International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis
International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis or IACFS/ME is a multidisciplinary 501(c)(3) non-profit organization. They sponsor biennial international conferences to stimulate research and collaboration in the study of chronic fatigue syndrome, myalgic encephalomyelitis, and fibromyalgia.
Mission statement[edit | edit source]
"The mission of the IACFS/ME is to promote, stimulate and coordinate the exchange of ideas related to CFS, ME and fibromyalgia (FM) research, patient care and treatment. In addition, the IACFS/ME periodically reviews the current research and treatment literature and media reports for the benefit of scientists, clinicians and patients. The IACFS/ME also conducts and/or participates in local, national, and international scientific conferences in order to promote and evaluate new research and to encourage future research ventures and cooperative activities to advance scientific and clinical knowledge of these illnesses."
Journal[edit | edit source]
The professional journal published on behalf of the IACFS/ME is Fatigue: Biomedicine, Health & Behavior.
Newsletter[edit | edit source]
- January 2017, Presidents Letter - Volume 10, Issue 1 Sections include: IACFS/ME President's Letter, Welcome Message from the Editor, Board Activities, Research, In the Clinic, and Announcements
Founding[edit | edit source]
"The IACFS/ME was founded in 1990 by Dharam V. Ablashi and Orvalene Prewitt, and was chartered in 1992 as a not-for-profit organization in the state of Oklahoma with the help and financial support of Mr. Edward Taylor, the first Treasurer of the IACFS. The goals set forth by the Board of Directors at the first meeting were to bring together researchers, clinicians, healthcare workers, CFS support groups and patients, so that all could learn more about this illness through discussion, research and treatment and education, especially educating physicians to diagnose and treat CFS patients. These goals have been achieved through conferences held biannually throughout the United States. The IACFS/ME went through a phase when CFS was not recognized by most practicing physicians, despite recognition by the CDC and NIH. In 2005 the AACFS changed its name to IACFS/ME."
Board of Directors[edit | edit source]
Members serving in 2016:
Fred Friedberg, PhD Stony Brook University Stony Brook, NY, US
Lily Chu, MD, MS Burlingame, CA, US
Steven Krafchick, MPH, JD Krafchick Law Firm PLLC Legal Services for Injured and Disabled People Seattle, WA, US
Sonya Marshall-Gradisnik, PhD Melbourne, Australia
Jon Kaiser, MD UCSF Medical School San Francisco, CA, US
Online presence[edit | edit source]
See also[edit | edit source]
References[edit | edit source]
myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.
chronic fatigue syndrome (CFS) - A controversial term, invented by the U.S. Centers for Disease Control, that generally refers to a collection of symptoms as “fatigue”. There have been multiple attempts to come up with a set of diagnostic criteria to define this term, but few of those diagnostic criteria are currently in use. Previous attempts to define this term include the Fukuda criteria and the Oxford criteria. Some view the term as a useful diagnostic category for people with long-term fatigue of unexplained origin. Others view the term as a derogatory term borne out of animus towards patients. Some view the term as a synonym of myalgic encephalomyelitis, while others view myalgic encephalomyelitis as a distinct disease.
Centers for Disease Control and Prevention (CDC) - The Centers for Disease Control and Prevention is a U.S. government agency dedicated to epidemiology and public health. It operates under the auspices of the Department of Health and Human Services.