Leonard Jason

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Source: depaul.edu

Leonard A. Jason, PhD, is a professor of psychology at DePaul University in Chicago, Illinois, US and Director of the Center for Community Research at DePaul University[1] which includes the DePaul University Chronic Fatigue Syndrome Project. His ME/CFS research is mostly focused on the epidemiology and prevalence of the illness and on the impact of using various case definitions for diagnosis and research.[2]

Dr. Jason developed chronic fatigue syndrome after contracting infectious mononucleosis in 1989, necessitating a leave of absence from his university job for a year and a half. After recovering enough to return to work, he began studying chronic fatigue syndrome: “What I found was that the illness had a lousy name, chronic fatigue syndrome,” he recalled. “It had an even worse case definition. The tests used to assess people’s psychological conditions were inappropriate. The treatments being used were inappropriate. And the prevalence data was not very good. So I said to myself, ‘Boy, I’m gonna have business for the next 20 years.’”[3] He has become one of the most respected and prolific researchers of chronic fatigue syndrome.

In 2008, David Tuller profiled for The New York Times Dr. Jason's experience as both living with and researching myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).[4]

Education[edit | edit source]

  • 1971 - B.A., Psychology, Brandeis University, Waltham, Massachusetts[5]
  • 1975 - Ph.D., Clinical/Community Psychology, University of Rochester, Rochester, New York[5]

Awards[edit | edit source]

  • 1997, CSN ACTION Champion Award from the Chronic Fatigue Immune Dysfunction Syndrome Association of America (CAA)[5]
  • 2011, Rudy Perpich Senior Lectureship Award, presented to a distinguished CFS/FM scientist, physician or healthcare worker awarded by International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis[6]
  • 2011, Tom Fellows award for outstanding contributions to the Oxford House organization[5]
  • 2013, DePaul University College of Science and Health award for Excellence in Research[7]
  • 2015, American Psychological Association’s award for Distinguished Professional Contributions to Applied Research[8]

Committees and boards[edit | edit source]

Pediatric case definition[edit | edit source]

Chronic Fatigue Syndrome Advisory Committee[edit | edit source]

International American Association of CFS/ME[edit | edit source]

ME/CFS Common Data Elements (CDE) Project[edit | edit source]

Advocacy[edit | edit source]

Chilli ME Challenge[edit | edit source]

Open letter to The Lancet[edit | edit source]

Dr Jason signed all three open letters to the editor of The Lancet urging the editor to commission a fully independent review of the PACE trial, which the journal published in 2011.

Research studies related to ME/CFS[edit | edit source]

Dr. Leonard Jason is a prolific researcher of ME/CFS. Recent studies are listed below.

For complete list of studies: Research studies of Leonard Jason

  • 2019, The 'Cognitive Behavioural Model' of Chronic Fatigue Syndrome: Critique of a Flawed Model[18] - (Abstract)
  • 2019, Myalgic encephalomyelitis and chronic fatigue syndrome case definitions: effects of requiring a substantial reduction in functioning[19] - (Abstract)
  • 2019, Associations between autonomic and orthostatic self-report and physician ratings of orthostatic intolerance in youth[20] - (Abstract)
  • 2019, The development of a short form of the DePaul Symptom Questionnaire[21](Abstract)
  • 2019, Assessment of Post-Exertional Malaise (PEM) in Patients with Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS): A patient-driven survey[22] - (Full text)
  • 2019, Dismissing chronic illness: A qualitative analysis of negative health care experiences[23] - (Abstract)
  • 2019, The DePaul Symptom Questionnaire-2: a validation study[24] - (Abstract)
  • 2019, Differentiating post-polio syndrome from myalgic encephalomyelitis and chronic fatigue syndrome[25] - (Abstract)
  • 2020, How psychiatric referrals influence stigmatization in patients with myalgic encephalomyelitis and chronic fatigue syndrome: An examination of American and British models[26] - (Abstract)
  • 2020, Risk factors for suicide in chronic fatigue syndrome[27] - (Abstract)
  • 2020, Post-viral fatigue and COVID-19: lessons from past epidemics[28] - (Full text)

Talks and interviews[edit | edit source]

Invest in ME International ME Conference[edit | edit source]

ME/CFS Alert[edit | edit source]

Web seminars Science for Patients / Wetenschap voor patienten (The Netherlands, english spoken, dutch subtitles)[edit | edit source]

Books[edit | edit source]

Articles and presentations[edit | edit source]

Online presence[edit | edit source]

See also[edit | edit source]

Learn more[edit | edit source]

References[edit | edit source]

