List of Chronic Fatigue Syndrome Advisory Committee Members
Committee Members, past and present, and term served[edit | edit source]
- Rebecca Artman (patient advocate), Middleburg, Florida, Term: 1 Dec 2005 to 1 Dec 2008 & 3 Jan 2006 to 3 Jan 2010
- Lucinda Bateman, MD, PC, Salt Lake City, Utah, Term: 1 Dec 2005 to 1 Dec 2008, 3 Jan 2006 to 3 Jan 2010 & 13 Dec 2017 to 7 Sep 2018 
- Rebecca Patterson Collier, R.N., CCM, Fort Washington, Maryland, Term: 15 May 2013 to 10 May 2015
- Dane B. Cook, PhD, Madison, Wisconsin, Term: 10 May 2010 to 10 May 2014, 10 May 2014 to 10 May 2017
- Mary Dimmock, served as a member of the CFSAC Clinical Trial and Treatment Working Group in 2017-2018.
- Kristine Healy, MPH, PA-C, Chicago, Illinois, Term: 12/01/05 to 12/01/08 & 01/03/06 to 01/03/10
- Susan M. Levine, MD, New York, New York, Term: 05/10/10 to 05/10/14, 5/10/14 to 12/10/17, Served as Committee Chair
- Gailen D. Marshall Jr., MD, PhD, Jackson, Mississippi, Term: 05/10/10 to 05/10/14, Served as Committee Chair
- Jason Newfield, Esq., Garden City, New York, Term: 07/01/06 to 07/01/09 & 07/01/06 to 07/01/10
- James M. Oleske, MD, MPH, CIP, Newark, New Jersey, Term: 12/01/05 to 12/01/08 & 01/03/06 to 01/03/10, Served as Committee Chair
- Morris Papernik, MD, Glastonbury, Connecticut, Term: 12/01/05 to 12/01/08 & 01/03/06 to 01/03/10
- Jacqueline E. Rose, MD, Columbia, Maryland, Term: 06/13/12 to 07/13/12(Her term was to extend until 06/13/16 but she resigned after one month.)
- Christopher Snell, PhD, Stockton, California, Term: 04/01/07 to 04/01/11, Served as Committee Chair
Liaison representatives, past and present, and term served[edit | edit source]
- International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME), Terms: 5/22/2013 to 5/22/2015; 5/2015 - 5/2017
- Massachusetts CFIDS/ME & FM Association, Term: 5/2017- 6/2019
- MEAction, Term: 5/2017- 6/2019
- New Jersey ME/CFS Association, (formerly New Jersey Chronic Fatigue Syndrome Association,), Term: 5/22/2013 to 5/22/2015
- Simmaron Research Inc., Term: 5/2017- 6/2019
- Solve ME/CFS Initiative (formerly CFIDS Association of America), Terms: 5/22/2013 to 5/22/2015; 5/2015 - 5/2017
See also[edit | edit source]
References[edit | edit source]
- HHS.gov (2006), Nov 20 & 21, 2006 CFSAC Meeting (PDF) (Minutes)
- HHS.gov (2009), May 27 & 28, 2009 CFSAC Meeting (PDF) (Roster)
- HHS.gov (2003), Sep 29, 2003 CFSAC Meeting (Roster)
- HHS.gov, Chronic Fatigue Syndrome Advisory Committee Roster (PDF) (pdf)
- HHS.gov (2010), October 12 & 13, 2010 CFSAC Meeting (PDF) (Roster)
- HHS.gov (2016), CFSAC Spring 2016 Webinar Meeting Minutes – Day 1 (Roster)
- (ASH), Assistant Secretary for Health (Jul 26, 2007). "Roster". HHS.gov. Retrieved Aug 14, 2018.
Chronic fatigue syndrome advisory committee (CFSAC) - (sometimes pronounced SIF-SACK) A US government advisory council that met twice per year, covering current topics related to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Meetings usually lasted for two days and the results were presented to the Secretary of Health and Human Services (HHS). After 15 years, on September 5, 2018, CFSAC's charter was not renewed by the Department of HHS, effectively dissolving the committee without notice or warning.
Myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.