Emerge Australia

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Jump to: navigation, search

Emerge Australia efforts include peer support groups, Health Promotion activities, awareness and fundraising activities, advocacy, seminars and a dedicated Member information service. They produce a quarterly Emerge Journal.

"We are determined to strengthen the national response to ME/CFS and welcome and encourage all State and Territory organisations, communities and individuals to join with us as we move forward with hope, vigour and a commitment to lead."[1]

The current CEO of Emerge Australia is Dr Heidi Nicholl, who has a PhD and background in medical ethics.

Aims[edit | edit source]

From Emerge Australian website:

Mission - To support, provide information and advocacy for people associated with Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS).

Vision - Universal awareness and acknowledgement of ME/CFS as a medical condition.

Values - To serve the best interests of people affected by ME/CFS with integrity, compassion and empathy.

Funding[edit | edit source]

In July 2018, Emerge Australia received $370,000 in Federal Department of Health funding to support its work.[2]

History[edit | edit source]

The 'ME Society' was formed in 1980 in Victoria, and included patients from Tasmania, South Australia and Western Australia. The New South Wales and ACT societies formed independently, at the same time. The society's quarterly information brochure, 'Emerge', began in 1980.[3] In 2014, the society was renamed from 'ME/CFS Australia (Victoria)' to 'Emerge Australia'.

Chief Executive Officer 2015-2016 Amanda Kelly

Chief Executive Officer 2016 - Leisl Jackson (acting)

Chief Executive Officer 2016-2017 - Elizabeth Logan

Chief Executive Officer 2017-2018 - John Jeffries

Chief Executive Officer 2019 - Heidi Nicholl

Advocacy actions[edit | edit source]

Talks and interviews[edit | edit source]

  • 2 Sep 2019, Living with Chronic Fatigue Syndrome: Dr Heidi Nicholl, the Chief Executive at Emerge Australia along with Researcher Professor Paul Fisher interviewed by Philip Clark on Nightlife

Online presence[edit | edit source]

See also[edit | edit source]

Learn more[edit | edit source]

References[edit | edit source]

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

chronic fatigue syndrome (CFS) - A controversial term, invented by the U.S. Centers for Disease Control, that generally refers to a collection of symptoms as “fatigue”. There have been multiple attempts to come up with a set of diagnostic criteria to define this term, but few of those diagnostic criteria are currently in use. Previous attempts to define this term include the Fukuda criteria and the Oxford criteria. Some view the term as a useful diagnostic category for people with long-term fatigue of unexplained origin. Others view the term as a derogatory term borne out of animus towards patients. Some view the term as a synonym of myalgic encephalomyelitis, while others view myalgic encephalomyelitis as a distinct disease.

ME/CFS - An acronym that combines myalgic encephalomyelitis with chronic fatigue syndrome. Sometimes they are combined because people have trouble distinguishing one from the other. Sometimes they are combined because people see them as synonyms of each other.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.