Advocacy[edit | edit source]
Anne advocated for improved medical care, especially for those with severe and very severe ME, and criticized what she called the "erroneous psychosocial model", stating that it had caused her harm to her and others.
Myalgic Encephalomyelitis[edit | edit source]
Anne suffered from myalgic encephalomyelitis for 16 years, with the disease becoming increasingly severe, and developing increasing medical complications. She wanted people to know that she did not develop depression and that mental illness was not a factor in her decision. She went through many medical assessments, which took years, before being approved for assisted suicide.
Writing[edit | edit source]
- 2013, Articles by Anne Örtegren - Health Rising
News articles[edit | edit source]
Memorial lecture[edit | edit source]
PhD student fund[edit | edit source]
Learn more[edit | edit source]
- In Loving Memory of Our Dear Friend Anne Örtegren - YouTube
- In Loving Memory of Anne Örtegren - Facebook page
- Website ME/CFS Nyheter (ME/CFS news - in Swedish)
See also[edit | edit source]
References[edit | edit source]
- "Farewell: A Last Post from Anne Örtegren". Health Rising. January 10, 2018.
- "Farewell: A Last Post from Anne" (PDF). Invest in ME Research. 2018.
- "Anne Örtegren - A Year On". Invest in ME Research]]. 2019. Retrieved November 18, 2021.
myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.