ME Association

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The ME Association.jpg

The ME Association is a British patient charity formed in 1976. Its patrons have included His Royal Highness the Duke of Kent, Countess of Mar, Professor Peter Behan and the Right Honourable John Bercow PC MP (Speaker of The House of Commons).[1] As of 2020, its medical advisor is Doctor Charles Shepherd, who is also living with ME. The ME Association conducts community surveys, compiles factsheets, and publishes news about ME/CFS.

Aims[edit | edit source]

Funding[edit | edit source]

Ramsay Research Fund[edit | edit source]

Shortcut:
  • Ramsay Research Fund

The ME Association funds and operates the Ramsay Research Fund which funds biomedical research into the disease.[2] (not to be confused with SMCI's Ramsay Grant Program)

Purple Booklet[edit | edit source]

The ME Association publishes its purple booklet which is a guide to clinical management of the disease for patients and doctors.[3]

Notable publications[edit | edit source]

Notable people[edit | edit source]

History[edit | edit source]

Online presence[edit | edit source]

Learn more[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

  1. "Patrons, Trustees, Advisers". ME Association. Retrieved Feb 18, 2020. 
  2. "The ME Association Ramsay Research Fund (RRF) Factsheet" (PDF). ME Association. November 2018. Retrieved Feb 18, 2020. 
  3. "Our 'Purple Booklet' | clear clinical guidance and the latest research – all wrapped up in 52 pages". ME Association. Jul 1, 2014. Retrieved Feb 18, 2020. 
  4. Charles Shepherd (Apr 30, 2020). "Covid-19 and Post-viral Fatigue Syndrome by Dr Charles Shepherd | 30 April 2020". meassociation.org. Retrieved May 1, 2020. 
  5. Physio for ME; Workwell Foundation; ME Association (May 2020). "Post Covid-19 Rehabilitation". Physiosforme. Retrieved May 2, 2020. 
  6. ME Association (May 2020). "MEA INFORMATION ON Post-viral fatigue (PVF) and Post-viral fatigue syndrome (PVFS) following coronovirus infection" (PDF). meassociation.org. Retrieved May 1, 2020. 

myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

ME/CFS - An acronym that combines myalgic encephalomyelitis with chronic fatigue syndrome. Sometimes they are combined because people have trouble distinguishing one from the other. Sometimes they are combined because people see them as synonyms of each other.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.