Derek Pheby

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Source:Invest in ME

Dr. Derek F. H. Pheby, BSc, MB, BS, LLM, MPhil, FFPH, is a Visiting Professor of Epidemiology, Buckinghamshire New University, Wycombe, England, United Kingdom. He served as the Project Coordinator of the National ME Observatory, a collaborative project involving three universities, aiming to fill gaps in research knowledge.[1] He was a former member of the Chief Medical Officer’s Working Group on CFS/ME and former trustee of Action for ME.[2]

Pheby initiated the establishment of the ME/CFS Disease Register in the UK by using a READ-code based algorithm on Electronic Medical Records which conformed to certain case definitions for ME/CFS. The ME/CFS Disease Register is used to recruit participants with ME/CFS in an unbiased way from a large population base.[3] Likewise, he is establishing a post-mortem brain and tissue bank for the study of myalgic encephalomyelitis/chronic fatigue syndrome.[4]

EUROMENE[edit | edit source]

In 2001, Dr. Pheby was responsible for the establishment of the European ME/CFS research network (EUROMENE), a European Union COST Action CA15111 not-for-profit research organization committed to tackling the cause and treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome[5] He now leads the EUROMENE Socio-economics working group, whose objective is to estimate the burden of ME/CFS to society and provide long-term trend estimates for societal impact.[6]

Studies related to ME/CFS[edit | edit source]

  • 2004, Risk Factors for the Development of Severe ME/CFS — A Pilot Study[7] (Abstract)
  • 2005, Chronic Fatigue Syndrome: a survey of GPs' attitudes and knowledge[8] (Full Text)
  • 2007, The Development of an Epidemiological Definition for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome[9] (Abstract)
  • 2009, Risk factors for severe ME/CFS[10] (Full Text)
  • 2010, Severe ME/CFS in Adults-A report from the CHROME Database[11] (Full Text)
  • 2011, A Disease Register for ME/CFS: Report of a Pilot Study[12] (Full Text)
  • 2011, Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care[13] (Full Text)
  • 2011, Social support needs for equity in health and social care: a thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis[14] (Full Text)
  • 2011, The functional status and well being of people with myalgic encephalomyelitis/chronic fatigue syndrome and their carers[15] (Full Text)
  • 2012, Severe ME/CFS in Adults - A report from the CHROME Database[16] (Full Text)
  • 2014, Considerations in establishing a post-mortem brain and tissue bank for the study of myalgic encephalomyelitis/chronic fatigue syndrome: A proposed protocol[4] (Full Text)
  • 2014, Use of an online survey to explore positive and negative outcomes of rehabilitation for people with CFS/ME[17] (Abstract)
  • 2018, Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe—the Euro-epiME study from the European network EUROMENE: a protocol for a systematic review[18] (Full text)
  • 2020, The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE)[19] - (Full text)
  • 2020, Systematic Review of the Epidemiological Burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Across Europe: Current Evidence and EUROMENE Research Recommendations for Epidemiology [20] - (Full text)

Talks and interviews[edit | edit source]

Online Presense[edit | edit source]

See also[edit | edit source]

References[edit | edit source]