  1. "Education/Academic Appointments – Leonard A. Jason". Retrieved Aug 28, 2019. 
  2. 2.02.1 "Trial By Error: A Q-and-A with Leonard Jason, on Case Definition". www.virology.ws. Retrieved Aug 28, 2019. 
  3. "Feeling fatigued: studying CFS at Northwestern". North by Northwestern. Retrieved Aug 21, 2018. 
  4. "Well". Retrieved Aug 21, 2018. 
  5. 5.05.15.25.3 "Leonard A. Jason's Home Page". condor.depaul.edu. Retrieved Aug 21, 2018. 
  6. "IACFS/ME Awardees". IACFS/ME. Retrieved Apr 23, 2020. 
  7. "Excellence in Research Award | Faculty Research | Research | College of Science and Health | DePaul University, Chicago". csh.depaul.edu. Retrieved Aug 21, 2018. 
  8. "Award for Distinguished Professional Contributions to Applied Research". American Psychological Association. Retrieved Aug 21, 2018. 
  9. Jason, Leonard A; Jordan, Karen; Miike, Teruhisa; Bell, David S; Lapp, Charles; Torres-Harding, Susan; Rowe, Kathy; Gurwitt, Alan; De Meirleir, Kenny; Van Hoof, Elke LS (2006), "A Pediatric Case Definition for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome", Journal of Chronic Fatigue Syndrome, 13 (2-3): 1-44, doi:10.1300/J092v13n02_01 
  10. http://nih.granicus.com/DocumentViewer.php?file=nih_e174f9bd-ae0f-4a45-9955-827cb608db2f.pdf
  11. "Fatigue: Biomedicine, Health & Behavior". www.tandfonline.com. Retrieved Nov 1, 2019. 
  12. "Complete Myalgic Encephalomyelitis/Chronic Fatigue Syndrome CDE Roster". NIH. Retrieved Oct 11, 2019. 
  13. "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome | NINDS Common Data Elements". www.commondataelements.ninds.nih.gov. Retrieved Sep 6, 2019. 
  14. "DePaul Chili Challenge". YouTube. 2015. Retrieved Aug 21, 2018. 
  15. Tuller, David (Nov 13, 2015). "An open letter to Dr. Richard Horton and The Lancet". 
  16. Tuller, David (Feb 10, 2016). "An open letter to The Lancet, again". 
  17. Tuller, David (Jun 19, 2018). "Trial By Error: An Open Letter to The Lancet, Two Years On". 
  18. Geraghty, Keith; Jason, Leonard; Sunnquist, Madison; Blease, Charlotte; Tuller, David; Adeniji, Charles (Feb 2019). "The 'Cognitive Behavioural Model' of Chronic Fatigue Syndrome: Critique of a Flawed Model. Journal of Health Psychology". Journal of Health Psychology. 
  19. Scartozzi, Samantha; Sunnquist, Madison; Jason, Leonard A. (Apr 2019). "Myalgic encephalomyelitis and chronic fatigue syndrome case definitions: effects of requiring a substantial reduction in functioning". Fatigue: Biomedicine, Health & Behavior: 1–10. doi:10.1080/21641846.2019.1600825. ISSN 2164-1846. 
  20. Schultz, Katlin R.; Katz, Ben Z.; Bockian, Neil R.; Jason, Leonard A. (Mar 2019). "Associations Between Autonomic and Orthostatic Self-report and Physician Ratings of Orthostatic Intolerance in Youth". Clinical Therapeutics. doi:10.1016/j.clinthera.2019.02.010. 
  21. Sunnquist, Madison; Lazarus, Savitri; Jason, Leonard A. (Jul 18, 2019). "The development of a short form of the DePaul Symptom Questionnaire". Rehabilitation Psychology. doi:10.1037/rep0000285. ISSN 1939-1544. PMID 31318234. 
  22. Holtzman, Carly; Bhatia, Shaun; Cotler, Joseph; Jason, Leonard (Mar 2, 2019). "Assessment of Post-Exertional Malaise (PEM) in Patients with Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS): A Patient-Driven Survey". Diagnostics. 9 (1): 26. doi:10.3390/diagnostics9010026. ISSN 2075-4418. 
  23. McManimen, Stephanie; McClellan, Damani; Stoothoff, Jamie; Gleason, Kristen; Jason, Leonard A. (Mar 4, 2019). "Dismissing chronic illness: A qualitative analysis of negative health care experiences". Health Care for Women International: 1–18. doi:10.1080/07399332.2018.1521811. ISSN 0739-9332. 
  24. Bedree, Helen; Sunnquist, Madison; Jason, Leonard A. (Aug 12, 2019). "The DePaul Symptom Questionnaire-2: a validation study". Fatigue: Biomedicine, Health & Behavior: 1–14. doi:10.1080/21641846.2019.1653471. ISSN 2164-1846. 
  25. Klebek, Lauren; Sunnquist, Madison; Jason, Leonard A. (Nov 6, 2019). "Differentiating post-polio syndrome from myalgic encephalomyelitis and chronic fatigue syndrome". Fatigue: Biomedicine, Health & Behavior: 1–11. doi:10.1080/21641846.2019.1687117. ISSN 2164-1846. 
  26. Terman, Julia; Cotler, Joseph; Jason, Leonard A. (2019), How psychiatric referrals influence stigmatization in patients with myalgic encephalomyelitis and chronic fatigue syndrome: An examination of American and British models, University of Salento, doi:10.1285/i24212113v5i2p19, retrieved May 29, 2020 
  27. Johnson, Madeline L.; Cotler, Joseph; Terman, Julia M.; Jason, Leonard A. (Jun 12, 2020). "Risk factors for suicide in chronic fatigue syndrome". Death Studies: 1–7. doi:10.1080/07481187.2020.1776789. ISSN 0748-1187. 
  28. Islam, Mohammed F.; Cotler, Joseph; Jason, Leonard A. (Apr 2, 2020). "Post-viral fatigue and COVID-19: lessons from past epidemics". Fatigue: Biomedicine, Health & Behavior. 8 (2): 61–69. doi:10.1080/21641846.2020.1778227. ISSN 2164-1846. 
  29. 29.029.1 "Invest in ME Research - International ME Conferences and Colloquiums Home Page". investinme.org. Retrieved Aug 28, 2019. 
  30. Friedberg, Fred; Jason, Leonard (1998). Understanding chronic fatigue syndrome : an empirical guide to assessment and treatment (1st ed.). Washington, DC: American Psychological Association. ISBN 1557985111. OCLC 39014174. 
  31. http://www.prpress.com/Clinicians-Guide-To-Controversial-Illnesses-Chronic-Fatigue-Syndrome-Fibromyalgia-and-Multiple-Chemical-Sensitivities-_p_51.html
  32. Jason, Leonard; Fennell, Patricia; Taylor, Renée R. (2003). Handbook of chronic fatigue syndrome. Hoboken, N.J.: Wiley. ISBN 047141512X. OCLC 50693363. 
  33. Jason, Leonard; Fennell, Patricia; Taylor, Renée R. (2003). Handbook of chronic fatigue syndrome. Hoboken, N.J.: Wiley. ISBN 047141512X. 
  34. Jason, Leonard A; Sorenson, Matthew; Evans, Meredyth; Brown, Abigail; Flores, S; Sunnquist, Madison; Schafer, C (2013). The implications of sensitization and kindling for chronic fatigue syndrome. N. Gotsiridze-Columbus (Ed.),Encephalitis, Encephalomyelitis, Encephalopathies: Symptoms, causes and potential complications (pages 73-94). New York: Nova Science. 
  35. Jason, Leonard A. (Dec 2017). "To Serve or Not to Serve: Ethical and Policy Implications". American Journal of Community Psychology. 60 (3-4): 406–413. doi:10.1002/ajcp.12181. 

