EUROMENE
EUROMENE stands for European ME Network, also called European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. It was started by the Cooperation in Science and Technology (COST) Association, an international not-for-profit organization. Funding was approved for four years and may be extended longer upon approval. COST refers to the formation of EUROMENE as COST Action 15111 or CA15111.[1]
The official start date of the organization was 21 April 2016 and is funded until 20 April 2020 unless extension is approved.[2]
Countries[edit | edit source]
As of spring 2018, the following countries were participating in EUROMENE: Belarus, Belgium, Bulgaria, Denmark, Finland, France, Germany, Greece, Ireland, Italy, Latvia, the Netherlands, Norway, Portugal, Romania, Serbia, Slovenia, Spain, Sweden, and the United Kingdom.
Goals[edit | edit source]
The following objectives were listed on the memorandum for the implementation of the network:
Research Coordination[1]
- Develop strategies to collect population-based data on the prevalence of ME/CFS, including standardized procedures with pilot studies in selected locations; develop a geographical mapping of ME/CFS epidemiology involving correlations with other mapped information
- Promote co-operation and involvement of research groups with an objective to assess potential biomarkers for ME/CFS capable to evaluation of various infections and immunological disorders as causal factors or comorbidities
- Define a standardized clinical diagnosis for ME/CFS for clinicians and researchers that allows the identification of relatively homogenous sets of patients, who can be studied to identify pathogenesis mechanisms, biomarkers and disease process in a stratified way, as well as to be compared with other researched populations
- Coordinate efforts to determine the social impact of ME/CFS and to appraise the economic damage from the disease
- Establish communication links with industrial organisations, especially small/medium-sized enterprise (SMEs), in the pharmaceutical, biotechnology and ICT industries in each participating country to develop collaborative research and innovation proposals
Capacity Building[1]
- Integrate Early Career Investigators (ECI) into network activities, providing optimal diffusion of knowledge and special translational research skills; Demonstrate ME/CFS as a promising field for carrier development in science
- Foster knowledge exchange on use of synchronised diagnostic criteria and management of research in ME/CFS, -omics and bioinformatics, translational research in ME/CFS by involving relevant stakeholders, interested researchers, ECIs and clinicians, and organizing working groups, seminars, training schools, and Short-Term Scientific Missions (STSMs)
- Provide update in novel ME/CFS knowledge via short training events with an efficient participant involvement
Management committee[edit | edit source]
The following are listed as being participants of the COST Action CA15111 / EUROMENE[3]:
- Chair - Professor Modra Murovska, Riga Stradins University, Riga, Latvia
- Vice Chair - Dr. Eliana Lacerda, London School of Hygiene & Tropical Medicine, London, UK
Working groups[edit | edit source]
Epidemiology working group[4][edit | edit source]
Members
- Dr. Jesús Castro-Marrero, Vall d'Hebron University Hospital, Barcelona, Spain
- Dr. Slobodan Sekulic, Medical Faculty Novi Sad, Novi Sad, Serbia
- Dr. Eliana Lacerda, London School of Hygiene & Tropical Medicine, London, UK
- Dr. Fernando Estévez-López, University of Granada, Granada, Spain
- Dr. Nuno Sepulveda, Centre of Statistics and Application of University of Lisbon, Portugal
Substitutes
- Dr. Maja Vukadinovic, Novi Sad Business School, Novi Sad, Serbia
- Professor Jordi Miro, Universitat Rovira i Virgili, Spain
Participants
Biomarkers working group[edit | edit source]
Members
- Professor Carmen Scheibenbogen, Charite, Germany
- Professor Enrica Capelli, University of Pavia, Pavia, Italy
- Professor Modra Murovska, Riga Stradins University, Riga, Latvia
- Dr. Henrik Nielsen, PrivatHospitalet Danmark, Denmark
- Professor Thomas Harrer, Universitatsklinikum Erlangen, Germany
- Professor Jonas Blomberg, Uppsala University, Sweden
- Professor Jonas Bergquist, Uppsala University, Sweden
- Professor Svetlana Orlova, RRPCEM, Minsk, Belarus
- Professor Mira Meeus, Universiteit Antwerpen, Belgium
- Professor Ivan Brandslund, Vejle, Denmark
- Professor Evelina Shikova-Lekova, National Center of Infectious and Parasitic Diseases, Bulgaria
Substitutes
- Dr. Bhupesh Prusty, Julius Maximilian University of Wuerzburg, Germany
- Dr. Patricia Grabowski, Charite-Universitatsmedizin Berlin, Germany
