Carol Head

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Carol Head is the former President of Solve ME/CFS Initiative (Solve M.E.) and current member of the Solve M.E. Board of Directors. She fell ill with ME/CFS upon finishing Stanford University Graduate School of Business[1] in the 1980s, after coming down with a flu which she did not recover from. Although she has ME/CFS, she did improve greatly; she believes she dodged a bullet and is 95% recovered.[2][3] However, because of a relapse of ME/CFS, she was unable to do more than sleep and work; in March of 2019 she announced she was stepping down as CEO of Solve M.E. to serve on its board.[4][5]

Awards[edit | edit source]

Webinars[edit | edit source]

Carol steers monthly webinars[7] which are recorded and posted to YouTube.[8]

Institute of Medicine report briefing[edit | edit source]

March 25th, Solve ME/CFS Initiative hosted a briefing in Washington, D.C. on the Institute of Medicine report on ME/CFS. Carol Head was a speaker. Video - Carol Head at the SMCI IOM briefing[9]

Presentations[edit | edit source]

Talk and interviews[edit | edit source]

Other coverage[edit | edit source]

Online presence[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

  1. "Carol Head". Linked In. 
  2. Head, Carol (Oct 23, 2014). "Carol Head Shares Her Journey with ME/CFS". YouTube. SolveCFS. 
  3. Head, Carol (Nov 10, 2015). "Carol Head Speaks at Stanford Business School Reunion". YouTube. Solve CFS. 
  4. Johnson, Cort (Jul 27, 2019). "Straight Talk From Carol Head As She Steps Down From Solve ME". Health Rising. Retrieved Oct 13, 2019. 
  5. Head, Carol (Mar 15, 2019). "An Update From Carol Head at SMCI". YouTube. 
  6. "14 Health Heroes Who Are Changing Healthcare As We Know It". Jan 2017. Retrieved Aug 16, 2018. 
  7. "SMCI 2015 Webinar Series - Solve ME/CFS Initiative". Solve ME/CFS Initiative. Retrieved Aug 16, 2018. 
  8. "SolveCFS". YouTube. Retrieved Aug 16, 2018. 
  9. Head, Carol (Apr 16, 2015). "Carol Head at the SMCI IOM briefing". YouTube. SolveCFS. 
  10. Head, Carol (Sep 4, 2015). "SMCI President Carol Head speaks about the need for ME/CFS funding". YouTube. SolveCFS. 
  11. Head, Carol (Sep 4, 2015). "SMCI President Carol Head tells the story of an ME patient who committed suicide". YouTube. SolveCFS. 
  12. Markey, Ed; Brea, Jen; Nahle, Zaher; Head, Carol (May 26, 2017). "Congressional Briefing on ME/CFS". YouTube. SolveCFS. 
  13. King, Llewellyn (Oct 14, 2014). "Episode 69 Part 1: Carol Head interviewed by Llewellyn King". YouTube. ME/CFS Alert. 
  14. King, Llewellyn (Nov 3, 2014). "Episode 69 Part 2: Carol Head interviewed by Llewellyn King". YouTube. ME/CFS Alert. 
  15. "Passionate Pragmatist: Carol Head and the Fight for ME/CFS Equality: The SMCI Pt. I - Health Rising". Health Rising. May 2, 2017. Retrieved Aug 16, 2018. 
  16. "The Fight that Follows Pain and Prejudice - Ms. Magazine Blog". Ms. Magazine Blog. Feb 14, 2018. Retrieved Aug 16, 2018. 

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

ME/CFS - An acronym that combines myalgic encephalomyelitis with chronic fatigue syndrome. Sometimes they are combined because people have trouble distinguishing one from the other. Sometimes they are combined because people see them as synonyms of each other.

Institute of Medicine report (IOM report) - A report that was commissioned by the U.S. government and was published by the Institute of Medicine on February 10, 2015. The report was titled "Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness" and proposed the term Systemic Exertion Intolerance Disease (SEID). Among its key findings were that "This disease is characterized by profound fatigue, cognitive dysfunction, sleep abnormalities, autonomic manifestations, pain, and other symptoms that are made worse by exertion of any sort." The report further stated "Between 836,000 and 2.5 million Americans suffer from myalgic encephalomyelitis/chronic fatigue syndrome."

chronic fatigue syndrome (CFS) - A fatigue-based illness. The term CFS was invented invented by the U.S. Centers for Disease Control as an replacement for myalgic encephalomyelitis (ME). Some view CFS as a neurological disease, others use the term for any unexplained long-term fatigue. Sometimes used as a the term as a synonym of myalgic encephalomyelitis, despite the different diagnostic criteria.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.