Derek Pheby

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Source:Invest in ME

Dr. Derek F. H. Pheby, BSc, MB, BS, LLM, MPhil, FFPH, is a Visiting Professor of Epidemiology, Buckinghamshire New University, Wycombe, England, United Kingdom. He served as the Project Coordinator of the National ME Observatory, a collaborative project involving three universities, aiming to fill gaps in research knowledge.[1] He was a former member of the Chief Medical Officer’s Working Group on CFS/ME and former trustee of Action for ME.[2]

Pheby initiated the establishment of the ME/CFS Disease Register in the UK by using a READ-code based algorithm on Electronic Medical Records which conformed to certain case definitions for ME/CFS. The ME/CFS Disease Register is used to recruit participants with ME/CFS in an unbiased way from a large population base.[3] Likewise, he is establishing a post-mortem brain and tissue bank for the study of myalgic encephalomyelitis/chronic fatigue syndrome.[4]

EUROMENE[edit | edit source]

In 2001, Dr. Pheby was responsible for the establishment of the European ME/CFS research network (EUROMENE), a European Union COST Action CA15111 not-for-profit research organization committed to tackling the cause and treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome[5] He now leads the EUROMENE Socio-economics working group, whose objective is to estimate the burden of ME/CFS to society and provide long-term trend estimates for societal impact.[6]

Studies related to ME/CFS[edit | edit source]

  • 2004, Risk Factors for the Development of Severe ME/CFS — A Pilot Study[7] (Abstract)
  • 2005, Chronic Fatigue Syndrome: a survey of GPs' attitudes and knowledge[8] (Full Text)
  • 2007, The Development of an Epidemiological Definition for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome[9] (Abstract)
  • 2009, Risk factors for severe ME/CFS[10] (Full Text)
  • 2010, Severe ME/CFS in Adults-A report from the CHROME Database[11] (Full Text)
  • 2011, A Disease Register for ME/CFS: Report of a Pilot Study[12] (Full Text)
  • 2011, Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care[13] (Full Text)
  • 2011, Social support needs for equity in health and social care: a thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis[14] (Full Text)
  • 2011, The functional status and well being of people with myalgic encephalomyelitis/chronic fatigue syndrome and their carers[15] (Full Text)
  • 2012, Severe ME/CFS in Adults - A report from the CHROME Database[16] (Full Text)
  • 2014, Considerations in establishing a post-mortem brain and tissue bank for the study of myalgic encephalomyelitis/chronic fatigue syndrome: A proposed protocol[4] (Full Text)
  • 2014, Use of an online survey to explore positive and negative outcomes of rehabilitation for people with CFS/ME[17] (Abstract)
  • 2018, Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe—the Euro-epiME study from the European network EUROMENE: a protocol for a systematic review[18] (Full text)
  • 2020, The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE)[19] - (Full text)
  • 2020, Systematic Review of the Epidemiological Burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Across Europe: Current Evidence and EUROMENE Research Recommendations for Epidemiology [20] - (Full text)

Talks and interviews[edit | edit source]

