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MillionsMissing Deutschland

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Protest in Berlin 2019 – more at millionsmissing.de

#MillionsMissing Deutschland (#MillionsMissing Germany) was founded in 2018.[1] It's a German affiliate group of The MEAction Network. #MillionsMissing Germany is run by a network of dedicated volunteers.

Aims[edit | edit source]

Its aim is to work towards health equity for people with Myalgic Encephalomyelitis (ME).[2]

Events[edit | edit source]

In May 2018 #MillionsMissing Germany organized #MillionsMissing protests in Berlin and Gütersloh with support of the German Association for ME/CFS and cooperated with a third protest, hosted by the Lost Voices Foundation in Hannover.[3]

In May 2019 #MillionsMissing Germany organized #MillionsMissing protests in Berlin, Munich and Halle (Saale) with support of the German Association for ME/CFS. Later that month #MillionsMissing Germany held a protest in front of the German Bundestag (national parliament) on the occasion of the 70th anniversary of the Grundgesetz (German constitution).[4]

#MillionsMissing Germany organized a Kudoboard to thank the health policy spokeswoman of the Green Party Maria Klein-Schmeink, who made an inquiry about ME/CFS in the Bundestag. The Kudoboard contained over 150 messages from pwME and was presented in printed form in the Bundestag.[5]

Together with the German Association for ME/CFS and MP Martina Stamm-Fibich, #MillionsMissing Germany organized the first Parliamentary Expert Discussion on ME/CFS in the Bundestag in March 2020.[6]

Due to the corona crisis in 2020, #MillionsMissing Germany had to cancel the #MillionsMissing visibility actions in nine cities and organized a postcard campaign to health minister Jens Spahn and other politicians instead.[7]

In December 2022 #MillionsMissing Germany organized a postcard campaign to the German Institute for Quality and Efficiency in Health Care (IQWIG): "All I want for Christmas is an IQWiG report on ME/CFS without harmful recommendations."

#MillionsMissing Germany organized several screenings of the documentary Unrest together with the German Association for ME/CFS.

Interviews and articles[edit | edit source]

Videos[edit | edit source]

Photos[edit | edit source]

Online presence[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

  1. ↑ "Über #MillionsMissing Deutschland". #MillionsMissing Deutschland (in Deutsch). Retrieved July 21, 2019.
  2. ↑ "Über #MillionsMissing Deutschland". #MillionsMissing Deutschland (in Deutsch). Retrieved July 21, 2019.
  3. ↑ "Internationaler ME/CFS Tag am 12.05.2018 – #MillionsMissing". #MillionsMissing Deutschland (in Deutsch). May 12, 2018. Retrieved July 21, 2019.
  4. ↑ "70 Jahre Grundgesetz – Art. 1: »Die Würde des Menschen ist unantastbar.«". #MillionsMissing Deutschland (in Deutsch). May 20, 2019. Retrieved July 22, 2019.
  5. ↑ "Treffen mit ME/CFS-Betroffenen in Berlin". Maria Klein-Schmeink (in Deutsch). Retrieved July 7, 2020.
  6. ↑ "Erstes Parlamentarisches Fachgespräch über ME/CFS im Bundestag". Deutsche Gesellschaft für ME/CFS. March 7, 2020. Retrieved July 7, 2020.
  7. ↑ "»Jens Spahn, Sie haben Post !«". #MillionsMissing Deutschland (in Deutsch). May 1, 2020. Retrieved July 7, 2020.
  8. ↑ "„Jens Spahn, Sie haben Post!"". tagesspiegel.de (in Deutsch). Retrieved July 7, 2020.
  9. ↑ "Myalgische Enzephalomyelitis: Wenn die Grippe einfach nicht weggeht |". Bayerischer Rundfunk. June 26, 2018. Retrieved August 16, 2018.
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