MillionsMissing Deutschland
#MillionsMissing Deutschland (#MillionsMissing Germany) was founded in 2018.[1] It's a German affiliate group of The MEAction Network. #MillionsMissing Germany is run by a network of dedicated volunteers.
Aims[edit | edit source]
Its aim is to work towards health equity for people with Myalgic Encephalomyelitis (ME).[2]
Events[edit | edit source]
In May 2018 #MillionsMissing Germany organized #MillionsMissing protests in Berlin and Gütersloh with support of the German Association for ME/CFS and cooperated with a third protest, hosted by the Lost Voices Foundation in Hannover.[3]
In May 2019 #MillionsMissing Germany organized #MillionsMissing protests in Berlin, Munich and Halle (Saale) with support of the German Association for ME/CFS. Later that month #MillionsMissing Germany held a protest in front of the German Bundestag (national parliament) on the occasion of the 70th anniversary of the Grundgesetz (German constitution).[4]
#MillionsMissing Germany organized a Kudoboard to thank the health policy spokeswoman of the Green Party Maria Klein-Schmeink, who made an inquiry about ME/CFS in the Bundestag. The Kudoboard contained over 150 messages from pwME and was presented in printed form in the Bundestag.[5]
Together with the German Association for ME/CFS and MP Martina Stamm-Fibich, #MillionsMissing Germany organized the first Parliamentary Expert Discussion on ME/CFS in the Bundestag in March 2020.[6]
Due to the corona crisis in 2020, #MillionsMissing Germany had to cancel the #MillionsMissing visibility actions in nine cities and organized a postcard campaign to health minister Jens Spahn and other politicians instead.[7]
In December 2022 #MillionsMissing Germany organized a postcard campaign to the German Institute for Quality and Efficiency in Health Care (IQWIG): "All I want for Christmas is an IQWiG report on ME/CFS without harmful recommendations."
#MillionsMissing Germany organized several screenings of the documentary Unrest together with the German Association for ME/CFS.
Interviews and articles[edit | edit source]
- May 2020, Tagesspiegel: "Jens Spahn, Sie haben Post!"[8]
- June 2018, BR: "Myalgische Enzephalomyelitis: Wenn die Grippe einfach nicht weggeht"[9]
- May 2018, rbb: "Chronisches Erschöpfungssyndrom anerkennen"
Videos[edit | edit source]
- May 2021, #MillionsMissing Germany Trailer 2021
- May 2020, #MillionsMissing Germany Trailer 2020
- August 2019, "Eine Krankheit im Verborgenen"
- May 2019, Protest in front of the German Bundestag
- May 2019, #MillionsMissing visibility actions in Berlin, Halle and Munich
- May 2019, MillionsMissing Germany Trailer 2019
- May 2018, #MillionsMissing visibility actions in Berlin and Gütersloh
Photos[edit | edit source]
- May 2019, Protest in front of the German Bundestag
- May 2019, #MillionsMissing visibility actions in Berlin, Munich and Halle
- May 2018, #MillionsMissing visibility actions in Berlin, Gütersloh and Hannover
- 2018 Campaign: "Ich will mein Leben zurück, Jens Spahn" (Jens Spahn was the minister of health)
Online presence[edit | edit source]
See also[edit | edit source]
References[edit | edit source]
- ↑ "Über #MillionsMissing Deutschland". #MillionsMissing Deutschland (in Deutsch). Retrieved July 21, 2019.
- ↑ "Über #MillionsMissing Deutschland". #MillionsMissing Deutschland (in Deutsch). Retrieved July 21, 2019.
- ↑ "Internationaler ME/CFS Tag am 12.05.2018 – #MillionsMissing". #MillionsMissing Deutschland (in Deutsch). May 12, 2018. Retrieved July 21, 2019.
- ↑ "70 Jahre Grundgesetz – Art. 1: »Die Würde des Menschen ist unantastbar.«". #MillionsMissing Deutschland (in Deutsch). May 20, 2019. Retrieved July 22, 2019.
- ↑ "Treffen mit ME/CFS-Betroffenen in Berlin". Maria Klein-Schmeink (in Deutsch). Retrieved July 7, 2020.
- ↑ "Erstes Parlamentarisches Fachgespräch über ME/CFS im Bundestag". Deutsche Gesellschaft für ME/CFS. March 7, 2020. Retrieved July 7, 2020.
- ↑ "»Jens Spahn, Sie haben Post !«". #MillionsMissing Deutschland (in Deutsch). May 1, 2020. Retrieved July 7, 2020.
- ↑ "„Jens Spahn, Sie haben Post!"". tagesspiegel.de (in Deutsch). Retrieved July 7, 2020.
- ↑ "Myalgische Enzephalomyelitis: Wenn die Grippe einfach nicht weggeht |". Bayerischer Rundfunk. June 26, 2018. Retrieved August 16, 2018.
