Talk:Netherlands

2018 needs description -- notjusttired (talk) 20:29, September 12, 2019 (EDT)

See learn more link for report. Twisk's article may be helpful. notjusttired (talk) 20:29, September 12, 2019 (EDT)

That's just one source, there is more. Guido den Broeder (talk) 21:02, September 12, 2019 (EDT)

Foreigners?

Do we include foreign researchers and clinicians who work in the Netherlands, like Maes? Guido den Broeder (talk) 08:40, September 13, 2019 (EDT)

Researchers and clinicians are cataloged by where they work, not their nationality. Where they work may inform their research more than where they originated. Kmdenmark (talk) 12:20, September 13, 2019 (EDT)

Excellent. Guido den Broeder (talk) 13:33, September 13, 2019 (EDT)

Some characteristics of Dutch patient groups

Name	Type	Patients	Accepts	Voting	Target	Actual	Connected	Main medical	Gov funding
Groep ME-Den Haag	petitioners	101	n.a.	unknown	ME	ME	none	n.a.	none
ME Vereniging Nederland	association	250	ME only	members	ME	ME	DBC, GAME, STMER	CVS/ME Medisch Centrum	none
Stichting ME-de-patiënten	foundation	11	n.a.	board	ME	n.a.	EMEA	unknown	none
ME/cvs Vereniging	association	3001	all sympathetic	members	SEID ('ME/cfs')	SEID	none	Stichting Cardiozorg	none2
Steungroep ME en Arbeidsongeschiktheid	foundation	5001	all sympathetic	board	SEID ('ME and CFS')	CFS	none	n.a.	UWV (projects)
ME/CVS-Stichting Nederland	foundation	15001	all sympathetic	board	SEID ('ME/CFS')	CFS/CF	Pijn, VK	Vermoeidheid Kliniek3	annual subsidy

Notes

1. estimate
2. received a project subsidy for Science for Patients
3. previous main medical: Nederlands Kenniscentrum Chronische Vermoeidheid

All groups are national. Guido den Broeder (talk) 08:46, September 14, 2019 (EDT)

See myalgic encephalomyelitis.

systemic exertion intolerance disease (SEID) - A term for ME/CFS that aims to avoid the stigma associated with the term "chronic fatigue syndrome", while emphasizing the defining characteristic of post-exertional malaise (PEM). SEID was defined as part of the diagnostic criteria put together by the Institute of Medicine (IOM) report of 10 February 2015.

See systemic exertion intolerance disease.

See chronic fatigue syndrome.

chronic fatigue (CF) - Persistent and abnormal fatigue is a symptom, not an illness. It may be caused by depression, multiple sclerosis, fibromyalgia, chronic fatigue syndrome or many other illnesses. The term "chronic fatigue" should never be confused with the disease chronic fatigue syndrome.