Netherlands

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Netherlands

The Netherlands is a country in northwestern Europe.

Medical guidelines

ME

There exists no medical guidance for ME in The Netherlands. In 2015, the Dutch Parliament assigned the Dutch Health Council to advise on ME. However, the council decided to advise on ME/CFS instead, recommending that the criteria for Systemic Exertion Intolerance Disease (SEID) be adopted.[1][2] The switch was met with heavy criticism.[1] According to the ME Vereniging Nederland, in the absence of guidance specific to ME, the guideline for acquired brain injury should be followed.[3]

CFS

The Dutch Health Council produced advice on CFS in 2005.[4] In February 2013, a basic medical guideline on CFS was published by CBO (in Dutch).[5]

National health department

Ministerie van Volksgezondheid, Welzijn en Sport

Adres: Bezoekadres Ministerie van Volksgezondheid, Welzijn en Sport Parnassusplein 5 2511 VX Den Haag

Postadres: Postbus 20350 2500 EJ Den Haag

Telefoonnummer: (070) 340 79 11 Faxnummer: (070) 340 78 34

Contact

Government health insurance

Private health insurance

Access to care

Social security and disability benefits

Patient groups

ME

ME/CFS

Research

There is no government funding for research into ME in the Netherlands.

Research groups

Researchers

Clinicians

Notable patients

See also

Learn more

References

  1. 1.01.1 Twisk, Frank (2018). "Dutch Health Council advisory report on Myalgic Encephalomyelitis and Chronic Fatigue Syndrome: Taking the wrong turn". Diagnostics. 8 (2). doi:10.3390/diagnostics8020034. 
  2. Gezondheidsraad (2018). "ME/CVS". Retrieved Sep 16, 2018. 
  3. Coronel Instituut (2012), "Niet-Aangeboren Hersenletsel en Arbeidsparticipatie"
  4. https://www.gezondheidsraad.nl/en/task-and-procedure/areas-of-activity/optimum-healthcare/chronic-fatigue-syndrome
  5. http://www.diliguide.nl/document/3435/file/pdf/

Myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

ME/CFS - An acronym that combines myalgic encephalomyelitis with chronic fatigue syndrome. Sometimes they are combined because people have trouble distinguishing one from the other. Sometimes they are combined because people see them as synonyms of each other.

Systemic exertion intolerance disease (SEID) - A term for ME/CFS that aims to avoid the stigma associated with the term "chronic fatigue syndrome", while emphasizing the defining characteristic of post-exertional malaise (PEM). SEID was defined as part of the diagnostic criteria put together by the Institute of Medicine (IOM) report of 10 February 2015.

Myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.