Leonard Jason
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Leonard A. Jason, PhD, is a professor of psychology at DePaul University in Chicago, Illinois, US and Director of the Center for Community Research at DePaul University[1] which includes the DePaul University Chronic Fatigue Syndrome Project. His ME/CFS research is mostly focused on the epidemiology and prevalence of the illness and on the impact of using various case definitions for diagnosis and research.[2]
Dr. Jason developed chronic fatigue syndrome after contracting infectious mononucleosis in 1989, necessitating a leave of absence from his university job for a year and a half. After recovering enough to return to work, he began studying chronic fatigue syndrome: “What I found was that the illness had a lousy name, chronic fatigue syndrome,” he recalled. “It had an even worse case definition. The tests used to assess people’s psychological conditions were inappropriate. The treatments being used were inappropriate. And the prevalence data was not very good. So I said to myself, ‘Boy, I’m gonna have business for the next 20 years.’”[3] He has become one of the most respected and prolific researchers of chronic fatigue syndrome.
In 2008, David Tuller profiled for The New York Times Dr. Jason's experience as both living with and researching myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).[4]
Education[edit | edit source]
- 1971 - B.A., Psychology, Brandeis University, Waltham, Massachusetts[5]
- 1975 - Ph.D., Clinical/Community Psychology, University of Rochester, Rochester, New York[5]
Awards[edit | edit source]
- 1997, CSN ACTION Champion Award from the Chronic Fatigue Immune Dysfunction Syndrome Association of America (CAA)[5]
- 2011, Rudy Perpich Senior Lectureship Award, presented to a distinguished CFS/FM scientist, physician or healthcare worker awarded by International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis[6]
- 2011, Tom Fellows award for outstanding contributions to the Oxford House organization[5]
- 2013, DePaul University College of Science and Health award for Excellence in Research[7]
- 2015, American Psychological Association’s award for Distinguished Professional Contributions to Applied Research[8]
Committees and boards[edit | edit source]
Pediatric case definition[edit | edit source]
- 2006, A Pediatric Case Definition for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome[9] - (Full Text)
Chronic Fatigue Syndrome Advisory Committee[edit | edit source]
- 2004-2011, Dr. Jason served as a voting member of the Chronic Fatigue Syndrome Advisory Committee for the U.S. Department of Health and Human Services from April 1, 2004 to April 1, 2011.[10] During his tenure he was chairperson of the Research Subcommittee.[2]
International American Association of CFS/ME[edit | edit source]
- 2004-2009, Dr. Jason served as vice president of the International Association of CFS/ME.
- Dr. Jason serves on the editorial board of the journal, Fatigue: Biomedicine, Health & Behavior, published on behalf of the IACFS/ME.[11]
ME/CFS Common Data Elements (CDE) Project[edit | edit source]
- 2017-2018, Dr Jason serves on the Baseline/Covariate Working Group of the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Common Data Element (CDE) Project sponsored by the National Institute of Neurological Disorders and Stroke and the Centers for Disease Control and Prevention.[12] This working group reviewed data collection instruments widely used by investigators in the ME/CFS field, and either recommended their use unchanged or (more often) proposed some modifications.[13]
Advocacy[edit | edit source]
Chilli ME Challenge[edit | edit source]
- 2015, Leonard Jason and his research team at DePaul University participated in an ME/CFS awareness and biomedical research funding project which involved eating a hot chili pepper.[14] - (DePaul Chili Challenge video)
Open letter to The Lancet[edit | edit source]
Dr Jason signed all three open letters to the editor of The Lancet urging the editor to commission a fully independent review of the PACE trial, which the journal published in 2011.
- 13 November 2015, An open letter to Dr. Richard Horton and The Lancet[15]
- 10 February 2016, An open letter to The Lancet, again - Virology blog[16]
- 19 June 2018, An Open Letter to The Lancet, Two Years On[17]
[edit | edit source]
Dr. Leonard Jason is a prolific researcher of ME/CFS. Recent studies are listed below.
