Eileen Holderman is an advocate for ME, GWI and other neuroimmune diseases and serves as consultant to ME Advocacy. Holderman was a voting member of the Chronic Fatigue Syndrome Advisory Committee (CFSAC) which advises the U.S. Department of Health and Human Services for the term 10 May 2010 to 10 May 2014. She is active in the New Jersey ME/CFS Association having served as a Trustee and as its Publicity/Advocacy Chair.
Talk and interviews[edit | edit source]
CFSAC testimony[edit | edit source]
- Jun 17, 2014, CFSAC Written/Public Comment
- Aug 2015, CFSAC Public Comment: Eileen Holderman
- May 18, 2016, Public comments to CFSAC meeting regarding NIH study.
- Jan 13, 2016, Public comments to CFSAC meeting regarding CDC website.
Letter to CDC[edit | edit source]
Online presence[edit | edit source]
Learn more[edit | edit source]
See also[edit | edit source]
- List of Chronic Fatigue Syndrome Advisory Committee Members
- Chronic Fatigue Syndrome Advisory Committee
References[edit | edit source]
Myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.
Chronic fatigue syndrome advisory committee (CFSAC) - (sometimes pronounced SIF-SACK) A US government advisory council that met twice per year, covering current topics related to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Meetings usually lasted for two days and the results were presented to the Secretary of Health and Human Services (HHS). After 15 years, on September 5, 2018, CFSAC's charter was not renewed by the Department of HHS, effectively dissolving the committee without notice or warning.