Online Presense[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

  1. ↑ https://www.linkedin.com/in/derek-pheby-98440a14
  2. ↑ http://www.positivehealth.com/author/dr-derek-pheby
  3. ↑ Pheby D, Lacerda E, Nacul L, Drachler Mde L, Campion P, Howe A, Poland F, Curran M, Featherstone V, Fayyaz S, Sakellariou D, Leite JC. (2011). A Disease Register for ME/CFS: Report of a Pilot Study. BMC Res Notes, 94:139. doi: 10.1186/1756-0500-4-139. http://www.ncbi.nlm.nih.gov/pubmed/21554673
  4. ↑ 4.0 4.1 Nacul, L; O'Donovan, DG; Lacerda, EM; Gveric, D; Goldring, K; Hall, A; Bowman, E; Pheby, D (2014), "Considerations in establishing a post-mortem brain and tissue bank for the study of myalgic encephalomyelitis/chronic fatigue syndrome: A proposed protocol", BMC Research Notes, 18 (10): 370, doi:10.1186/1756-0500-7-370
  5. ↑ http://www.euromene.eu/workinggroups/COST_CV%20and%20Biosketch_Derek%20Pheby.pdf
  6. ↑ http://www.euromene.eu/workinggroups/socioeconomics.html
  7. ↑ William Wernham, Derek Pheby & Lisa Saffron. (2004). Risk Factors for the Development of Severe ME/CFS — A Pilot Study. Journal of Chronic Fatigue Syndrome, Vol. 12, Iss. 2, pp. 47-50. doi:10.1300/J092v12n02_05
  8. ↑ Bowen J, Pheby D, Charlett A, McNulty C. (2005). Chronic Fatigue Syndrome: a survey of GPs' attitudes and knowledge.Family Practice, 22 (4):389-93
  9. ↑ Osoba, Tolu; Pheby, Derek; Gray, Selena; Nacul, Luis (2007), "The Development of an Epidemiological Definition for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome", Journal of Chronic Fatigue Syndrome, 14 (4): 61-84, doi:10.3109/10573320802092112
  10. ↑ Pheby, Derek; Saffron, Lisa (2009), "Risk factors for severe ME/CFS" (PDF), Biology and Medicine, 1 (4): 50-74
  11. ↑ Pheby, Derek; Sneddon, Peter; Heinrich, Inge; Sneddon, M Peter A (2010), "Severe ME/CFS in Adults-A report from the CHROME Database", Bulletin of the IACFS/ME, 17 (4): 143-167
  12. ↑ Pheby, Derek; Lacerda, Eliana; Nacul, Luis; Drachler, Maria de Lourdes; Campion, Peter; Howe, Amanda; Poland, Fiona; Curran, Monica; Featherstone, Valerie (December 2011). "A Disease Register for ME/CFS: Report of a Pilot Study". BMC Research Notes. 4 (1). doi:10.1186/1756-0500-4-139. ISSN 1756-0500. PMC 3118997. PMID 21554673.
  13. ↑ Nacul, L. C., Lacerda, E. M., Pheby,D., Campion, P., Molokhia, M., Fayyaz, S., Leite, JCDC, Poland F, Howe, A and Drachler, M. L. (2011). Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care. BMC Medicine, 9, 91. http://doi.org/10.1186/1741-7015-9-91
  14. ↑ de Carvalho Leite, JC; de L Drachler, M; Killett, A; Kale, S; Nacul, L; McArthur, M; Hong, CS; O'Driscoll, L; Pheby, D; Campion, P; Lacerda, E; Poland, F (2011), "Social support needs for equity in health and social care: a thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis", International Journal for Equity in Health, 2 (10): 46, doi:10.1186/1475-9276-10-46
  15. ↑ Nacul, LC; Lacerda, EM; Campion, P; Pheby, D; Drachler, M de L; Leite, JC; Poland, F; Howe, A; Fayyaz, S; Molokhia, M (2011), "The functional status and well being of people with myalgic encephalomyelitis/chronic fatigue syndrome and their carers", BMC Public Health, 11 (402), doi:10.1186/1471-2458-11-402
  16. ↑ Pheby, Derek & Sneddon, Peter & Heinrich, Inge & Peter A Sneddon, M. (2012). Severe ME/CFS in Adults-A report from the CHROME Database. Medical Statistician.
  17. ↑ Gladwell PW, Pheby D, Rodriguez T, Poland F. (2014). Use of an online survey to explore positive and negative outcomes of rehabilitation for people with CFS/ME. Disability and Rehabilitation, 36 (5):387-94. doi: 10.3109/09638288.2013.797508
  18. ↑ Estévez-López, Fernando; Castro-Marrero, Jesus; Wang, Xia; Bakken, Inger Johanne; Ivanovs, Andrejs; Nacul, Luis; Sepúlveda, Nuno; Strand, Elin B.; Pheby, Derek; Alegre, José; Scheibenbogen, Carmen; Shikova, Evelina; Lorusso, Lorenzo; Capelli, Enrica; Sekulic, Slobodan; Lacerda, Eliana; Murovska, Modra (September 1, 2018). "Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe—the Euro-epiME study from the European network EUROMENE: a protocol for a systematic review". BMJ Open. 8 (9): e020817. doi:10.1136/bmjopen-2017-020817. ISSN 2044-6055. PMID 30181183.
  19. ↑ Pheby, Derek F.H.; Araja, Diana; Berkis, Uldis; Brenna, Elenka; Cullinan, John; de Korwin, Jean-Dominique; Gitto, Lara; Hughes, Dyfrig A; Hunter, Rachael M; Trepel, Dominic; Wang-Steverding, Xia (April 7, 2020). "The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE)". Healthcare. 8 (2): 88. doi:10.3390/healthcare8020088. ISSN 2227-9032.
  20. ↑ Estévez-López, Fernando; Mudie, Kathleen; Wang-Steverding, Xia; Bakken, Inger Johanne; Ivanovs, Andrejs; Castro-Marrero, Jesús; Nacul, Luis; Alegre, Jose; Zalewski, Paweł; Słomko, Joanna; Bolle Strand, Elin; Pheby, Derek; Shikova, Evelina; Lorusso, Lorenzo; Capelli, Enrica; Sekulic, Slobodan; Scheibenbogen, Carmen; Sepúlveda, Nuno; Murovska, Modra; Lacerda, Eliana (May 2020). "Systematic Review of the Epidemiological Burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Across Europe: Current Evidence and EUROMENE Research Recommendations for Epidemiology". Journal of Clinical Medicine. 9 (5): 1557. doi:10.3390/jcm9051557.
  21. ↑ http://www.investinme.org/IIMEC2.shtml
  22. ↑ https://www.youtube.com/watch?v=a_fPLSKnTCU Action for M.E. AGM 2013 part three - Research

See ME/CFS.

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

The BMJ (previously the British Medical Journal) is a weekly peer-reviewed medical journal.

BMJ The BMJ (previously the British Medical Journal) is a weekly peer-reviewed medical journal.

Action for ME (AfME) - Action for ME is a British non-profit organization that was set up in 1987 as The M.E. Action Campaign. Its founders were Martin Lev, Sue Findlay and Clare Francis. In September 1993 it changed its name and logo to Action for ME and Chronic Fatigue. It then changed its name in 1993 to Action for ME.

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