Causes of death
Statistics on the causes of death of myalgic encephalomyalitis (ME) and/or chronic fatigue syndrome (CFS) patients vary greatly. Some factors that influence statistics on cause of death include case definitions, regional differences, access to medical resources, and the presence of comorbid illnesses.
Age of deaths due to ME/CFS[edit | edit source]
Deaths from ME/CFS are very rare, and ME/CFS is rarely recorded on death certificates. In England and Wales, between 2001 and 2016, 88 death certificates stated that the death was either partly or fully caused by myalgic encephalomyelitis/chronic fatigue syndrome, which is less than six deaths per year.
Notable studies[edit | edit source]
- 2006, Causes of death among patients with chronic fatigue syndrome
- 2006, Mortality in a cohort of chronically fatigued patients(Abstract)
- 2010, Exploring the feasibility of establishing a disease-specific post-mortem tissue bank in the UK: a case study in ME/CFS
- 2012, Chronic Fatigue Syndrome and subsequent risk of cancer among elderly US adults
- 2015, Pathology of Chronic Fatigue Syndrome: Pilot Study of Four Autopsy Cases
- 2016, Mortality in patients with myalgic encephalomyelitis and chronic fatigue syndrome(Full Text)
- 2016, Mortality of people with chronic fatigue syndrome: a retrospective cohort study in England and Wales from the South London and Maudsley NHS Foundation Trust Biomedical Research Centre (SLaM BRC) Clinical Record Interactive Search (CRIS) Register (Emmert Roberts, Simon Wessely, Trudie Chalder, Chin-Kuo Chang, Matthew Hotopf). See also Suicide risk in people with chronic fatigue syndrome. The study has been criticized by James Coyne.
Learn more[edit | edit source]
- 2012, Update on the ME/CFS Tissue and Post Mortem Tissue Bank (ME Association)
- 2016, Mortality in ME/CFS (ME Research UK)
- 2016, Chronic Fatigue and Suicide: An Alarming Trend
See also[edit | edit source]
References[edit | edit source]
- McManimen, Stephanie L.; Devendorf, Andrew R.; Brown, Abigail A.; Moore, Billie C.; Moore, James H.; Jason, Leonard A. (2016). "Mortality in patients with myalgic encephalomyelitis and chronic fatigue syndrome". Fatigue: Biomedicine, Health & Behavior. 4 (4): 195-207. doi:10.1080/21641846.2016.1236588.
- "Mentions of postviral fatigue syndrome (benign myalgic encephalomyelitis), deaths registered in England and Wales, 2001 to 2016 - Office for National Statistics". www.ons.gov.uk. Retrieved March 6, 2019.
- Jason, LA; Corradi, K; Gress, S; Williams, S; Torres-Harding, S (2006). "Causes of death among patients with chronic fatigue syndrome". Health Care for Women International. 27 (7): 615-26. PMID 16844674.
- Smith, WR; Noonan, C; Buchwald, D (2006). "Mortality in a cohort of chronically fatigued patients". Psychological Medicine. 36 (9): 1301-6. doi:10.1017/S0033291706007975. PMID 16893495.
- Coyne, James C. (February 16, 2016). "Bad stats, non sequitur conclusions in Lancet chronic fatigue syndrome/suicide study". Quick Thoughts. Retrieved March 6, 2019.
myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.