Donna Pearson
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Donna M. Pearson is a patient advocate from Holland, Massachusetts. She became ill with myalgic encephalomyelitis (ME) in 2003 following a flu, that in her words, "was far worse than anything I had ever experienced." Prior to becoming ill she worked as the Vice President for a real estate syndication firm, established her own management company, raised a family, and led a full and active life.[1]
Massachusetts CFIDS/ME & FM Association[edit | edit source]
Pearson is an officer of the Massachusetts CFIDS/ME & FM Association, a large and respected patient advocacy group.[2]
Chronic Fatigue Syndrome Advisory Committee[edit | edit source]
Pearson serves as a voting member of the HHS's Chronic Fatigue Syndrome Advisory Committee (CFSAC) for the term: 06/16/14 to 06/16/18 and chairs the IOM/P2P Working Group for CFSAC.[3]
Questions to NIH during Advocacy Call[edit | edit source]
- 2 Nov 2016, NIH ME/CFS Advocacy Call - (Recorded call and Transcript) with Dr. Walter Koroshetz, Dr. Vicky Whittemore, Dr. Joseph Breen, and Dr. Avindra Nath - During the question and answer session, Pearson challenges Dr. Koroshetz's statements that the illness needed champions. She stated that we do have champions. And they’ve been working for years and that we needed the NIH to become our champion.[4]
Talks and interviews[edit | edit source]
- Testimony during the CFSAC Meeting