- Ms. Santa Rasa, Riga Stradins University, Latvia
- Ms. Zaiga Nora-Krukle, Riga Stradins University, Latvia;
- Ms. Helma Freitag, Charite-Universitatsmedizin Berlin, Germany
Participants
- Professor Elisa Oltra, Universidad Católica de Valencia "San Vicente Mártir", Valencia, Spain
- Dr. Franziska Sotzny, Charité University Medicine Berlin, Campus Virchow, Berlin, Germany
- Dr. Jacqueline Cliff, London School of Hygiene & Tropical Medicine, London, UK
- Artsiom Shtyrau, Belarus
Socio-economics working group[edit | edit source]
Members
- Professor Derek Pheby, Buckinghamshire New University, United Kingdom
- Dr. Uldis Berkis, Riga Stradins University, Latvia
- Dr John Cullinan, NUI Galway Discipline of Economics, Ireland
- Dr. Dominic Trepel, Trinity College Dublin, Dublin, Ireland
- Professor Jean-Dominique de Korwin, Lorraine University and Nancy University Hospital, France
Substitutes
- Professor Jonathan Edwards, University College London, UK
- Dr Julià Blanco, Fundacio Institut Germans trias i Pujol, Spain
Participants
- Dr. Lara Gitto, University of Rome Tor Vergata, Rome, Italy
- Rachael Hunt
- Elenka Brenna, Università Cattolica del Sacro Cuore, Milano, Italy
- Dr. Xia Wang-Steverding, University of East Anglia, Norwich, U.K.
- Asja Lunga, Riga Stradins University, Latvia
Clinical research enablers and diagnostic criteria working group[edit | edit source]
Members
- Dr. Elin B. Strand, Oslo University Hospital HF CFS/ME Centre, Norway
- Professor Jerome Authier, Paris Est-Creteil University, France
- Dr. Magdalena Budisteanu, "Prof. Dr. Alex. Obregia" Clinical Hospital of Psychiatry, Romania
- Dr. Jose Alegre-Martin, Vall d'Hebron University Hospital, Barcelona, Spain
- Dr Olli Polo, Unesta Research Center, Tampere, Finland
- Prof. Giorgos Sakkas, University of Thessaly, Trikala, Greece
- Dr Ruud Vermeulen, CVS/ME Medisch Centrum, Amsterdam, Netherlands
- Uros Marusic
Substitutes
- Dr. Luis Nacul, London School of Hygiene and Tropical Medicine, UK
- Dr. Ingrid Bergliot Helland, Oslo University Hospital, Norway
- Professor Angelika Krumina, Riga Stradins University, Latvia
- Rado Pišot
Working Group on conferences, seminars, training schools, STSMs[edit | edit source]
Conferences, seminars, training schools
- Professor Evelina Shikova-Lekova, National Center of Infectious and Parasitic Diseases, Bulgaria
STSM
- Dr. Els Tobback, (STSM COORDINATION), University Hospital Ghent, Belgium
- Dr. Carmen Adella Sirbu, Central Military Emergency Hospital, Romania
Working Group on dissemination and exploitation, patient involvement, digitalisation[edit | edit source]
- Dr Lorenzo Lorusso, A.O. Mellino Mellini, Italy
- Professor Anne Marit Mengshoel, University of Oslo, Norway
Notable studies[edit | edit source]
- 2017, The European ME/CFS Biomarker Landscape project: an initiative of the European network EUROMENE[5] - (Full Text)
- 2018, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome – Evidence for an autoimmune disease[6] - (Full text)
- 2018, Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe—the Euro-epiME study from the European network EUROMENE: a protocol for a systematic review[7] - (Full text)
- 2018, Chronic viral infections in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)[8] - (Full text)
- 2020, The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE)[9] - (Full text)
- 2020, Systematic Review of the Epidemiological Burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Across Europe: Current Evidence and EUROMENE Research Recommendations for Epidemiology[10] - (Full text)
Online presence[edit | edit source]
Learn more[edit | edit source]
- 2017 - The European ME/CFS Biomarker Landscape project: an initiative of the European network EUROMENE[11]
- 2015 - Memorandum of Understanding for the implementation of the COST Action “European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome” (EUROMENE) CA15111
References[edit | edit source]
- ↑ 1.0 1.1 1.2 European Cooperation in Science and Technology (COST) (October 30, 2015), Memorandum of Understanding for the implementation of the COST Action "European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome" (EUROMENE) CA15111 (PDF)
- ↑ European Cooperation in Science and Technology (COST) (2015), Parties of the COST Action "European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome" (EUROMENE) CA15111
- ↑ European Cooperation in Science and Technology (COST) (2015), Management Committee of the COST Action "European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome" (EUROMENE) CA15111
- ↑ "Epidemiology". www.euromene.eu. Retrieved January 20, 2019.