  1. ↑ https://www.linkedin.com/in/derek-pheby-98440a14
  2. ↑ http://www.positivehealth.com/author/dr-derek-pheby
  3. ↑ Pheby D, Lacerda E, Nacul L, Drachler Mde L, Campion P, Howe A, Poland F, Curran M, Featherstone V, Fayyaz S, Sakellariou D, Leite JC. (2011). A Disease Register for ME/CFS: Report of a Pilot Study. BMC Res Notes, 94:139. doi: 10.1186/1756-0500-4-139. http://www.ncbi.nlm.nih.gov/pubmed/21554673
  4. ↑ 4.0 4.1 Nacul, L; O'Donovan, DG; Lacerda, EM; Gveric, D; Goldring, K; Hall, A; Bowman, E; Pheby, D (2014), "Considerations in establishing a post-mortem brain and tissue bank for the study of myalgic encephalomyelitis/chronic fatigue syndrome: A proposed protocol", BMC Research Notes, 18 (10): 370, doi:10.1186/1756-0500-7-370
  5. ↑ http://www.euromene.eu/workinggroups/COST_CV%20and%20Biosketch_Derek%20Pheby.pdf
  6. ↑ http://www.euromene.eu/workinggroups/socioeconomics.html
  7. ↑ William Wernham, Derek Pheby & Lisa Saffron. (2004). Risk Factors for the Development of Severe ME/CFS — A Pilot Study. Journal of Chronic Fatigue Syndrome, Vol. 12, Iss. 2, pp. 47-50. doi:10.1300/J092v12n02_05
  8. ↑ Bowen J, Pheby D, Charlett A, McNulty C. (2005). Chronic Fatigue Syndrome: a survey of GPs' attitudes and knowledge.Family Practice, 22 (4):389-93
  9. ↑ Osoba, Tolu; Pheby, Derek; Gray, Selena; Nacul, Luis (2007), "The Development of an Epidemiological Definition for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome", Journal of Chronic Fatigue Syndrome, 14 (4): 61-84, doi:10.3109/10573320802092112
  10. ↑ Pheby, Derek; Saffron, Lisa (2009), "Risk factors for severe ME/CFS" (PDF), Biology and Medicine, 1 (4): 50-74
  11. ↑ Pheby, Derek; Sneddon, Peter; Heinrich, Inge; Sneddon, M Peter A (2010), "Severe ME/CFS in Adults-A report from the CHROME Database", Bulletin of the IACFS/ME, 17 (4): 143-167
  12. ↑ Pheby, Derek; Lacerda, Eliana; Nacul, Luis; Drachler, Maria de Lourdes; Campion, Peter; Howe, Amanda; Poland, Fiona; Curran, Monica; Featherstone, Valerie (December 2011). "A Disease Register for ME/CFS: Report of a Pilot Study". BMC Research Notes. 4 (1). doi:10.1186/1756-0500-4-139. ISSN 1756-0500. PMC 3118997. PMID 21554673.
  13. ↑ Nacul, L. C., Lacerda, E. M., Pheby,D., Campion, P., Molokhia, M., Fayyaz, S., Leite, JCDC, Poland F, Howe, A and Drachler, M. L. (2011). Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care. BMC Medicine, 9, 91. http://doi.org/10.1186/1741-7015-9-91
  14. ↑ de Carvalho Leite, JC; de L Drachler, M; Killett, A; Kale, S; Nacul, L; McArthur, M; Hong, CS; O'Driscoll, L; Pheby, D; Campion, P; Lacerda, E; Poland, F (2011), "Social support needs for equity in health and social care: a thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis", International Journal for Equity in Health, 2 (10): 46, doi:10.1186/1475-9276-10-46
  15. ↑ Nacul, LC; Lacerda, EM; Campion, P; Pheby, D; Drachler, M de L; Leite, JC; Poland, F; Howe, A; Fayyaz, S; Molokhia, M (2011), "The functional status and well being of people with myalgic encephalomyelitis/chronic fatigue syndrome and their carers", BMC Public Health, 11 (402), doi:10.1186/1471-2458-11-402
  16. ↑ Pheby, Derek & Sneddon, Peter & Heinrich, Inge & Peter A Sneddon, M. (2012). Severe ME/CFS in Adults-A report from the CHROME Database. Medical Statistician.
  17. ↑ Gladwell PW, Pheby D, Rodriguez T, Poland F. (2014). Use of an online survey to explore positive and negative outcomes of rehabilitation for people with CFS/ME. Disability and Rehabilitation, 36 (5):387-94. doi: 10.3109/09638288.2013.797508
  18. ↑ Estévez-López, Fernando; Castro-Marrero, Jesus; Wang, Xia; Bakken, Inger Johanne; Ivanovs, Andrejs; Nacul, Luis; Sepúlveda, Nuno; Strand, Elin B.; Pheby, Derek; Alegre, José; Scheibenbogen, Carmen; Shikova, Evelina; Lorusso, Lorenzo; Capelli, Enrica; Sekulic, Slobodan; Lacerda, Eliana; Murovska, Modra (September 1, 2018). "Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe—the Euro-epiME study from the European network EUROMENE: a protocol for a systematic review". BMJ Open. 8 (9): e020817. doi:10.1136/bmjopen-2017-020817. ISSN 2044-6055. PMID 30181183.
  19. ↑ Pheby, Derek F.H.; Araja, Diana; Berkis, Uldis; Brenna, Elenka; Cullinan, John; de Korwin, Jean-Dominique; Gitto, Lara; Hughes, Dyfrig A; Hunter, Rachael M; Trepel, Dominic; Wang-Steverding, Xia (April 7, 2020). "The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE)". Healthcare. 8 (2): 88. doi:10.3390/healthcare8020088. ISSN 2227-9032.
  20. ↑ Estévez-López, Fernando; Mudie, Kathleen; Wang-Steverding, Xia; Bakken, Inger Johanne; Ivanovs, Andrejs; Castro-Marrero, Jesús; Nacul, Luis; Alegre, Jose; Zalewski, Paweł; Słomko, Joanna; Bolle Strand, Elin; Pheby, Derek; Shikova, Evelina; Lorusso, Lorenzo; Capelli, Enrica; Sekulic, Slobodan; Scheibenbogen, Carmen; Sepúlveda, Nuno; Murovska, Modra; Lacerda, Eliana (May 2020). "Systematic Review of the Epidemiological Burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Across Europe: Current Evidence and EUROMENE Research Recommendations for Epidemiology". Journal of Clinical Medicine. 9 (5): 1557. doi:10.3390/jcm9051557.
  21. ↑ http://www.investinme.org/IIMEC2.shtml
  22. ↑ https://www.youtube.com/watch?v=a_fPLSKnTCU Action for M.E. AGM 2013 part three - Research
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