ME/CVS-Stichting Nederland

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history

ME/CVS-Stichting Nederland is a ME/CFS patient group and charity in the Netherlands.[1]

ME, CFS and SEID[edit | edit source]

Although the foundation uses a combination concept of ME/CFS in their name[2] in order to be relevant to many doctors and patients, the charity produced a 2018 policy document, entitled “Beleidsvisie ME in Nederland” (“Policy vision, ME in the Netherlands”), which describes "CFS" as a stigmatizing term and recommends "ME" as the future term to be used.[3](p7)

The policy document further recommended using the SEID diagnostic criteria for clinical use, but did not recommend any specific criteria for research use.[3](p8)

Aims[edit | edit source]

Services[edit | edit source]

Notable people[edit | edit source]

  • Otto Albrecht - Director
  • Caroline Nouwen - office staff

Board members[edit | edit source]

  • Theo Kuiphof - President
  • Jaap Jan Pieterman - general board member
  • Pieter Miedema - Treasurer
  • Ronnie Schuurbiers - Secretary

Research/Notable studies[edit | edit source]

History[edit | edit source]

ME/CVS-Stichting Nederland was founded in 1987.[4]

Funding[edit | edit source]

ME/CVS-Stichting Nederland receives modest government funding as a result of being recognized as the national ME/CFS patient organization for the Netherlands.[4]

Interviews and articles[edit | edit source]

Online presence[edit | edit source]

See also[edit | edit source]

Learn more[edit | edit source]

References[edit | edit source]

  1. "Home". ME/CVS Stichting Nederland (in Nederlands). Retrieved September 9, 2019.
  2. "Wat is ME/CVS?". ME/CVS Stichting Nederland (in Nederlands). Retrieved September 12, 2019.
  3. 3.0 3.1 Board of the ME/CVS Stichting Nederland (March 19, 2018). "Beleidsvisie ME in Nederland" (PDF). ME/CVS Stichting Nederland. Retrieved September 11, 2019.
  4. 4.0 4.1 "Onze Stichting". ME/CVS Stichting Nederland (in Nederlands). Retrieved September 24, 2019.