Stichting ME Research

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Stichting ME Research

Aims[edit | edit source]

Services[edit | edit source]

Notable people[edit | edit source]

Research/Notable studies[edit | edit source]

The foundation runs several projects for the ME Vereniging Nederland:

  • Doorlopende Enquête Patiëntenperspectief (Continuous Patient Perspective Survey)[1]
  • Richtlijn voor Myalgische Encefalomyelitis (Guideline for Myalgic Encephalomyelitis)[2]
  • Wetenschap voor Patiënten (Science for Patients)

History[edit | edit source]

The Stichting ME Research was founded 18 August 2011 by econometrician and ME patient Guido den Broeder.

Funding[edit | edit source]

Interviews and articles[edit | edit source]

Online presence[edit | edit source]

Learn more[edit | edit source]

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References[edit | edit source]

  1. ↑ G. den Broeder (2015), "Doorlopende Enquête Patiёntenperspectief 2012-2014", Stichting ME Research, 9 September
  2. ↑ G. den Broeder (2014), "Multidisciplinaire Richtlijn Myalgische Encefalomyelitis (preconcept)", Stichting ME Research, 6 May

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

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