For complete list of studies: Research studies of Leonard Jason
- 2019, The 'Cognitive Behavioural Model' of Chronic Fatigue Syndrome: Critique of a Flawed Model[18] - (Full text)
- 2019, Myalgic encephalomyelitis and chronic fatigue syndrome case definitions: effects of requiring a substantial reduction in functioning[19] - (Abstract)
- 2019, Associations between autonomic and orthostatic self-report and physician ratings of orthostatic intolerance in youth[20] - (Abstract)
- 2019, The development of a short form of the DePaul Symptom Questionnaire[21] (Abstract)
- 2019, Assessment of Post-Exertional Malaise (PEM) in Patients with Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS): A patient-driven survey[22] - (Full text)
- 2019, Dismissing chronic illness: A qualitative analysis of negative health care experiences[23] - (Abstract)
- 2019, The DePaul Symptom Questionnaire-2: a validation study[24] - (Abstract)
- 2019, Differentiating post-polio syndrome from myalgic encephalomyelitis and chronic fatigue syndrome[25] - (Abstract)
- 2020, How psychiatric referrals influence stigmatization in patients with myalgic encephalomyelitis and chronic fatigue syndrome: An examination of American and British models[26] - (Abstract)
- 2020, Risk factors for suicide in chronic fatigue syndrome[27] - (Abstract)
- 2020, Post-viral fatigue and COVID-19: lessons from past epidemics[28] - (Full text)
- 2020, Risks for Developing ME/CFS in College Students Following Infectious Mononucleosis: A Prospective Cohort Study[29] - (Full text)
Talks and interviews[edit | edit source]
- 2014, Leonard Jason answering questions from members of the Institute of Medicine panel on case definition issues
- Oct 2015, Defining essential features of myalgic encephalomyelitis and chronic fatigue syndrome (Sweden)]
- 2016, 12th International IACFS/ME Biennial Clinical and Research Conference, Emerging Science and Clinical Care, Behavioral Assessment and Treatment of ME/CFS and Fibromyalgia(Workshop given with Fred Friedberg, Ph.D.)
- 2016, "qEEG LORETA CFS Case study - Sci Forschen Inc." with Leonard Jason, Marcie Zinn, and Mark Zinn
- 2016, Leonard Jason's comments at Sept. 27th, 2016 #millionsmissing protest in Chicago
- Mar 2017, Leonard Jason's Presentation to European Network on "Current Situation on Prevalence and Diagnostic Crieria for ME and CFS"
- Jan 2017, Leonard Jason's talk to the Ethical Humanist Society of Chicago on "Understanding Unexplained Illness: From Knowledge to Action" Slides for "Understanding Unexplained Illness: From Knowledge to Action"
- 13 Sep 2018, Appropriately and Accurately Assessing Symptoms in Patients with ME, sponsored by Solve ME/CFS Initiative for the 2018 Science & Discovery Webinar Series
- 2 May 2018, Trial By Error: A Q-and-A with Leonard Jason, on Case Definition, interview by David Tuller
Invest in ME International ME Conference[edit | edit source]
- 2008, Speaker at the 3rd Invest in ME International ME Conference on Case Definitions of ME/CFS – including paediatric case definition[30] - (Video)
- 2010, Speaker at the 5th Invest in ME International ME Conference on Key Note Speech: How Case Definitions Can Stigmatize: Implications for Epidemiology, Etiology, and Pathophysiology[30] DVD available
ME/CFS Alert[edit | edit source]
- 2011, ME/CFS Alert Episode 08 - Dr. Leonard Jason, Pt. 1
- 2011, ME/CFS Alert Episode 09 - Dr. Leonard Jason, Pt. 2
- 2011, ME/CFS Alert Episode 10 - Dr. Leonard Jason, Pt. 3
Web seminars Science for Patients / Wetenschap voor patienten (The Netherlands, english spoken, dutch subtitles)[edit | edit source]
- 2014, 50. Introduction - Experience with ME / Introductie - Ervaring met ME Prof. Leonard Jason
- 2014, 51. Criteria and Diagnosis part 1 / Criteria en diagnose deel 1 - Prof. Leonard Jason
- 2014, 52. Criteria and Diagnosis part 2 / Criteria en diagnose deel 2 - Prof. Leonard Jason
- 2014, 53. ME versus Psychiatric Disorders / ME versus psychiatrische aandoeningen - Prof. Leonard Jason
- 2014, 54. Treating and managing ME / Behandelen van en omgaan met ME -Prof. Leonard Jason
- 2014, 55. Symptoms of ME and treatments / Symptomen van ME en behandelingen - Prof. Leonard Jason
- 2014, 56. Population and Social Impact / Populatie en sociale gevolgen - Prof. Leonard Jason
- 2014, 57. Future and Teaching about ME / Toekomst en onderwijs geven over ME - Prof. Leonard Jason
Books[edit | edit source]
- 1998, Understanding Chronic Fatigue Syndrome: An Empirical Guide to Assessment and Treatment, by Fred Friedberg and Leonard Jason[31]
- 2001, Clinician's Guide To Controversial Illnesses: Chronic Fatigue Syndrome, Fibromyalgia, and Multiple Chemical Sensitivities, by Renée R. Taylor, Fred Friedberg, and Leonard A. Jason[32]
- 2003, The Handbook of Chronic Fatigue Syndrome by Leonard Jason, Patricia Fennell and Renée R. Taylor.[33]
- 2008, Fatigue Science for Human Health[34], edited by Yatanabe, Y., Evengard, B., Natelson, B.H., Jason, L.A., & Kuratsune, H.
