ME/CFS

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What is ME/CFS By Open Medicine Foundation - OMF. Linda Tannenbaum, Founder & CEO/President, talks about ME/CFS and how OMF is leading research and delivering hope (2018)

The acronym ME/CFS is may be used to describe myalgic encephalomyelitis. Different names may be used to indicate which of several sets of diagnostic criteria are being described. The disease defined by the Canadian Consensus Criteria (CCC) or Institute of Medicine Criteria is often described as ME/CFS, whereas the ICC criteria (ICC) is often described as myalgic encephalomyelitis, and the Fukuda criteria connotates 'chronic fatigue syndrome'. Some people living with ME prefer that the 'CFS' be left off of the disease name.

United States (US) government bodies now use the acronym ME/CFS,[1] as does the US Clinician's Coalition.[2] The US Centers for Disease Control and Prevention's (CDC) website page is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).[3] The acronym CFS/ME is used by the National Health Service (NHS) in the United Kingdom.[4] The CDC recognizes ME/CFS as a "disabling and complex disease"[5]

"The most common overlapping condition with ME/CFS is fibromyalgia."[6][7] While some have posited ME/CFS and fibromyalgia are variants of the same illness, Benjamin Natelson, MD summoned considerable amounts of data that suggest the two illnesses differ with different pathophysiologic processes leading to different treatments.[8]

See also

Case definitions for ME/CFS

  • Canadian Consensus Criteria (CCC)[9] A diagnosis of moderate and severe forms of ME/CFS are accurately made using this criterion. Adults can be diagnosed at 6 months while pediatric cases are diagnosed at three months.

Case definition for ME

Learn more

Persons living with ME/CFS

References

  1. "Biomarker Research Advances in 'Chronic Fatigue Syndrome". Medscape.com. November 8, 2016. Retrieved February 7, 2019. The condition, now called myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) by US government bodies,
  2. "U.S. ME/CFS Clinician Coalition". U.S. ME/CFS Clinicians Coalition. Retrieved January 11, 2021.
  3. "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) | Myalgic Encephalomyelitis/Chronic Fatigue Syndrome". Centers for Disease Control and Prevention. July 3, 2018. Retrieved September 7, 2018.
  4. "Chronic fatigue syndrome (CFS/ME)". National Health Service. Retrieved August 13, 2018.
  5. "What is ME/CFS? | Myalgic Encephalomyelitis/Chronic Fatigue Syndrome". Centers for Disease Control and Prevention. January 18, 2019. Retrieved April 12, 2019.
  6. "Overlapping Conditions - American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society". ammes.org. Retrieved August 12, 2018.
  7. Jason, Leonard; Taylor, R.R.; Kennedy, C.L.; Song, S; Johnson, D; Torres, S.R. (January 1, 2001). "Chronic fatigue syndrome: Comorbidity with fibromyalgia and psychiatric illness". Medicine and Psychiatry. 4: 29–34.
  8. Natelson, Benjamin H. (February 19, 2019). "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Fibromyalgia: Definitions, Similarities, and Differences". Clinical Therapeutics. 41 (4): 612. doi:10.1016/j.clinthera.2018.12.016. ISSN 0149-2918. PMID 30795933.
  9. Carruthers, Bruce M.; Jain, Anil Kumar; De Meirleir, Kenny L.; Peterson, Daniel L.; Klimas, Nancy G.; Lerner, A. Martin; Bested, Alison C.; Flor-Henry, Pierre; Joshi, Pradip; Powles, AC Peter; Sherkey, Jeffrey A.; van de Sande, Marjorie I. (2003), "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols" (PDF), Journal of Chronic Fatigue Syndrome, 11 (2): 7–115, doi:10.1300/J092v11n01_02
  10. Clayton, Ellen Wright; Alegria, Margarita; Bateman, Lucinda; Chu, Lily; Cleeland, Charles; Davis, Ronald; Diamond, Betty; Ganiats, Theodore; Keller, Betsy; Klimas, Nancy; Lerner, A Martin; Mulrow, Cynthia; Natelson, Benjamin; Rowe, Peter; Shelanski, Michael (2015). "Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - Redefining an Illness" (PDF). National Academies.
  11. Carruthers, Bruce M.; van de Sande, Marjorie I.; De Meirleir, Kenny L.; Klimas, Nancy G.; Broderick, Gordon; Mitchell, Terry; Staines, Donald; Powles, A.C. Peter; Speight, Nigel; Vallings, Rosamund; Bateman, Lucinda; Baumgarten-Austrheim, Barbara; Bell, David; Carlo-Stella, Nicoletta; Chia, John; Darragh, Austin; Jo, Daehyun; Lewis, Donald; Light, Alan; Marshall-Gradisnik, Sonya; Mena, Ismael; Mikovits, Judy; Miwa, Kunihisa; Murovska, Modra; Pall, Martin; Stevens, Staci (August 22, 2011). "Myalgic encephalomyelitis: International Consensus Criteria". Journal of Internal Medicine. 270 (4): 327–338. doi:10.1111/j.1365-2796.2011.02428.x. ISSN 0954-6820. PMC 3427890. PMID 21777306.