Frank Twisk

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history


Frank N.M. Twisk, MBA, MBI, BEd, BEc, is a Dutch myalgic encephalomyelitis (ME) advocate and writer. Prior to becoming ill with ME in 1996, he was a project manager, business administrator, information scientist, mathematician, higher education teacher, and avid footballer. He encourages those of different talents to work together in the goal for scientific answers to ME and advocates for a clear distinction between ME and chronic fatigue syndrome (CFS).[1]

Twisk is associated with a Dutch non-profit, ME-de-patiënten Foundation, in a voluntary (non-paid) capacity.

Interviews & Talks[edit | edit source]

Published Articles, Commentary and Letters[edit | edit source]

Online presence[edit | edit source]

See also[edit | edit source]

Learn more[edit | edit source]

References[edit | edit source]

  1. ↑ 1.0 1.1 Twisk, Frank NM (August 17, 2015). "ME and my life: past, present and future (video - Dutch with English CC)". YouTube. Wetenschap voor Patienten - ME/cvs Vereniging.
  2. ↑ Twisk, Frank NM; Maes, Michael (2008). "A review on cognitive behavorial therapy (CBT) and graded exercise therapy (GET) in myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS): CBT/GET is not only ineffective and not evidence-based, but also potentially harmful for many patients with ME/CFS" (PDF). Neuroendocrinology Letters. 30 (3): 284–299. PMID 19855350.
  3. ↑ Twisk, Frank; Maes, Michael (2010). "Chronic fatigue syndrome: Harvey and Wessely's (bio)psychosocial model versus a bio(psychosocial) model based on inflammatory and oxidative and nitrosative stress pathways" (PDF). BMC Medicine. 8 (35).
  4. ↑ Maes, Michael; Twisk, Frank N; Kubera, M; Ringel, K; Leunis, JC; Geffard, M (October 2, 2011). "Increased IgA responses to the LPS of commensal bacteria is associated with inflammation and activation of cell-mediated immunity in chronic fatigue syndrome". J Affect Disord. 136 (3): 909-17. doi:10.1016/j.jad.2011.09.010. PMID 21967891.
  5. ↑ Maes, Michael; Twisk, Frank N.M.; Kubera, Marta; Ringel, Karl (February 2012). "Evidence for inflammation and activation of cell-mediated immunity in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Increased interleukin-1, tumor necrosis factor-α, PMN-elastase, lysozyme and neopterin". Journal of Affective Disorders. 136 (3): 933–939. doi:10.1016/j.jad.2011.09.004. ISSN 0165-0327.
  6. ↑ Maes, Michael; Twisk, Frank N.M.; Johnson, Cort (December 2012). "Myalgic Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS), and Chronic Fatigue (CF) are distinguished accurately: Results of supervised learning techniques applied on clinical and inflammatory data". Psychiatry Research. 200 (2–3): 754–760. doi:10.1016/j.psychres.2012.03.031. ISSN 0165-1781.
  7. ↑ Twisk, Frank (2013). "Rebuttal to Ickmans et al. Association between cognitive performance, physical fitness, and physical activity level in women with chronic fatigue syndrome.]" (PDF). Journal of Rehabilitation Research & Development. 50 (9): vii-viii.
  8. ↑ 8.0 8.1 Twisk, Frank NM; Geraghty, Keith J (July 11, 2015). "Deviant Cellular and Physiological Responses to Exercise in Myalgic Encephalomyelitis and Chronic Fatigue Syndrome" (PDF). Jacobs Journal of Physiology. 1 (2): 007.
  9. ↑ Twisk, Frank N.M. (March 27, 2014). "The status of and future research into Myalgic Encephalomyelitis and Chronic Fatigue Syndrome: the need of accurate diagnosis, objective assessment, and acknowledging biological and clinical subgroups". Frontiers in Physiology. 5. doi:10.3389/fphys.2014.00109. ISSN 1664-042X. PMC 3974331. PMID 24734022.
  10. ↑ Twisk, F., (2015). Letter to the Editor. Fatigue: Biomedicine, Health & Behavior, 3 (4), 242-243. doi:10.1080/21641846.2015.1083325
  11. ↑ Twisk, Frank (2015). "Commentary on Jason et al. (2015): towards separate empirical case definitions of Myalgic Encephalomyelitis and chronic fatigue syndrome". Health Psychology and Behavioral Medicine. 3 (1): 109-110. doi:10.1080/21642850.2015.1027705.
