List of deaths caused by myalgic encephalomyelitis or chronic fatigue syndrome

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Sophia suffered from very severe ME, which caused her death

When Sophia Mirza, a young artist, died in 2005 her death was widely reported as the first death from ME/CFS, but Sophia's may not have been the first death certificate stating that the cause of death was ME or chronic fatigue syndrome.[1][2] After Mirza's death, Merryn Crofts died from ME shortly after her 21st birthday.[2]

Name Age at death Died Notes
Brynmor John 54 1988 Collapsed outside the House of Commons gym, after being told to exercise for ME.[2]
Roger Cicero 45 2016 Died of a stroke which caused reported as being caused by chronic fatigue syndrome, just hours after performing.[3] He had collapsed with severe weakness the previous year, leading to a diagnosis of myocarditis, and had to cancel the remainder of his tour.[4]
Emily Collingridge 30 2012 Died from "respiratory arrest in an individual with clinically diagnosed ME due to the side-effects of prescription drugs and aspiration of gastric contents" during a long hospital admission.[5] Emily became tube fed due to ME, doubly incontinent, suffered extreme pain and transient blindness and epidoses of paralysis.[5] Ill with ME since she was six years old.[5]
Merryn Crofts 21 2017 Merryn's death was due to severe malnutrition after the withdrawal of her nutrition due to ME.[6] Doctors had previously suggested her weight loss was due to anorexia but investigating found intestinal failure and swallowing problems. She had a feeding tube, then an intravenous nutrition line, but it became infected.[7] Merryn was bedbound with extreme sensitivity to light, convulsions, breathing problems and paralysis.[8]
Sophia Mirza 32 2005 Causes of death: 1. Acute renal failure arising from the effects of chronic fatigue syndrome; 2. previous meningitis; high body mass index, dorsal root ganglionitis; and hepatic steatosis.[9][10] Severe infection of her spine was found at autopsy.[11]Severe ME Awareness Day created in memory of her.[citation needed]
Annabel Senior 60 2003 Richard Senior that reported his wife died in North Wales, and had CFS recorded on her death certificate. [1]
Laurie Walker 59 2001 Laurie was an artist who became increasingly ill with Chronic Fatigue Immune Dysfunction Syndrome (CFIDS). She developed her own hypothesis about CFIDS, and contributed to research, always fighting to try to get better. She eventually died suddenly when in her art studio.[12]

Publications[edit | edit source]

In 2010, Professor Malcolm Hooper published Magical Medicine: How to Make a Disease Disappear, which described the deaths of Sophia Mirza, Merryn Crofts, Brynmor John MP, who collapsed outside the House of Commons gyms after being told to exercise by his doctor, and many others whose deaths were attributed to ME.[2][13]:15-17

See also[edit | edit source]

Learn more[edit | edit source]

References[edit | edit source]

  1. 1.01.1 Senior, Richard (July 26, 2006). "Not, sadly, the first". New Scientist. Comment section. Retrieved August 10, 2018.
  2. 2.02.12.22.3 Hooper, Malcolm (February 12, 2020). "Magical Medicine: How to Make a Disease Disappear" (PDF). Contributions from members of the ME community. Researched by Margaret Williams.
  3. Deutsche Welle (news) (March 29, 2016), German jazz singer Roger Cicero dies, aged 45
  4. "Er lebte so gesund! Wie konnte das passieren?". Bunte de Redaktion. March 30, 2016. Doch wie konnte es trotz seines gesunden Lebensstils zu seinem tragischen Tod kommen? Hat sich der leidenschaftliche Sänger so kurz vor seiner Tournee womöglich zu viel Stress zugemutet? Schon Ende letzten Jahres musste Roger Cicero wegen akuter Schwächesyndrome Termine absagen, er erlitt einen Zusammenbruch. Die Diagnose damals: Herzmuskelentzündung. Doch der Sänger, der seine Arbeit so liebte, schonte sich kaum, reiste von einer Stadt in die nächste, um seine „Cicero sings Sinatra“-Tour zu promoten, die im April starten sollte. Hat er sich zu wenig Ruhe gegönnt?
  5. 5.05.15.2 "In Remembrance: Emily Rose Collingridge" (PDF). Invest in ME Research. July 2017.
  6. "'Vindication' for woman who wanted ME on death certificate". BBC News. July 27, 2018. Retrieved December 8, 2021.
  7. Baker, Keiligh (April 2, 2018). "Woman dies aged 21 weighing just six stone after wasting away from ME". Mail Online. Retrieved December 8, 2021.
  8. Wilkinson, Damon (April 1, 2018). "'Bed-bound and in unimaginable pain, watching my daughter waste away and die from ME was torture'". Manchester Evening News. Retrieved December 8, 2021.
  9. Mirza, Sophia. "Certified Copy of an Entry - Death Certificate". SophiaAndME.org.uk.
  10. Hooper, Rowan (June 16, 2006). "First official UK death from chronic fatigue syndrome". New Scientist. Retrieved August 10, 2018.
  11. "Neuropathological Report". www.sophiaandme.org.uk. Retrieved August 10, 2018.
  12. "Obituary - Laurie Walker". Retrieved December 9, 2021. Working with others she devloped an hypothesie regarding the cause of Chronic Fatigue Immune Dysfunction Syndrome (CFIDS), the disease that led to her death.
  13. Hooper, Malcolm (February 12, 2010). "Press release" (PDF).

Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS) - Chronic Fatigue and Immune Dysfunction Syndrome is another term for Chronic Fatigue Syndrome, but one which emphasizes the immunological aspects of the disease. Popular in the 1990s, this term has apparently fallen into disuse.

Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS) - Chronic Fatigue and Immune Dysfunction Syndrome is another term for Chronic Fatigue Syndrome, but one which emphasizes the immunological aspects of the disease. Popular in the 1990s, this term has apparently fallen into disuse.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.