Kenneth J. Friedman, PhD, is a retired Associate Professor of Pharmacology and Physiology, New Jersey Medical School, University of Medicine and Dentistry of NJ, Newark, New Jersey. He was a trainer of the Centers for Disease Control and Prevention’s Chronic Fatigue Syndrome Continuing Medical Education Course and delivered continuing medical education courses to physicians and other healthcare professionals throughout the United States. After the CDC discontinued its continuing medical education course for Chronic Fatigue Syndrome, he developed his own continuing medical education course for Chronic Fatigue Syndrome, approved by the American Academy of Family Physicians, and delivered that program to physicians around the U.S. He retired after he was denied promotion, officially reprimanded, and subjected to an ethics investigation, merely for researching ME/CFS at a medical school that did not include ME/CFS in its curriculum. His passion for ME/CFS advocacy is fueled by the fact that his daughter has CFS and fibromyalgia after getting mononucleosis her freshman year in college.
Advocacy[edit | edit source]
Boards[edit | edit source]
Dr. Friedman has served on the Board of the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME) and is a Trustee of the New Jersey ME/CFS Association (NJMECFSA). Dr. Friedman was, also, the Secretary and Chair of Public Policy for PANDORA Org and an advisor to the website cfsKnowledgebase. He is currently serving as a Board member of both the New Jersey ME/CFS Association and the The Vermont CFIDS Association.
CFSAC[edit | edit source]
From 2003-2006, he served on the Chronic Fatigue Syndrome Advisory Committee (CFSAC) for the U.S. Department of Health and Human Services, as a member of the Research Committee. During his term, he wrote a Research Committee minority report entitled, “Fish Or War." In it he argues that the National Institutes of Health had not solved CFS in the past 15 or 20 years, so new "more aggressive funding elements should be incorporated into the United States’ future funding of CFS research."
Open letter to The Lancet[edit | edit source]
Two open letters to the editor of The Lancet urged the editor to commission a fully independent review of the PACE trial, which the journal had published in 2011. In 2016, Dr. Friedman, along with 41 colleagues in the ME/CFS field, signed the second letter.
- 10 February 2016, An open letter to The Lancet, again - Virology blog
Writing committees[edit | edit source]
Dr. Friedman was a member of the writing committee for several primers and manuals, including:
- 2002, Consensus Manual for the Primary Care and Management of Chronic Fatigue Syndrome sponsored by The Academy of Medicine of New Jersey and the New Jersey Department of Health and Senior Services. The authored the first chapter "Pathophysiology in CFS" and co-authored chapter 3, "Infections in CFS," and chapter 10, "Gastrointestinal Symptoms in CFS."
- 2006, Chronic Fatigue Syndrome in Children and Adolescents
- 2012 and 2014 editions of ME/CFS: A Primer for Clinical Practitioners sponsored by the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis- (Full text)
- 2017, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer by Peter C. Rowe, Rosemary A. Underhill, Kenneth J. Friedman, Alan Gurwitt, Marvin S. Medow, Malcolm S. Schwartz, Nigel Speight, Julian M. Stewart, Rosamund Vallings and Katherine S. Rowe - (Full Text)
Speaking engagements[edit | edit source]
- May 12, 2007 - Dr. Friedman presented the keynote speech at The Vermont CFIDS Association CFS Awareness Day held in Burlington, VT.
- April 28, 2011 - The National Institutes of Health invited Dr. Friedman to the NIH-Sponsored ME/CFS State of Knowledge Workshop, where he delivered a speech: "Elephants in the Room: Acknowledging Impediments to ME-CFS Research, Education, and Clinical Care"
- March 21, 2014 - Dr. Friedman presented a talk entitled "Home-Based Self-Management for Severe CFS/ME: A Randomized Trial" at the IACFSME conference in San Francisco.
- Oct 3, 2019 - "Advances in ME CFS Research and Clinical Care" sponsored by Solve ME/CFS Initiative
Articles[edit | edit source]
- After the Institute of Medicine report was released, Dr. Friedman wrote a review in which he states:
"The report was written to develop a series of recommendations to assist in the development of policies that will guide future ME/CFS research, education and patient support. The IOM report needs to be placed in the broader ME/CFS environment. Additional input regarding the historical, medical, social and research environment of ME/CFS needs to be received by the Department of Health and Human Services prior to the development of new ME/CFS policies and initiatives. That input should be provided by responsible ME/CFS researchers, clinicians, healthcare educators, patient advocacy organizations, patients, social scientists and social services organizations. Only then can the correct path forward for ME/CFS be projected."
- On Oct 13, 2016, Dr. Friedman wrote a position paper, "Increasing Efficacy of the CDC’s ME/CFS Educational Program" about the Centers for Disease Control (CDC) fourth attempt of revising and creating meaningful educational materials for its Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) educational program so as to not contain illness stigmatizing elements.
