Sweden

Sweden

Sweden

Research

• 2018, De måste åtminstone tro oss: En enkätstudie om hur personer med ME/CFS blir bemötta i primärvården (They must at least believe us: A survey of how people with ME/CFS are treated in primary care) - by Annika Nylund, The Swedish Red Cross University College

• Blomberg et al (2018) Infection Elicited Autoimmunity and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: An Explanatory Model

• Theorell et al (2017) Unperturbed Cytotoxic Lymphocyte Phenotype and Function in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients

• Gottfries et al (2015) Response to Vitamin B12 and Folic Acid in Myalgic Encephalomyelitis and Fibromyalgia

• Blomberg et al (2013) Epitopes of Microbial and Human Heat Shock Protein 60 and Their Recognition in Myalgic Encephalomyelitis

• Natelson, Bergquist et al (2011) Distinct Cerebrospinal Fluid Proteomes Differentiate Post-Treatment Lyme Disease from Chronic Fatigue Syndrome

• Zachrisson et al (2004) Immune modulation with a staphylococcal preparation in fibromyalgia/chronic fatigue syndrome: relation between antibody levels and clinical improvement

• Gottfries et al (2002) Treatment with staphylococcus toxoid in fibromyalgia/chronic fatigue syndrome--a randomised controlled trial

Noted people

• Anders Rosén
• Anders Österberg
• Anne Örtegren
• Birgitta Evengård
• Carl-Gerhard Gottfries
• Jonas Blomberg
• Jonas Bergquist
• Olof Zachrisson
• Per Julin
• Robert Olin
• Sten Helmfrid
• Sven Britton

Medical guidelines

There are currently no national clinical guidelines for ME/CFS.

Access to care

How many hospitals & doctors, which diagnose and treat ME (estimate): Rehabilitation offers for ME sufferers:

• Stora Sköndal ME/CFS-mottagning
• Bragee Kliniker

Surveys and reports on patient experiences

• Thurén (2014) Faran med aktivitetsökning vid ME/CFS: ME/CFS-sjukas erfarenheter av aktivitetsökning.
• Riksföreningen för ME-patienter (2008) ...som något katten släpat in: Om att leva med ME/CFS (Kroniskt Trötthetssyndrom) och om mötet med den svenska sjukvården.

Links

• 1177 Vårdguiden: ME/CFS
• Viss.nu, Stockholms läns landsting: ME/CFS
• Riksföreningen för ME-patienter, RME
• How to order the book "Trött är fel ord – Om att leva med den osynliga sjukdomen ME/CFS" by Britt-Marie Thurén (editor)
• ME i maj (advocacy/community)
• ME/CFS-nyheter — Nyhetsbrev via mejl och på webben (ME/CFS newsletter in Swedish)
• Wikipedia: Kroniskt trötthetssyndrom

See also

• EUROMENE

See myalgic encephalomyelitis.

See chronic fatigue syndrome.

cognitive behavioral therapy (CBT) - A type of psychotherapy geared toward modifying alleged unhealthy thinking, behaviors or illness beliefs. One of the treatment arms used in the controversial PACE trial.

See cognitive behavioral therapy.

graded exercise therapy (GET) - A gradual increase in exercise or activity, according to a pre-defined plan. Focuses on overcoming the patient's alleged unhelpful illness beliefs that exertion can exacerbate symptoms, rather than on reversing physical deconditioning. Considered controversial, and possibly harmful, in the treatment or management of ME. One of the treatment arms of the controversial PACE trial.

See Graded exercise therapy.