- ↑ Scheibenbogen, Carmen; Freitag, Helma; Blanco, Julià; Capelli, Enrica; Lacerda, Eliana; Authier, Jerome; Meeus, Mira; Castro Marrero, Jesus; Nora-Krukle, Zaiga; Oltra, Elisa; Strand, Elin Bolle; Shikova, Evelina; Sekulic, Slobodan; Murovska, Modra (July 26, 2017). "The European ME/CFS Biomarker Landscape project: an initiative of the European network EUROMENE". Journal of Translational Medicine. 15 (1). doi:10.1186/s12967-017-1263-z. ISSN 1479-5876. PMC 5530475. PMID 28747192.
- ↑ Sotzny, Franziska; Blanco, Julià; Capelli, Enrica; Castro-Marrero, Jesús; Steiner, Sophie; Murovska, Modra; Scheibenbogen, Carmen (2018), "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome – Evidence for an autoimmune disease", Autoimmunity Reviews, 17 (6): 601-609, doi:10.1016/j.autrev.2018.01.009
- ↑ Estévez-López, Fernando; Castro-Marrero, Jesus; Wang, Xia; Bakken, Inger Johanne; Ivanovs, Andrejs; Nacul, Luis; Sepúlveda, Nuno; Strand, Elin B.; Pheby, Derek; Alegre, José; Scheibenbogen, Carmen; Shikova, Evelina; Lorusso, Lorenzo; Capelli, Enrica; Sekulic, Slobodan; Lacerda, Eliana; Murovska, Modra (September 1, 2018). "Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe—the Euro-epiME study from the European network EUROMENE: a protocol for a systematic review". BMJ Open. 8 (9): e020817. doi:10.1136/bmjopen-2017-020817. ISSN 2044-6055. PMID 30181183.
- ↑ Rasa, Santa; Nora-Krukle, Zaiga; Henning, Nina; Eliassen, Eva; Shikova, Evelina; Harrer, Thomas; Scheibenbogen, Carmen; Murovska, Modra; Prusty, Bhupesh K.; European Network on ME/CFS (EUROMENE) (October 1, 2018). "Chronic viral infections in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)". Journal of Translational Medicine. 16 (1). doi:10.1186/s12967-018-1644-y. ISSN 1479-5876. PMID 30285773.
- ↑ Pheby, Derek F.H.; Araja, Diana; Berkis, Uldis; Brenna, Elenka; Cullinan, John; de Korwin, Jean-Dominique; Gitto, Lara; Hughes, Dyfrig A; Hunter, Rachael M; Trepel, Dominic; Wang-Steverding, Xia (April 7, 2020). "The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE)". Healthcare. 8 (2): 88. doi:10.3390/healthcare8020088. ISSN 2227-9032.
- ↑ Estévez-López, Fernando; Mudie, Kathleen; Wang-Steverding, Xia; Bakken, Inger Johanne; Ivanovs, Andrejs; Castro-Marrero, Jesús; Nacul, Luis; Alegre, Jose; Zalewski, Paweł; Słomko, Joanna; Bolle Strand, Elin; Pheby, Derek; Shikova, Evelina; Lorusso, Lorenzo; Capelli, Enrica; Sekulic, Slobodan; Scheibenbogen, Carmen; Sepúlveda, Nuno; Murovska, Modra; Lacerda, Eliana (May 2020). "Systematic Review of the Epidemiological Burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Across Europe: Current Evidence and EUROMENE Research Recommendations for Epidemiology". Journal of Clinical Medicine. 9 (5): 1557. doi:10.3390/jcm9051557.
- ↑ Scheibenbogen, Carmen; Freitag, Helma; Blanco, Julià; Capelli, Enrica; Lacerda, Eliana; Authier, Jerome; Meeus, Mira; Castro Marrero, Jesus; Nora-Krukle, Zaiga; Oltra, Elisa; Bolle Strand, Elin; Shikova, Evelina; Sekulic, Slobodan; Murovska, Modra (2017), "The European ME/CFS Biomarker Landscape project: an initiative of the European network EUROMENE", Journal of Translational Medicine, 15: 162, doi:10.1186/s12967-017-1263-z