chronic fatigue syndrome (CFS) - A fatigue-based illness. The term CFS was invented invented by the U.S. Centers for Disease Control as an replacement for myalgic encephalomyelitis (ME). Some view CFS as a neurological disease, others use the term for any unexplained long-term fatigue. Sometimes used as a the term as a synonym of myalgic encephalomyelitis, despite the different diagnostic criteria.

ME/CFS - An acronym that combines myalgic encephalomyelitis with chronic fatigue syndrome. Sometimes they are combined because people have trouble distinguishing one from the other. Sometimes they are combined because people see them as synonyms of each other.

Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS) - Chronic Fatigue and Immune Dysfunction Syndrome is another term for Chronic Fatigue Syndrome, but one which emphasizes the immunological aspects of the disease. Popular in the 1990's, this term has apparently fallen into disuse.

Chronic Fatigue Syndrome Advisory Committee (CFSAC) - (sometimes pronounced SIF-SACK) A US government advisory council that met twice per year, covering current topics related to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Meetings usually lasted for two days and the results were presented to the Secretary of Health and Human Services (HHS). After 15 years, on September 5, 2018, CFSAC's charter was not renewed by the Department of HHS, effectively dissolving the committee without notice or warning.

ME/CFS - An acronym that combines myalgic encephalomyelitis with chronic fatigue syndrome. Sometimes they are combined because people have trouble distinguishing one from the other. Sometimes they are combined because people see them as synonyms of each other.

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

chronic fatigue syndrome (CFS) - A fatigue-based illness. The term CFS was invented invented by the U.S. Centers for Disease Control as an replacement for myalgic encephalomyelitis (ME). Some view CFS as a neurological disease, others use the term for any unexplained long-term fatigue. Sometimes used as a the term as a synonym of myalgic encephalomyelitis, despite the different diagnostic criteria.

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

orthostatic intolerance (OI) - The development of symptoms when standing upright, where symptoms are relieved upon reclining. Patients with orthostatic intolerance have trouble remaining upright for more than a few seconds or a few minutes, depending upon severity. In severe orthostatic intolerance, patients may not be able to sit upright in bed. Orthostatic intolerance is often a sign of dysautonomia. There are different types of orthostatic intolerance, including postural orthostatic tachycardia syndrome (POTS).

post-exertional malaise (PEM) - A notable exacerbation of symptoms brought on by small physical or cognitive exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others.

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

chronic fatigue syndrome (CFS) - A fatigue-based illness. The term CFS was invented invented by the U.S. Centers for Disease Control as an replacement for myalgic encephalomyelitis (ME). Some view CFS as a neurological disease, others use the term for any unexplained long-term fatigue. Sometimes used as a the term as a synonym of myalgic encephalomyelitis, despite the different diagnostic criteria.

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

National Institutes of Health (NIH) - A set of biomedical research institutes operated by the U.S. government, under the auspices of the Department of Health and Human Services.

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From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.