Netherlands

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Netherlands

The Netherlands is a country in northwestern Europe.

Medical guidelines[edit | edit source]

ME[edit | edit source]

There exists no medical guidance for ME in The Netherlands. In 2015, the Dutch Parliament assigned the Dutch Health Council to advise on ME. However, the council decided to advise on ME/CFS instead, recommending that the criteria for Systemic Exertion Intolerance Disease (SEID) be adopted.[1][2] The switch was met with heavy criticism.[1] According to the ME Vereniging Nederland, in the absence of guidance specific to ME, the guideline for acquired brain injury should be followed.[3]

CFS[edit | edit source]

The Dutch Health Council produced advice on CFS in 2005.[4] In February 2013, a basic medical guideline on CFS was published by CBO (in Dutch).[5]

National health department[edit | edit source]

Ministerie van Volksgezondheid, Welzijn en Sport

Adres: Bezoekadres Ministerie van Volksgezondheid, Welzijn en Sport Parnassusplein 5 2511 VX Den Haag

Postadres: Postbus 20350 2500 EJ Den Haag

Telefoonnummer: (070) 340 79 11 Faxnummer: (070) 340 78 34

Contact

Government health insurance[edit | edit source]

Private health insurance[edit | edit source]

Access to care[edit | edit source]

Social security and disability benefits[edit | edit source]

Patient groups[edit | edit source]

ME[edit | edit source]

ME/CFS[edit | edit source]

Research[edit | edit source]

There is no government funding for research into ME in the Netherlands.

Research groups[edit | edit source]

Researchers[edit | edit source]

Clinicians[edit | edit source]

Notable patients[edit | edit source]

See also[edit | edit source]

Learn more[edit | edit source]

References[edit | edit source]

  1. ↑ 1.0 1.1 Twisk, Frank (2018). "Dutch Health Council advisory report on Myalgic Encephalomyelitis and Chronic Fatigue Syndrome: Taking the wrong turn". Diagnostics. 8 (2). doi:10.3390/diagnostics8020034.
  2. ↑ Gezondheidsraad (2018). "ME/CVS". Retrieved September 16, 2018.
  3. ↑ Coronel Instituut (2012), "Niet-Aangeboren Hersenletsel en Arbeidsparticipatie"
  4. ↑ https://www.gezondheidsraad.nl/en/task-and-procedure/areas-of-activity/optimum-healthcare/chronic-fatigue-syndrome
  5. ↑ http://www.diliguide.nl/document/3435/file/pdf/

systemic exertion intolerance disease (SEID) - A term for ME/CFS that aims to avoid the stigma associated with the term "chronic fatigue syndrome", while emphasizing the defining characteristic of post-exertional malaise (PEM). SEID was defined as part of the diagnostic criteria put together by the Institute of Medicine (IOM) report of 10 February 2015.

See systemic exertion intolerance disease.

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

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