  12. ↑ Twisk, Frank NM (2015). "Accurate diagnosis of myalgic encephalomyelitis and chronic fatigue syndrome based upon objective test methods for characteristic symptoms". World Journal of Methodology. 5 (2): 68. doi:10.5662/wjm.v5.i2.68. ISSN 2222-0682. PMC 4482824. PMID 26140274.
  13. ↑ Twisk, Frank NM (January 18, 2016). "(correspondence) PACE: CBT and GET are not rehabilitative therapies". The Lancet Psychiatry. doi:10.1016/S2215-0366(15)00554-4.
  14. ↑ Twisk, Frank N.M. (March 2016). "Replacing Myalgic Encephalomyelitis and Chronic Fatigue Syndrome with Systemic Exercise Intolerance Disease Is Not the Way forward". Diagnostics. 6 (1): 10. doi:10.3390/diagnostics6010010.
  15. ↑ Twisk, Frank N.M. (October 1, 2016). "Myalgic Encephalomyelitis, chronic fatigue syndrome or systemic exercise intolerance disease: What's in a name?". Asian Journal of Psychiatry. 23: 70. doi:10.1016/j.ajp.2016.07.004. ISSN 1876-2018.
  16. ↑ Twisk, Frank N.M. (2017). "Dangerous exercise. The detrimental effects of exertion and orthostatic stress in Myalgic Encephalomyelitis and chronic fatigue syndrome" (PDF). Physical Medicine and Rehabilitation Research. 2 (1). doi:10.15761/pmrr.1000134. ISSN 2398-3353.
  17. ↑ Twisk, Frank (2018). "Dutch Health Council advisory report on Myalgic Encephalomyelitis and Chronic Fatigue Syndrome: Taking the wrong turn". Diagnostics. 8 (2). doi:10.3390/diagnostics8020034.
  18. ↑ Twisk, Frank (April 13, 2018). "Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, and Systemic Exertion Intolerance Disease: Three Distinct Clinical Entities". Challenges. 9 (1): 19. doi:10.3390/challe9010019. ISSN 2078-1547.
  19. ↑ Twisk, Frank (March 2018). "Graded exercise self-help for chronic fatigue syndrome in GETSET". The Lancet. 391 (10126): 1161. doi:10.1016/S0140-6736(18)30673-1.
  20. ↑ Twisk, Frank; Corsius, Lou (August 2018). "Cognitive–behavioural therapy for chronic fatigue syndrome: neither efficacious nor safe". The British Journal of Psychiatry. 213 (2): 500–501. doi:10.1192/bjp.2018.136. ISSN 0007-1250.
  21. ↑ Twisk, Frank (December 20, 2018). "Myalgic Encephalomyelitis or What? The International Consensus Criteria". Diagnostics. 9 (1): 1. doi:10.3390/diagnostics9010001.
  22. ↑ Twisk, Frank N.M. (March 28, 2019). "Cognitive-behavorial and graded exercise therapies for chronic fatigue (syndrome) are associated with lower levels of work/school attendance". Journal of Behavioral Medicine. doi:10.1007/s10865-019-00032-5. ISSN 0160-7715.
  23. ↑ Twisk, Frank N.M. (June 2019). "Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, and Chronic Fatigue: Three Distinct Entities Requiring Complete Different Approaches". Current Rheumatology Reports. 21 (6). doi:10.1007/s11926-019-0823-z. ISSN 1523-3774.

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

chronic fatigue (CF) - Persistent and abnormal fatigue is a symptom, not an illness. It may be caused by depression, multiple sclerosis, fibromyalgia, chronic fatigue syndrome or many other illnesses. The term "chronic fatigue" should never be confused with the disease chronic fatigue syndrome.

physiological Concerning living organisms, such as cells or the human body.  Physio logical (as in physio) is not to be confused with psych ological (emotional stress).

objective outcome An outcome of a clinical trial that is independent of the judgement of opinion of the assessor/clinician, e.g. distance walked in 6 minutes. Patient-reported outcomes like questionnaires are not objectives.

cognition Thought processes, including attention, reasoning, and memory.

chronic fatigue (CF) - Persistent and abnormal fatigue is a symptom, not an illness. It may be caused by depression, multiple sclerosis, fibromyalgia, chronic fatigue syndrome or many other illnesses. The term "chronic fatigue" should never be confused with the disease chronic fatigue syndrome.

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