Germany

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Germany

Demographics[edit | edit source]

It's estimated that around 240.000 people living in Germany suffer from Myalgic Encephalomyelitis.[1] This represents a prevalence of 0.3% of the German population.

Research[edit | edit source]

Research initiatives[edit | edit source]

Researchers[edit | edit source]

Medical guidelines[edit | edit source]

Social security and disability benefits[edit | edit source]

Access to care[edit | edit source]

How many hospitals & doctors, which diagnose and treat ME (estimate): Rehabilitation offers for ME sufferers:

Patient groups[edit | edit source]

National groups[edit | edit source]

Regional groups[edit | edit source]

Notable patients[edit | edit source]

Notable advocates[edit | edit source]

Clinicians[edit | edit source]

Clinics[edit | edit source]

Documents in German[edit | edit source]

Blogs[edit | edit source]

Forums[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

  1. Scheibenbogen et al. (2014), Chronisches Fatigue-Syndrom. Heutige Vorstellung zur Pathogenese, Diagnostik und Therapie, tägl. prax. 55, 567–574, Hans Marseille Verlag GmbH, München.
  2. "AWMF: Detail". www.awmf.org. Retrieved Aug 14, 2019. 
  3. "New German guideline for ME published today". Science for ME. Retrieved Aug 14, 2019. 
  4. "DEGAM veröffentlicht revidierte Fassung der Leitlinie »Müdigkeit«". Deutsche Gesellschaft für ME/CFS. May 22, 2018. Retrieved Aug 14, 2019. 
  5. admin (Jun 5, 2019). "Sozialmedizinische Begutachtung". DRV (in Deutsch). Retrieved Aug 15, 2019. 
  6. Stigler, Rolf-Dietrich. "Charité Fatigue Centrum". Charité Fatigue Centrum (in Deutsch). Retrieved Aug 15, 2019. 
  7. "Informationen für Ärztinnen und Ärzte – Deutsche Gesellschaft für ME/CFS". Retrieved Aug 15, 2019. 
  8. "Bell-Skala" (PDF). 

ME/CFS - An acronym that combines myalgic encephalomyelitis with chronic fatigue syndrome. Sometimes they are combined because people have trouble distinguishing one from the other. Sometimes they are combined because people see them as synonyms of each other.

World Health Organization (WHO) - "A specialized agency of the United Nations that is concerned with public health. It was established on 7 April 1948, and is headquartered in Geneva, Switzerland. The WHO is a member of the United Nations Development Group. Its predecessor, the Health Organization, was an agency of the League of Nations." The International Statistical Classification of Diseases and Related Health Problems (ICD) is maintained by WHO. (Learn more: en.wikipedia.org)

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.