Scott Ludlam was a Senator of Australian Greens political party.
Senate hearings[edit | edit source]
At the Australian Senate Community Affairs Legislation Committee hearings, Senator Ludlam's direction asked questions about the little funds and poor medical health support for Australia's myalgic encephalomyelitis patients and GPs trying to treat them. He mentioned the good job Emerge Australia does on little funds. A 9 minute video of theone of the hearings was uploaded on February 10th, 2016 (FB time stamp 5:51PM) .
In 2015 Ludlam told the hearing “I am struggling to think of a cohort of people in our community that large for whom there is so little”. 'Australian senator questions government on lack of action on ME'.
In 2016 Ludlam asked the NHMRC “outside NHMRC grants, is there any Commonwealth support for people with this condition that you are aware of?" Australian Health Department answers questions on ME.
Later in 2016, he asked the NHRMC "about two-thirds of the funding appears to be going to into research that, however worthy, actually has nothing at all to do with ME/CFS.Can you correct either the record or point out how this research is directly relevant to the questions that I asked?” Australian Health Department pins its hopes on overseas research instead of funding our own.
Read Sasha Nimmo's article for more http://www.meaction.net/2016/02/12/australian-health-department-pins-its-hopes-on-nih-research/
Interviews and opinion pieces[edit | edit source]
On May 12 2018, Scott Ludlam wrote To the #MillionsMissingwith ME/CFS, something remarkable is happening in The Guardian Australia.
The Wire Radio interview included Senator Ludlam at 2:56 speaking on research which was "counterproductive and actually dangerous" in reference to exercise (GET) and Cognitive behavioral therapy. At 4:54 he speaks of the need for the Commonwealth to swing behind Griffiths University in Queensland.
A Junkee.com piece written by Naomi Chainey used his quote for the title '"Getting By With “Bugger All”: The Invisible Suffering Of Australians With Chronic Fatigue Syndrome"'. Senator Ludlam posted the article on his FB page and as of February 28th, 9:13 AM EST there were 1.2K Likes and 425 shares as well as a long thread of discussion and much appreciation for his efforts.
Online presence[edit | edit source]
Learn more[edit | edit source]
See also[edit | edit source]
References[edit | edit source]
- The Senate Community Affairs Legislation Committee - Senator Scott Ludlam FB Page - Video Feb. 10, 2016 5:51PM
- Senator Ludlam speaks at 2:56 and 4:54 The Wire Radio
- "Getting By With “Bugger All”: The Invisible Suffering Of Australians With Chronic Fatigue Syndrome" Junkee.com - By: Naomi Chainey
- Scott Ludlam Face Book Page - "Getting By With “Bugger All”: The Invisible Suffering Of Australians With Chronic Fatigue Syndrome"
myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.
chronic fatigue syndrome (CFS) - A controversial term, invented by the U.S. Centers for Disease Control, that generally refers to a collection of symptoms as “fatigue”. There have been multiple attempts to come up with a set of diagnostic criteria to define this term, but few of those diagnostic criteria are currently in use. Previous attempts to define this term include the Fukuda criteria and the Oxford criteria. Some view the term as a useful diagnostic category for people with long-term fatigue of unexplained origin. Others view the term as a derogatory term borne out of animus towards patients. Some view the term as a synonym of myalgic encephalomyelitis, while others view myalgic encephalomyelitis as a distinct disease.