD". YouTube. Open Medicine Foundation - OMF.
  32. Gu, Katie (January 4, 2016). "Tackling Chronic Fatigue Syndrome". The Stanford Daily. Retrieved September 17, 2018.
  33. White, Tracie. "The puzzle solver". Stanford Medicine. Retrieved September 17, 2018.

genome an organism's complete set of DNA, including all of its genes

mitochondria Important parts of the biological cell, with each mitochondrion encased within a mitochondrial membrane. Mitochondria are best known for their role in energy production, earning them the nickname "the powerhouse of the cell". Mitochondria also participate in the detection of threats and the response to these threats. One of the responses to threats orchestrated by mitochondria is apoptosis, a cell suicide program used by cells when the threat can not be eliminated.

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

chronic fatigue (CF) - Persistent and abnormal fatigue is a symptom, not an illness. It may be caused by depression, multiple sclerosis, fibromyalgia, chronic fatigue syndrome or many other illnesses. The term "chronic fatigue" should never be confused with the disease chronic fatigue syndrome.

National Institutes of Health (NIH) - A set of biomedical research institutes operated by the U.S. government, under the auspices of the Department of Health and Human Services.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.