Causes of death

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Causes of Death in ME/CFS
1 All causes, 2 Top 3 causes of death, 3 Suicide,
4 Cardiovascular Problems, 5 Cancer
Source: Fatigue. 2016; 4(4): 195–207[1]

Statistics on the causes of death of myalgic encephalomyalitis (ME) and/or chronic fatigue syndrome (CFS) patients vary greatly. Some factors that influence statistics on cause of death include case definitions, regional differences, access to medical resources, and the presence of comorbid illnesses.

Age of deaths due to ME/CFS[edit | edit source]

Deaths caused partly or fully by ME/CFS, England and Wales, 2001 - 2016.
Source: Office of National Statistics.[2]
In England and Wales, most people whose deaths were caused fully or partly by ME/CFS were of working age, with the youngest dying their late teens.[2]
Deaths caused partly or fully by ME/CFS, England and Wales, 2001 - 2016.
Source: Office of National Statistics.[2]

Deaths from ME/CFS are very rare, and ME/CFS is rarely recorded on death certificates. In England and Wales, between 2001 and 2016, 88 death certificates stated that the death was either partly or fully caused by myalgic encephalomyelitis/chronic fatigue syndrome,[2] which is less than six deaths per year.

Notable studies[edit | edit source]

Learn more[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

  1. ↑ 1.01.1 McManimen, Stephanie L.; Devendorf, Andrew R.; Brown, Abigail A.; Moore, Billie C.; Moore, James H.; Jason, Leonard A. (2016). "Mortality in patients with myalgic encephalomyelitis and chronic fatigue syndrome". Fatigue: Biomedicine, Health & Behavior. 4 (4): 195-207. doi:10.1080/21641846.2016.1236588.
  2. ↑ 2.02.12.22.3 "Mentions of postviral fatigue syndrome (benign myalgic encephalomyelitis), deaths registered in England and Wales, 2001 to 2016 - Office for National Statistics". www.ons.gov.uk. Retrieved March 6, 2019.
  3. ↑ Jason, LA; Corradi, K; Gress, S; Williams, S; Torres-Harding, S (2006). "Causes of death among patients with chronic fatigue syndrome". Health Care for Women International. 27 (7): 615-26. PMID 16844674.
  4. ↑ Smith, WR; Noonan, C; Buchwald, D (2006). "Mortality in a cohort of chronically fatigued patients". Psychological Medicine. 36 (9): 1301-6. doi:10.1017/S0033291706007975. PMID 16893495.
  5. ↑ Coyne, James C. (February 16, 2016). "Bad stats, non sequitur conclusions in Lancet chronic fatigue syndrome/suicide study". Quick Thoughts. Retrieved March 6, 2019.

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

The information provided at this site is not intended to diagnose or treat any illness.
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