Sweden

Sweden

Sweden

Research

• 2018, De måste åtminstone tro oss: En enkätstudie om hur personer med ME/CFS blir bemötta i primärvården (They must at least believe us: A survey of how people with ME/CFS are treated in primary care) - by Annika Nylund, The Swedish Red Cross University College

• Blomberg et al (2018) Infection Elicited Autoimmunity and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: An Explanatory Model

• Theorell et al (2017) Unperturbed Cytotoxic Lymphocyte Phenotype and Function in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients

• Gottfries et al (2015) Response to Vitamin B12 and Folic Acid in Myalgic Encephalomyelitis and Fibromyalgia

• Blomberg et al (2013) Epitopes of Microbial and Human Heat Shock Protein 60 and Their Recognition in Myalgic Encephalomyelitis

• Natelson, Bergquist et al (2011) Distinct Cerebrospinal Fluid Proteomes Differentiate Post-Treatment Lyme Disease from Chronic Fatigue Syndrome

• Zachrisson et al (2004) Immune modulation with a staphylococcal preparation in fibromyalgia/chronic fatigue syndrome: relation between antibody levels and clinical improvement

• Gottfries et al (2002) Treatment with staphylococcus toxoid in fibromyalgia/chronic fatigue syndrome--a randomised controlled trial

Noted people

• Anders Rosén
• Anders Österberg
• Anne Örtegren
• Birgitta Evengård
• Carl-Gerhard Gottfries
• Jonas Blomberg
• Jonas Bergquist
• Olof Zachrisson
• Per Julin
• Robert Olin
• Sten Helmfrid
• Sven Britton

Medical guidelines

There are currently no national clinical guidelines for ME/CFS.

Access to care

How many hospitals & doctors, which diagnose and treat ME (estimate): Rehabilitation offers for ME sufferers:

• Stora Sköndal ME/CFS-mottagning (closed)
• Bragee Kliniker (no longer offering specialist ME/CFS care)

Surveys and reports on patient experiences

• Thurén (2014) Faran med aktivitetsökning vid ME/CFS: ME/CFS-sjukas erfarenheter av aktivitetsökning.
• Riksföreningen för ME-patienter (2008) ...som något katten släpat in: Om att leva med ME/CFS (Kroniskt Trötthetssyndrom) och om mötet med den svenska sjukvården.

Links

• 1177 Vårdguiden: ME/CFS
• Viss.nu, Stockholms läns landsting: ME/CFS
• Riksföreningen för ME-patienter, RME
• How to order the book "Trött är fel ord – Om att leva med den osynliga sjukdomen ME/CFS" by Britt-Marie Thurén (editor)
• ME i maj (advocacy/community)
• ME/CFS-nyheter — Nyhetsbrev via mejl och på webben (ME/CFS newsletter in Swedish)
• Wikipedia: Kroniskt trötthetssyndrom

See also

• EUROMENE