Mary Dimmock
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Mary Dimmock worked in the pharmaceutical industry until becoming a patient advocate after her son, Matthew Lazell-Fairman developed ME/CFS in 2010.[1][2] Her advocacy work includes: authoring papers on the history,[3] the disease burden,[4] and common data elements for research of ME/CFS;[5] participating in government committees; and public speaking.
Thirty Years of Disdain[edit | edit source]
In 2015, Dimmock wrote an extensively referenced advocacy paper with her son, Matthew Lazell-Fairman, titled Thirty Years of Disdain: How HHS and A Group of Psychiatrists Buried Myalgic Encephalomyelitis, which documents the history and the politics of ME since the 1980s, with a particular focus on how the US Health and Human Services (HHS) and a group of British psychiatrists led by Simon Wessely have mishandled the disease.[3]
Studies and articles[edit | edit source]
- 2016, Estimating the disease burden of ME/CFS in the United States and its relation to research funding[4] (Full Text)
- 2017, Public Review - Draft of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Common Data Elements (CDE); Fatigue Subgroup Materials[6] - (Full Text)
- 2018, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: What Every Family Physician Needs to Know[7] (Full text)
- 2021, Caring for the Patient with Severe or Very Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome[8] (Full text)
Committees[edit | edit source]
- 2017-2018 - Co-chair of Post-Exertional Malaise Working Group and a member of the Fatigue Working Group, the Neuroendocrine Working Group, and the Immune Working Group of the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Common Data Element (CDE) Project sponsored by the National Institute of Neurological Disorders and Stroke (NINDS) and the Centers for Disease Control and Prevention (CDC).[5]
- 2018 - served on the Clinical Trials and Treatment Working Group of the Chronic Fatigue Syndrome Advisory Committee (CFSAC), sponsored by the US Health and Human Services (HHS) Department.
Talks and interviews[edit | edit source]
- Jan 2014, Public Comment 3 Mary Dimmock Comments to Institute of Medicine (IOM) Committee.
- 2015, Chronic Fatigue Syndrome - A Disease Looking for Doctors and Researchers - WHC 7044 (Full Episode) Llewellyn King interviews Mary Dimmock.
- 2016, Episode 78 - Mary Dimmock via ME/CFS Alert.
HHS/CFSAC Testimony[edit | edit source]
- CFSAC Public Testimony at Nov 2011 CFSAC Meeting
- CFSAC Public Testimony at May 2013 CFSAC Meeting
- CFSAC Public Testimony at Dec 2013 CFSAC Meeting
- CFSAC Public Testimony at Jun 2014 CFSAC Meeting
- CFSAC Public Testimony at Dec 2014 CFSAC Meeting
- CFSAC Public Testimony at May 2016 CFSAC Meeting
Online presence[edit | edit source]
Learn more[edit | edit source]
References[edit | edit source]
- ↑ "Mary Dimmock". facebook.com. Retrieved December 6, 2020.
- ↑ http://www.hhs.gov/advcomcfs/meetings/presentations/publictestimony_201111_dimmock.pdf
- ↑ 3.0 3.1 "Thirty Years of Disdain - Background.pdf" (PDF). Dropbox. Retrieved December 6, 2020.
- ↑ 4.0 4.1 Dimmock, Mary E.; Mirin, Arthur A.; Jason, Leonard A. (2016). "Estimating the disease burden of ME/CFS in the United States and its relation to research funding". Journal of Medicine and Therapeutics. 1 (1). doi:10.15761/JMT.1000102.
- ↑ 5.0 5.1 "Complete Myalgic Encephalomyelitis/Chronic Fatigue Syndrome CDE Roster". NIH. Retrieved October 11, 2019.
- ↑ Cella, David; Dimmock, Mary; Friedberg, Fred; Lin, Jin-Mann Sally; Nacul, Luis; Saligan, Leorey (December 2017), NINDS/CDC Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Common Data Elements (CDE); Fatigue Subgroup Materials (PDF)
- ↑ Dimmock, Mary; Devine, Susan; Wilder, Terri L (Winter 2018). "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: What Every Family Physician Needs to Know" (PDF). Family Doctor: A Journal of the New York State Academy of Family Physicians. 6 (3): 23–25.
- ↑ Montoya, Jose; Dowell, Theresa; Mooney, Amy; Dimmock, Mary; Chu, Lily (October 6, 2021). "Caring for the Patient with Severe or Very Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome". Healthcare. 9 (10): 1331. doi:10.3390/healthcare9101331. ISSN 2227-9032. PMC 8544443. PMID 34683011.
