Staci Stevens

Source:www.workwellfoundation.org

Staci R. Stevens, MA in exercise physiology. Founder and Director of Workwell Foundation, Ripon, California, US. She serves as Co-Vice President of the Board of Directors and Chair of the Membership Committee of the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis. She served a term on the Chronic Fatigue Syndrome Advisory Committee from 2003 - 2006. Stevens is one of the authors of the 2011 case definition, International Consensus Criteria.

Stevens had (in her own words) a very well-controlled case of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) for greater than 20 years, which motivates her high commitment to advancing understanding of the illness and helping other patients.

Boards and committees

• 2003-2006, member of the Chronic Fatigue Syndrome Advisory Committee for the Department of Health and Human Services

• 2011, member of the writing committee for the case definition, International Consensus Criteria

• 2014-2018, Co-Vice President of the Board of Directors and Chair of the Membership Committee of the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis
• 2018, member of the Quality of Life/Functional Status (CPET)/Activity Working Group of the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Common Data Element (CDE) Project sponsored by the National Institute of Neurological Disorders and Stroke and the Centers for Disease Control and Prevention

Talks and interviews

• 2009, Staci Steven speaking to CFSAC meeting
• 2010, Slide presentation to CFSAC
• 2011, "Effective Management of Activity Intolerance" - Staci R. Stevens, MA at the 10th International IACFSME Conference, Patient Agenda
• 2012, MECFS Alert Episode 32: Staci Stevens, Director of the Pacific Fatigue Lab
• 2012, Top 10 Things You Should Know About Post-Exertional Relapse
• 2015, Video: Post-exertional malaise: How to do more with less, Staci Stevens, Vancouver BC Canada, May 2015

Research studies

• 2001, Assessment of Functional Impairment by Cardiopulmonary Exercise Testing in Patients with Chronic Fatigue Syndrome
• 2001, Chronic Fatigue Syndrome, Ampligen, and Quality of Life: A Phenomenological Perspective (Abstract)
• 2005, Exercise capacity and immune function in male and female patients with Chronic Fatigue Syndrome (CFS)
• 2007, Legal and Scientific Considerations of the Exercise Stress Test
• 2007, Diminished Cardiopulmonary Capacity During Post-Exertional Malaise
• 2010, Post-exertional malaise in women with chronic fatigue syndrome
• 2010, Conceptual model for physical therapist management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis
• 2011, Diagnostic accuracy of symptoms characterising chronic fatigue syndrome
• 2012, A double-blind, placebo-controlled, randomized, clinical trial of the TLR-3 agonist rintatolimod in severe cases of chronic fatigue syndrome (Full Text)
• 2013, Discriminative validity of metabolic and workload measurements to identify individuals with Chronic Fatigue Syndrome (Full Text)
• 2018, Editorial - Checking our blind spots: current status of research evidence summaries in ME/CFS. (Introduction)
• 2018, Cardiopulmonary Exercise Test Methodology for Assessing Exertion Intolerance in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (Abstract)
• 2019, Chronotropic Intolerance: An Overlooked Determinant of Symptoms and Activity Limitation in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome? (Full text)
• 2019, Whole blood human transcriptome and virome analysis of ME/CFS patients experiencing post-exertional malaise following cardiopulmonary exercise testing (Full text)

See also

• Christopher Snell
• Exercise
• Mark VanNess
• Two-day cardiopulmonary exercise test
• Workwell Foundation

physiological Concerning living organisms, such as cells or the human body.  Physio logical (as in physio) is not to be confused with psych ological (emotional stress).

See myalgic encephalomyelitis.

See chronic fatigue syndrome.

two-day cardiopulmonary exercise test (CPET) - A diagnostic test which involves testing an ME/CFS patient exercising on an exercise machine, while monitoring their respiration, especially oxygen consumption. This test is repeated the following day in order to confirm the patient's inability to replicate the first-day performance. This test is thought to be the most objective way to detect post-exertional malaise.

See two-day cardiopulmonary exercise test.

stress Stress can by either physical or psychological, or both. Stress is either 1) a state of emotional or psychological strain or 2) the physical stress (pressure or tension) that a physical object such the human body is placed under, e.g., a stress test is a medical test that monitors the cardiovascular system during strenuous exercise.

double blinded trial A clinical trial is double blinded if neither the participants nor the researchers know which treatment group they are allocated to until after the results are interpreted. This reduces bias. (Learn more: www.nottingham.ac.uk)

A chemical that binds to the receptor and stimulates it's function, e.g., morphine is an opioid agonist that binds to the opioid receptor, reducing pain. The opposite of an antagonist.

agonist A chemical that binds to the receptor and stimulates it's function, e.g., morphine is an opioid agonist that binds to the opioid receptor, reducing pain. The opposite of an antagonist.

two-day cardiopulmonary exercise test (CPET) - A diagnostic test which involves testing an ME/CFS patient exercising on an exercise machine, while monitoring their respiration, especially oxygen consumption. This test is repeated the following day in order to confirm the patient's inability to replicate the first-day performance. This test is thought to be the most objective way to detect post-exertional malaise.

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

The human virome is the collection of all viruses that are found in or on humans.

virome The human virome is the collection of all viruses that are found in or on humans.

post-exertional malaise (PEM) - A notable exacerbation of symptoms brought on by small physical or cognitive exertions. PEM may be referred to as a "crash" or "collapse" and can last for days or weeks. Symptoms can include cognitive impairments, muscle pain, trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, and others.

See National Institutes of Health.

National Institutes of Health (NIH) - A set of biomedical research institutes operated by the U.S. government, under the auspices of the Department of Health and Human Services.