- 2013, (Book chapter) The implications of sensitization and kindling for chronic fatigue syndrome[35] - (Abstract)
Articles and presentations[edit | edit source]
- Jan 2017, Myths about ME and CFS - presentation to the Ethical Humanist Society of Chicago regarding myths regarding ME and CFS
- Sep 18, 2017, "To Serve or Not to Serve: Ethical and Policy Implications"[36]
Online presence[edit | edit source]
See also[edit | edit source]
- Energy Envelope Theory
- DePaul symptom questionnaire
- Ethical issues
- Stigma and discrimination
- National Institutes of Health funding
Learn more[edit | edit source]
References[edit | edit source]
- ↑ "Education/Academic Appointments – Leonard A. Jason". Retrieved August 28, 2019.
- ↑ 2.0 2.1 "Trial By Error: A Q-and-A with Leonard Jason, on Case Definition". Virology blog. Retrieved August 28, 2019.
- ↑ "Feeling fatigued: studying CFS at Northwestern". North by Northwestern. Retrieved August 21, 2018.
- ↑ "Well". Retrieved August 21, 2018.
- ↑ 5.0 5.1 5.2 5.3 "Leonard A. Jason's Home Page". condor.depaul.edu. Retrieved August 21, 2018.
- ↑ "IACFS/ME Awardees". IACFS/ME. Retrieved April 23, 2020.
- ↑ "Excellence in Research Award | Faculty Research | Research | College of Science and Health | DePaul University, Chicago". csh.depaul.edu. Retrieved August 21, 2018.
- ↑ "Award for Distinguished Professional Contributions to Applied Research". American Psychological Association. Retrieved August 21, 2018.
- ↑ Jason, Leonard A; Jordan, Karen; Miike, Teruhisa; Bell, David S; Lapp, Charles; Torres-Harding, Susan; Rowe, Kathy; Gurwitt, Alan; De Meirleir, Kenny; Van Hoof, Elke LS (2006), "A Pediatric Case Definition for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome", Journal of Chronic Fatigue Syndrome, 13 (2–3): 1–44, doi:10.1300/J092v13n02_01
- ↑ http://nih.granicus.com/DocumentViewer.php?file=nih_e174f9bd-ae0f-4a45-9955-827cb608db2f.pdf
- ↑ "Fatigue: Biomedicine, Health & Behavior". tandfonline.com. Retrieved November 1, 2019.
- ↑ "Complete Myalgic Encephalomyelitis/Chronic Fatigue Syndrome CDE Roster". NIH. Retrieved October 11, 2019.
- ↑ "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome | NINDS Common Data Elements". commondataelements.ninds.nih.gov. Retrieved September 6, 2019.
- ↑ "DePaul Chili Challenge". YouTube. 2015. Retrieved August 21, 2018.
- ↑ Tuller, David (November 13, 2015). "An open letter to Dr. Richard Horton and The Lancet".
- ↑ Tuller, David (February 10, 2016). "An open letter to The Lancet, again".
- ↑ Tuller, David (June 19, 2018). "Trial By Error: An Open Letter to The Lancet, Two Years On".
- ↑ Geraghty, Keith; Jason, Leonard; Sunnquist, Madison; Blease, Charlotte; Tuller, David; Adeniji, Charles (February 2019). "The 'Cognitive Behavioural Model' of Chronic Fatigue Syndrome: Critique of a Flawed Model". Journal of Health Psychology. 6 (1): 2055102919838907. doi:10.1177/2055102919838907.
- ↑ Scartozzi, Samantha; Sunnquist, Madison; Jason, Leonard A. (April 2019). "Myalgic encephalomyelitis and chronic fatigue syndrome case definitions: effects of requiring a substantial reduction in functioning". Fatigue: Biomedicine, Health & Behavior: 1–10. doi:10.1080/21641846.2019.1600825. ISSN 2164-1846.
- ↑ Schultz, Katlin R.; Katz, Ben Z.; Bockian, Neil R.; Jason, Leonard A. (March 2019). "Associations Between Autonomic and Orthostatic Self-report and Physician Ratings of Orthostatic Intolerance in Youth". Clinical Therapeutics. 41 (4): 633–640. doi:10.1016/j.clinthera.2019.02.010.
