Margaret Williams is a pseudonym for a patient advocate who used to work in the National Health Service (NHS) in the United Kingdom in a senior clinical capacity until severe myalgic encephalomyelitis (ME) put an end to her career. She has written extensively about ME, often in collaboration with Professor Malcolm Hooper. For professional and personal reasons she does not wish her own name to be in the public domain. Her articles illustrate how the "Wessely School" have ignored the biomedical science on ME/CFS for almost 30 years.
Major articles[edit | edit source]
- 1994, The Views of Dr. Simon Wessely on M.E.: Scientific Misconduct in the Selection and Presentation of Available Evidence?
- 1996, Observations on Joint Royal Colleges' Report
- 1996, Denigration by Design? (Vol 1)
- 1999, Denigration by Design Update (Vol 2): A Review of the Role of Simon Wessely in the Perception of ME 1996-1999
- 2000, Some Issues Relating to the Published Views of Psychiatrists of the "Wessely School" in relation to their belief about the nature, cause and treatment of ME
- 2001, What is ME? What is CFS? Information for Clinicians and Lawyers
- 2001, Composite Response on the Final Version of the CMO’s Report of 31st August 2001 on CFS/ME
- 2001, Concepts of Accountability?
- 2001, Submission to Chief Medical Officer’s Working Group on CFS/ME
- 2003, The Mental Health Movement: Persecution of Patients?
- 2003, Notes on the involvement of Wessely et al with the Insurance Industry and how they deal with ME/CFS claims
- 2003, Ignoring the Evidence? A response to the final version of the MRCCFS/ME Research Advisory Group Strategy of 1st May 2003
- 2003, ME Research is Suffering from Inaccurate Diagnosis, The Biologist (2003:50: (3):104) by Janice Storey and Margaret Williams
- 2004, Some Questions about ME to which Answers are Urgently Required
- 2005, Gibson Inquiry: Illustrations of Clinical Observations and International Research Findings from 1955 to 2005 that demonstrate the organic aetiology of ME/CFS
- 2005, Gibson Inquiry: Concerns about Conflict of Interest
- 2005, Proof Positive? Evidence of the deliberate creation via social constructionism of “psychosocial” illness by cult indoctrination of State agencies, and the impact of this on social and welfare policy
- 2005, ME - Why no Accountability? A synopsis for the Gibson Inquiry
- 2005, Vade MEcum
- 2005, ME: who is attacking whom?
- 2005, Wessely’s Wisdom? Some more open questions for Professor Wessely
- 2006, Summary of Key Points in the Report of the Gibson Parliamentary Inquiry
- 2006, Some Concerns about NICE Draft Guidelines on CFS/ME
- 2007, Failure of Nice to Address its Remit
- 2007, Corporate Collusion? An overview of the misinformation about ME/CFS arising from vested interests that pervades some UK Departments of State and other Agencies
- 2007, Comments on the NICE Guideline on "CFS/ME"
- 2007, Defiance of Science
- 2007, Quotable Quotes About ME/CFS
- 2007, Summary of Research on ME
- 2007, Memorandum to Health Select Committee re NICE
- 2008, Immunological neuroendocrine and neurological evidence (including evidence of CNS inflammation) documented in ME/CFS that NICE chose to ignore
- 2008, Background information and illustrations of evidence that CBT cannot improve ME/CFS which NICE disregarded
- 2008, NICE Guidelines and GET: Failure to Fulfil its Remit
- 2008, Wessely's Way: Rhetoric or Reason?
- 2009, Documented Involvement of Viruses in ME/CFS
- 2009, Documented pathology seen in ME/CFS that contra-indicates the use of Graded Exercise Therapy
- 2009, Evidence that ME/CFS is not a somatisation disorder
- 2010, Another Secret File on ME/CFS Comes to Light
- 2010, Submission re: DSM-V and ME/CFS
- 2010, Magical Medicine: How to Make a Disease Disappear
- 2011, "Grey" Information about ME/CFS, Parts 1-3: 1956-1994
- 2011, Complaint to The Lancet re PACE Trial
- 2012, Prof Wessely's Award of the Inaugural John Maddox Prize for his Courage in the Field of ME and Gulf War Syndrome
- 2012, Immunological Basis of ME/CFS: what is already known? (Journal of Iime vol 6 issue 1, June 2012)
- 2012, Information on Multiple Chemical Sensitivity as a component of ME
- 2012, Questions (Concerning Viruses in ME/CFS) for Profs Frank J M van Kuppeveld and Jos W M van der Meer
- 2012, More Concerns about the Current UK Welfare Reform
- 2013, Prof Sir Simon Wessely - Right or Wrong?
- 2013, Comments on the PACE Debate held in the House of Lords (Grand Committee) on 6th February 2013
- 2014, UK Parliament - Important Debates on ME 1988-2013
- 2014, The UK Government's Three-pronged Strategy for CFS/ME
- 2016, Proof Positive? (Revisited)
- 2016, The PACE Trial did not go Unchallenged
See also[edit | edit source]
References[edit | edit source]
- "Articles on ME/CFS by Margaret Williams and Prof Malcolm Hooper and others". www.margaretwilliams.me. Retrieved Oct 14, 2018.
Myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.