- Aug 2019, Editorial: Advances in ME/CFS Research and Clinical Care - (Full text)
Notable studies[edit | edit source]
- 2017, Access to Medical Care for Individuals with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome: A Call for Centers of Excellence - (Full Text)
Talks and interviews[edit | edit source]
- 2011, Radio interview with Dr. Ken Friedman
- 2014, Rituximab & ME/CFS
- 2014, ME/CFS: Why Do I Feel This Way
- 2014, ME/CFS What We Know About Causes
- 2014, Biomarkers
- 2016, Immune Dysfunction (ME/CFS) Awareness Panel 2016
- 2021, Physical & Occupational Therapy for ME/CFS and Similar Chronic Illnesses
See also[edit | edit source]
- Chronic Fatigue Syndrome Advisory Committee
- New Jersey Chronic Fatigue Syndrome Association (NJCFSA)
- Vermont CFIDS Association
- Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer
Learn more[edit | edit source]
References[edit | edit source]
- Friedman, Kenneth J. (March 17, 2015). "A Researcher's Review of the IOM Report: Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness" (PDF). immunedysfunction.org.
- Friedman, Kenneth J. (April 8, 2011). "Elephants in the Room: Acknowledging Impediments to ME-CFS Research, Education, and Clinical Care" (PDF). immunedysfunction.org.
- Johnson, Cort. "An Interview With Researcher, Advocate and Author Ken Friedman Ph.D. Part I: The Federal Response to ME/CFS and the Chronic Fatigue Syndrome Advisory Committee. By Cort Johnson". Phoenix Rising. Retrieved September 3, 2019.
- "Kenneth Friedman P.hD". Health Rising. Retrieved September 3, 2019.
- "Fish or War?". immunedysfunction.org. Retrieved September 3, 2019.
- Oleske JJ. A Consensus Manual for the Primary Care and Management of Chronic Fatigue Syndrome. The Academy of Medicine of New Jersey, The New Jersey Department of Health & Senior Services; 2002.
- Oleske, James M.; Friedman, Kenneth J.; Kaufman, Kenneth R.; Palumbo, Donna; Sterling, Jonathan; Evans, Terri Lynn (2006), "Chronic Fatigue Syndrome in Children and Adolescents", Journal of Chronic Fatigue Syndrome, 13 (2–3), doi:10.1300/J092v13n02_07
- Members of the IACFS/ME, Primer Writing Committee. "ME/CFS: A Primer for Clinical Practitioners". IACFS/ME. Retrieved September 3, 2019.
- Rowe, Peter C.; Underhill, Rosemary A.; Friedman, Kenneth J.; Gurwitt, Alan; Medow, Marvin S.; Schwartz, Malcolm S.; Speight, Nigel; Stewart, Julian M.; Vallings, Rosamund; Rowe, Katherine S. (2017), "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer", Frontiers in Pediatrics, 5 (121), doi:10.3389/fped.2017.00121
- Solve M.E. Webinar: Advances in ME CFS Research and Clinical Care, retrieved October 21, 2019
- "Increasing Efficacy of the CDC's ME/CFS Educational Program". #MEAction. October 13, 2016. Retrieved September 3, 2019.
- Friedman, Kenneth; Bateman, Lucinda; Bested, Alison C.; Nahle, Zaher (August 2019). "Editorial: Advances in ME/CFS Research and Clinical Care". Frontiers in Pediatrics. doi:10.3389/fped.2019.00370.
- Sunnquist, Madison; Nicholson, Laura; Jason, Leonard A.; Friedman, Kenneth J. (April 2017). "Access to Medical Care for Individuals with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome: A Call for Centers of Excellence" (PDF). Modern Clinical Medicine Research. 1 (1). doi:10.22606/mcmr.2017.11005. ISSN 2521-0637. PMID 28713878.
Chronic Fatigue Syndrome Advisory Committee (CFSAC) - (sometimes pronounced SIF-SACK) A US government advisory council that met twice per year, covering current topics related to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Meetings usually lasted for two days and the results were presented to the Secretary of Health and Human Services (HHS). After 15 years, on September 5, 2018, CFSAC's charter was not renewed by the Department of HHS, effectively dissolving the committee without notice or warning.
myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.
Institute of Medicine report (IOM report) - A report that was commissioned by the U.S. government and was published by the Institute of Medicine on February 10, 2015. The report was titled "Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness" and proposed the term Systemic Exertion Intolerance Disease (SEID). Among its key findings were that "This disease is characterized by profound fatigue, cognitive dysfunction, sleep abnormalities, autonomic manifestations, pain, and other symptoms that are made worse by exertion of any sort." The report further stated "Between 836,000 and 2.5 million Americans suffer from myalgic encephalomyelitis/chronic fatigue syndrome."
projection 1. In psychology, a defense mechanism involves attribution unpleasant feelings to another person. May be abusive, e.g., a person accusing someone else of something that they themselves are doing or feeling. Often linked to gaslighting.
2. Estimate or forecast based on trends.
3. Something that extends out from something else.
4. How something is presented. (Learn more: www.forbes.com)
Centers for Disease Control and Prevention (CDC) - The Centers for Disease Control and Prevention is a U.S. government agency dedicated to epidemiology and public health. It operates under the auspices of the Department of Health and Human Services.