Chronic Fatigue: Missing Millions (Carte Blanche DSTV)
Synopsis[edit | edit source]
Producer, Anna-Maria van Niekerk, and presenter, Devi Sankaree Govender worked with Retha Viviers from The ME CFS Foundation South Africa (MECFSSA) to report on the disease, its research and patient impact. Ms. Sankaree Govender interviewed Nathtalie Williams who is a person with ME, featured the devastating plight of Whitney Dafoe from the documentary film Forgotten Plague, discussed ME/CFS research with father of Whitney, Ron Davis who is researching the disease, briefly reviewed PACE trial flaws with David Tuller, included testimony and footage of Millions Missing protests, and an interview with caregiver and researcher Linda Tannenbaum. There is a good overview of the Spoon theory, common symptoms of the disease and its core symptom Post-exertional malaise.
Viewing options[edit | edit source]
- Chronic Fatigue: Missing Millions - Nathalie Williams Facebook Page - FB Video (Login Not Required)
- Chronic Fatigue: Missing Millions - Carte Blanche DSTV Site (Site may have viewing limitations outside of South Africa.)
Learn more[edit | edit source]
- Alem Matthees is the "Australian ME patient" mentioned in report who requested and received PACE trial data via Freedom of Information Act after a Tribunal ordered its release.
- Metabolic features of chronic fatigue syndrome
- Open Medicine Foundation
See also[edit | edit source]
Myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.