Brynmor John was a British politician and member of parliament (MP). He suffered from myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), and died as he left the House of Commons gym in 1988 at the age of 54, after having been advised to exercise his way through the illness.
Professor Malcolm Hooper wrote about his death:
"On 13th December 1988 Brynmor John MP died from ME/CFS. His experience of the illness was all too familiar:
'Though there is only a slight gradient from our house to the main road, it could have been the North face of the Eiger. I just could not get up it.'— Magical Medicine: How to make a disease disappear (2010)
He found himself unable to dress; the slightest exertion exhausted him and it took days to regain his strength. He was irritated by the profusion of psychiatric comment and was trying to ensure better understanding of ME/CFS (Perspectives, Summer 1991:28‐30). Brynmor John suddenly collapsed and died as he was leaving the UK Parliament's House of Commons gym after having been advised to exercise back to fitness."
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See also[edit | edit source]
References[edit | edit source]
- "Parliamentary business". May 12, 1999.
- Twisk, F.N.M.; Maes, M. (2009). "A review on cognitive behavorial therapy (CBT) and graded exercise therapy (GET) in myalgic encephalomyelitis (ME) / chronic fatigue syndrome (CFS): CBT/GET is not only ineffective and not evidence-based, but also potentially harmful for many patients with ME/CFS". Neuro Endocrinol Letters. 30 (3): 284–299. PMID 19855350.
graded exercise therapy (GET) - A gradual increase in exercise or activity, according to a pre-defined plan. Focuses on overcoming the patient's alleged unhelpful illness beliefs that exertion can exacerbate symptoms, rather than on reversing physical deconditioning. Considered controversial, and possibly harmful, in the treatment or management of ME. One of the treatment arms of the controversial PACE trial.
myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.