ME/CVS-Stichting Nederland
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ME/CVS-Stichting Nederland is a ME/CFS patient group and charity in the Netherlands.[1]
ME, CFS and SEID
Although the foundation uses a combination concept of ME/CFS in their name[2] in order to be relevant to many doctors and patients, the charity produced a 2018 policy document, entitled “Beleidsvisie ME in Nederland” (“Policy vision, ME in the Netherlands”), which describes "CFS" as a stigmatizing term and recommends "ME" as the future term to be used.[3](p7)
The policy document further recommended using the SEID diagnostic criteria for clinical use, but did not recommend any specific criteria for research use.[3](p8)
Aims
Services
Notable people
- Otto Albrecht - Director
- Caroline Nouwen - office staff
Board members
- Theo Kuiphof - President
- Jaap Jan Pieterman - general board member
- Pieter Miedema - Treasurer
- Ronnie Schuurbiers - Secretary
Research/Notable studies
History
ME/CVS-Stichting Nederland was founded in 1987.[4]
Funding
ME/CVS-Stichting Nederland receives modest government funding as a result of being recognized as the national ME/CFS patient organization for the Netherlands.[4]
Interviews and articles
Online presence
See also
Learn more
References
- ↑ "Home". ME/CVS Stichting Nederland (in Nederlands). Retrieved September 9, 2019.
- ↑ "Wat is ME/CVS?". ME/CVS Stichting Nederland (in Nederlands). Retrieved September 12, 2019.
- ↑ 3.0 3.1 Board of the ME/CVS Stichting Nederland (March 19, 2018). "Beleidsvisie ME in Nederland" (PDF). ME/CVS Stichting Nederland. Retrieved September 11, 2019.
- ↑ 4.0 4.1 "Onze Stichting". ME/CVS Stichting Nederland (in Nederlands). Retrieved September 24, 2019.