- ↑ Sunnquist, Madison; Lazarus, Savitri; Jason, Leonard A. "The development of a short form of the DePaul Symptom Questionnaire". Rehabilitation Psychology. doi:10.1037/rep0000285. ISSN 1939-1544. PMID 31318234.
- ↑ Holtzman, Carly; Bhatia, Shaun; Cotler, Joseph; Jason, Leonard (March 2, 2019). "Assessment of Post-Exertional Malaise (PEM) in Patients with Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS): A Patient-Driven Survey". Diagnostics. 9 (1): 26. doi:10.3390/diagnostics9010026. ISSN 2075-4418.
- ↑ McManimen, Stephanie; McClellan, Damani; Stoothoff, Jamie; Gleason, Kristen; Jason, Leonard A. (March 4, 2019). "Dismissing chronic illness: A qualitative analysis of negative health care experiences". Health Care for Women International: 1–18. doi:10.1080/07399332.2018.1521811. ISSN 0739-9332.
- ↑ Bedree, Helen; Sunnquist, Madison; Jason, Leonard A. (August 12, 2019). "The DePaul Symptom Questionnaire-2: a validation study". Fatigue: Biomedicine, Health & Behavior: 1–14. doi:10.1080/21641846.2019.1653471. ISSN 2164-1846.
- ↑ Klebek, Lauren; Sunnquist, Madison; Jason, Leonard A. (November 6, 2019). "Differentiating post-polio syndrome from myalgic encephalomyelitis and chronic fatigue syndrome". Fatigue: Biomedicine, Health & Behavior: 1–11. doi:10.1080/21641846.2019.1687117. ISSN 2164-1846.
- ↑ Terman, Julia; Cotler, Joseph; Jason, Leonard A. (2019), How psychiatric referrals influence stigmatization in patients with myalgic encephalomyelitis and chronic fatigue syndrome: An examination of American and British models, University of Salento, doi:10.1285/i24212113v5i2p19, retrieved May 29, 2020
- ↑ Johnson, Madeline L.; Cotler, Joseph; Terman, Julia M.; Jason, Leonard A. (June 12, 2020). "Risk factors for suicide in chronic fatigue syndrome". Death Studies: 1–7. doi:10.1080/07481187.2020.1776789. ISSN 0748-1187.
- ↑ Islam, Mohammed F.; Cotler, Joseph; Jason, Leonard A. (April 2, 2020). "Post-viral fatigue and COVID-19: lessons from past epidemics". Fatigue: Biomedicine, Health & Behavior. 8 (2): 61–69. doi:10.1080/21641846.2020.1778227. ISSN 2164-1846.
- ↑ Jason, Leonard A; Cotler, Joseph; Islam, Mohammed F; Sunnquist, Madison; Katz, Ben Z (December 25, 2020). "Risks for Developing ME/CFS in College Students Following Infectious Mononucleosis: A Prospective Cohort Study". Clinical Infectious Diseases: ciaa1886. doi:10.1093/cid/ciaa1886. ISSN 1058-4838.
- ↑ 30.0 30.1 "International ME Conferences and Colloquiums Home Page". investinme.org. Retrieved August 28, 2019.
- ↑ Friedberg, Fred; Jason, Leonard (1998). Understanding chronic fatigue syndrome : an empirical guide to assessment and treatment (1st ed.). Washington, DC: American Psychological Association. ISBN 1557985111. OCLC 39014174.
- ↑ http://www.prpress.com/Clinicians-Guide-To-Controversial-Illnesses-Chronic-Fatigue-Syndrome-Fibromyalgia-and-Multiple-Chemical-Sensitivities-_p_51.html
- ↑ Jason, Leonard; Fennell, Patricia; Taylor, Renée R. (2003). Handbook of chronic fatigue syndrome. Hoboken, N.J.: Wiley. ISBN 047141512X. OCLC 50693363.
- ↑ Jason, Leonard; Fennell, Patricia; Taylor, Renée R. (2003). Handbook of chronic fatigue syndrome. Hoboken, N.J.: Wiley. ISBN 047141512X.
- ↑ Jason, Leonard A; Sorenson, Matthew; Evans, Meredyth; Brown, Abigail; Flores, S; Sunnquist, Madison; Schafer, C (2013). The implications of sensitization and kindling for chronic fatigue syndrome. N. Gotsiridze-Columbus (Ed.),Encephalitis, Encephalomyelitis, Encephalopathies: Symptoms, causes and potential complications (pages 73-94). New York: Nova Science.
- ↑ Jason, Leonard A. (December 2017). "To Serve or Not to Serve: Ethical and Policy Implications". American Journal of Community Psychology. 60 (3–4): 406–413. doi:10.1002/ajcp.12181.
