Australian ME/CFS Biobank
The Australian ME/CFS Biobank is a partnership between patient charity Emerge Australia, researchers at La Trobe University, the Australian Red Cross Blood Service, Solve ME/CFS Initiative and the UK ME/CFS biobank.
Funding[edit | edit source]
Funding of A$1 million was announced in August 2019, and an email news list was setup.
The Mason Foundation, an Australian ME/CFS charity is funding the biobank.
Partnership roles[edit | edit source]
News articles[edit | edit source]
- Anna spends 22 hours a day in bed. But experts hope they're close to a cure. - The Sydney Morning Herald
Learn more[edit | edit source]
- Australian ME/CFS Biobank Awarded to Research Team which includes Emerge Australia
- $1 Million Grant Awarded for Australian Biobank and Registry - Solve ME/CFS Initiative
- Chronic Fatigue Syndrome Research Funded - Mirage News
- The Mason Foundation
- Equity Trustees Press Release
See also[edit | edit source]
References[edit | edit source]
- Emerge Australia (Aug 13, 2019). "Australian ME/CFS biobank awarded to research team which includes Emerge Australia!". Emerge Australia. Retrieved Aug 16, 2019.
- "The Mason Foundation (managed by Equity Trustees) - NFMRINFMRI". Retrieved Aug 16, 2019.
- Cunningham, Melissa (Aug 13, 2019). "Anna spends 22 hours a day in bed. But experts hope they're close to a cure". The Sydney Morning Herald. Retrieved Aug 16, 2019.
- Mirage News (Aug 14, 2019). "Chronic Fatigue Syndrome research funded". Mirage News. Retrieved Aug 16, 2019.
- "Equity Trustees | Equity Trustees announces record project funding of $1m for chronic fatigue syndrome". www.eqt.com.au. Retrieved Aug 16, 2019.
Myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.