MillionsMissing Deutschland

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Protest in Berlin 2019 – more at millionsmissing.de

MillionsMissing Deutschland (MillionsMissing Germany) was founded in 2018.[1] It's a German affiliate group of MEAction and partner of the German Association for ME/CFS. MillionsMissing Germany is run by a network of dedicated volunteers.

Aims[edit | edit source]

Its aim is to work towards health equity for people with Myalgic Encephalomyelitis (ME).[2]

Events[edit | edit source]

In May 2018 MillionsMissing Germany organized #MillionsMissing protests in Berlin and Gütersloh and supported a third one, hosted by the Lost Voices Foundation in Hannover.[3]

In May 2019 MillionsMissing Germany organized #MillionsMissing protests in Berlin, Munich and Halle (Saale). Later that month a protest in front of the German Bundestag (national parliament) took place.[4]

MillionsMissing Germany organized a Kudoboard for the health policy spokeswoman of the Green Party Maria Klein-Schmeink, who made an inquiry about ME/CFS in the Bundestag. The Kudoboard contained over 150 messages from pwME and was presented in printed form in the Bundestag.[5]

Together with the German Association for ME/CFS and MP Martina Stamm-Fibich, MillionsMissing Germany organized the first Parliamentary Expert Discussion on ME/CFS in the Bundestag in March 2020.[6]

Due to the corona crisis in 2020, MillionsMissing Germany had to cancel the #MillionsMissing visibility actions in nine cities and organized a postcard campaign to health minister Jens Spahn and other politicians instead.[7]

MillionsMissing Germany organizes screenings of the documentary Unrest together with the German Association for ME/CFS.

Interviews and articles[edit | edit source]

Videos[edit | edit source]

Photos[edit | edit source]

Online presence[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

  1. "Über #MillionsMissing Deutschland". #MillionsMissing Deutschland (in Deutsch). Retrieved July 21, 2019.
  2. "Über #MillionsMissing Deutschland". #MillionsMissing Deutschland (in Deutsch). Retrieved July 21, 2019.
  3. "Internationaler ME/CFS Tag am 12.05.2018 – #MillionsMissing". #MillionsMissing Deutschland (in Deutsch). May 12, 2018. Retrieved July 21, 2019.
  4. "70 Jahre Grundgesetz – Art. 1: »Die Würde des Menschen ist unantastbar.«". #MillionsMissing Deutschland (in Deutsch). May 20, 2019. Retrieved July 22, 2019.
  5. "Treffen mit ME/CFS-Betroffenen in Berlin". Maria Klein-Schmeink (in Deutsch). Retrieved July 7, 2020.
  6. "Erstes Parlamentarisches Fachgespräch über ME/CFS im Bundestag". Deutsche Gesellschaft für ME/CFS. March 7, 2020. Retrieved July 7, 2020.
  7. "»Jens Spahn, Sie haben Post !«". #MillionsMissing Deutschland (in Deutsch). May 1, 2020. Retrieved July 7, 2020.
  8. "„Jens Spahn, Sie haben Post!"". www.tagesspiegel.de (in Deutsch). Retrieved July 7, 2020.
  9. "Myalgische Enzephalomyelitis: Wenn die Grippe einfach nicht weggeht |". Bayerischer Rundfunk. June 26, 2018. Retrieved August 16, 2018.

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.