National Health Service

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The National Health Service (NHS) is the UK's universal health care provider, and is free at the point of need (exception for minor charges like some prescriptions, glasses, or dental care).[1] The NHS was created in 1948, with the aim of providing good health care to all, regardless of wealth. The NHS provides healthcare to over 64 million, and the NHS website is the UK's biggest health website. [1][2]

The NHS is publicly funded; mainly through UK taxes and National Insurance (social security) deductions from employers' and individuals' personal income.

NHS diagnostic criteria for CFS/ME[edit | edit source]

The Fukuda criteria for Chronic Fatigue Syndrome are used to diagnosis CFS/ME in the UK.


Extreme physical and mental tiredness (fatigue)

  • that doesn't go away with rest or sleep
  • a different type of tiredness from you experienced before
  • fatigue may feel overwhelming

Other symptoms may include:

  • sleep problems, such as insomnia
  • muscle or joint pain
  • headaches
  • a sore throat or sore glands that aren't swollen
  • problems thinking, remembering or concentrating
  • flu-like symptoms
  • feeling dizzy or sick
  • fast or irregular heartbeats (heart palpitations)


Symptoms last at least 4 months in adults (3 months in children).
Exercising usually makes the symptoms of worse.
Sometimes the effect is delayed and you'll feel very tired a few hours after you've exercised, or even the next day.


Source: NHS (2018)

This has been criticized as being too broad. [3]

[4]

NHS treatment of ME/CFS[edit | edit source]

The NHS regards Chronic Fatigue Syndrome and Myalgic Encephalomyelitis as the same illness, and refers to both as Chronic Fatigue Syndrome. Specialist services are commissioned in some areas; in other areas GPs provide treatment instead. [3]

NICE Guidelines[edit | edit source]

British patients receive free care from the NHS, but treatments generally to follow the NICE guidelines from 2007.[3] A recent review of these heavily criticized NICE guidelines resulted in the decision to update them.[3] Currently, the NICE guidelines recommend that Graded exercise therapy (GET) and Cognitive behavioral therapy (CBT) should be offered, based on evidence the PACE trial. The guidelines also cover pacing, lifestyle changes and medication options. There are no medications licensed for CFS/ME, but medications are available for some symptoms.

See an example "Chronic Fatigue Service" described here.

Learn more[edit | edit source]

Chronic Fatigue Syndrome (CFS/ME) - NHS

NHS Choices[edit | edit source]

NHS Choices is a consumer facing web site published by the National Health Service. It provides summarised information for both lay people and clinicians about health conditions, recent research as well as information such as how to find a local General Practitioner (GP).

The NHS Choices coverage of ME/CFS research has been criticised for publishing uncritical coverage of studies related to the PACE trial.[5]

References[edit | edit source]

Myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

ME/CFS - An acronym that combines myalgic encephalomyelitis with chronic fatigue syndrome. Sometimes they are combined because people have trouble distinguishing one from the other. Sometimes they are combined because people see them as synonyms of each other.

Myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

NICE guidelines - Clinical guidelines used in the UK.

NICE guidelines - Clinical guidelines used in the UK.

Graded exercise therapy (GET) - A gradual increase in exercise or activity, according to a pre-defined plan. Focuses on overcoming the patient's alleged unhelpful illness beliefs that exertion can exacerbate symptoms, rather than on reversing physical deconditioning. Considered controversial, and possibly harmful, in the treatment or management of ME. One of the treatment arms of the controversial PACE trial.

Cognitive behavioral therapy (CBT) - A type of psychotherapy geared toward modifying alleged unhealthy thinking, behaviors or illness beliefs. One of the treatment arms used in the controversial PACE trial.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.